Transcript Slide 1

Share
Care
Council
July 25, 2013
Agenda
1. Background
2. Proposal
3. Goals
4. Guiding Principles & Pledges
5. Name
6. Scope
7. Representation
8. Structure
9. Measurement
10. Budget
Background
In 2011/12 the Mississauga Halton Community Care Access
Centre (MH CCAC) initiated a Client & Family Advisory
Forum project under Executive Champion, Jutta SchaflerArgao, as part of a suite of 24 strategic projects aimed at
implementing the organization’s 2011/14 Strategic Plan
objectives.
The focus of the Client & Family Advisory Forum project was
to examine leading practices that could be employed to
actively engage clients and families in providing input into
MH CCAC service evaluation and development. (Literature review
and interview summary, October 2012)
Co-leads Shelley Wetlauffer and Jannine Bolton completed a
thorough literature review and facilitated interviews with
leading organizations.
Proposal
The report was brought forward to Executive Council in January
2013 and project implementation was transferred to Strategic
Communications & Stakeholder Management.
The proposal was further refined based on additional leading
practice research into the benefits of advisory forum structures,
including:
• Provides and effective mechanism for receiving and
responding to patient and caregiver input
• Results in more efficient planning to ensure that services
really meet patient and caregiver needs and priorities
• Leads to increased understanding and cooperation between
patients, caregivers and MH CCAC
• Promotes respectful, effective partnerships between patients,
caregivers and MH CCAC
(Institute for Patient and Family Centered Care, 2002)
Proposal
(Cancer Care Ontario, 2013)
Goals
To create a forum in which patients and families have the
opportunity to share their perspectives to:
• Strengthen the partnership between the MH CCAC and its
patients and caregivers
• Ensure patient and caregiver needs are anticipated and
inform service development and funding priorities
• Create an ongoing authentic engagement forum to give
patients and caregivers a direct voice
Guiding Principles &
Pledges
The focus of the forum are aligned to the strategic plan
pledges under Client and Family Focus:
Pledge: Families are involved and supported in caring
for their loved ones
Pledge: Our client and families trust they are receiving
care customized to their needs
Pledge: Clients and their families have a direct voice in
our programs and services
Guiding Principles &
Pledges
The guiding principles are informed by the Client & Family
Focus pledges:
• Work related to this forum will be linked to and build on local
program development work to date
• Forum feedback will be shared broadly with formal leaders
within the organization as appropriate to inform programs and
services and deliver an exceptional patient experience.
• Forum will complement existing stakeholder and patient
engagement strategies, including Heroes in the Home, System
Partner Satisfaction Survey, Synergy West GTA, Client
Caregiver Experience Evaluation (CCEE), Speakers Bureau and
social media initiatives
Proposed Name
Patient & Family / Caregiver Advisory Forums are becoming
more common in the sector, and the proposed naming for the
Share Care Council is to:
• Position MH CCAC as a leader by identifying the essential
“shared care” partnerships that exist with patients and family
members
• Acknowledge that “caregiver” may be confusing to those
outside of the health care sector (professional caregivers
versus people who provide care for loved ones?)
• Acknowledge evidence that loved ones don’t self-identify as
“caregivers”
• Ensure a descriptive brand that can be benefits-focused and
avoid membership in its brand name
A council is defined as a deliberative body of people assembled
for some purpose and members are councillors.
Scope
A clear and concise mandate will ensure a shared
understanding of the objectives.
Within Scope
Outside of Scope
Recognition for member
contributions
Compensation for
participation (with the
exception of travel
reimbursement)
Future-focused
perspectives
Rear-view discussion of
experiences, complaints
and appeals
Inform service
development and delivery
Advocacy
Consultation
Decision-Making
Representation
The forum will be comprised of individuals who are willing to
represent the patients and caregivers in the MH CCAC
community and engage in ongoing consultation.
It will be comprised of a blend of both patients and caregivers.
Membership criteria would be:
•
18 years or older
•
Member of the MH CCAC catchment area
•
Current or former MH CCAC service recipient or patient
caregiver (within the previous 24 months)
•
Willing to commit to 18 months of participation
•
Represent diverse cultural and multifaith populations within
MH CCAC catchment (excludes language diversity at this
time due to cost implications)
Representation
Recruited patient representatives will be aligned with the
patient populations identified in the Client Care Model.
Client Services will identify:
• Five patients per population across the three regions
(Central, West, East)
• Six caregivers (Three full-time and three part-time). Please
note we do not anticipate a correlation of experiences to the
CCM structure for caregivers.
A maximum of 18 members will be recruited.
Representation
Permanent organizational representation will include:
• Vice President, Client Services
• Director, Client Services Programs (vacant)
• Director, Strategic Communications and Stakeholder
Management
• Executive Assistant, Executive Office
Leading practice research indicates that staff membership
be comprised of 4 permanent members in the forum.
Other staff may be invited to attend depending on the topics
of discussion.
Structure
The proposed structure of the forum will include:
• Pre-communication by telephone and email
• Annual launch (in-person engagement)
• Technology enabled teleconference
• Second in-person engagement
• Technology enabled teleconference
• Email/letter updates as required
Members will be invited to renew membership after 12
months at which time new membership will be recruited to
fill vacancies. This will ensure continuity and sustainability of
the forum.
Measurement
The proposed evaluation of the forum will include:
• Meeting evaluations to ensure member engagement and
ensure that relevant topics are being discussed
• Ensure that results are evident within the first year
• It is anticipated that one measure of success would be
member willingness to renewal for an additional term
Budget
It is estimated that this forum would cost $15K for the
first year. The break down would include:
Facilitation $5,000
Location and catering $4,000
Travel reimbursement $2,500
Technology $2,000
Certificates $500
Other $750
Questions