Transcript Updates, Uplinks and Downloads to Early Intervention for

Updates, Uplinks and Downloads
to Early Intervention for
Infants/Toddlers with Hearing
Loss
Sarah Peters, Ph.D
Ellen Rolader, M.A.
Melinda Smyth, M.A.
Training Outcomes
Participants will:
• Identify resources related to Early Intervention
with Infants and Toddlers identified with Hearing
loss
• Discuss Virginia State protocols for Early
Intervention practices when serving Deaf and
Hard of Hearing Infants and Toddlers and their
families
• Discuss future needs of Early Intervention and
families of Deaf and Hard of Hearing
Infant/Toddlers for state of the art practices.
• Have hands on experience with materials.
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Incidence of Pediatric
Hearing Loss
• About 12,000 babies are born each
year with permanent hearing loss
• About 20% of children born have a
profound hearing loss
NCHAM, 2001
Incidence per 10,000
(NCHAM)
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BOTTOM LINE…
Hearing loss in babies
and
young children
is not
uncommon!
Medical & Professional
Awareness
• Surprisingly low
• Many unaware of:
– Advances in technology
– Testing methods
– Communication options
In the Past
• Before Universal Newborn Hearing
Screening (UNHS) began in hospitals at
birth, the average child was diagnosed
with hearing loss at:
– 2 ½ years for babies with severe to profound
loss
– 4 to 5 years for those with mild to moderate
loss
Today
• Hearing can be screened on the day
of birth
• Babies are diagnosed early and are
receiving early intervention services
by age 3.9 months
It has long been recognized that:
unidentified
hearing loss at birth can adversely affect
speech and language development as well
as academic achievement and socialemotional development
Universal Newborn Hearing
Screening (UNHS)
• By July 2000, Virginia’s law
required all newborns born
in a hospital to
be screened
Nationwide Universal Newborn
Hearing Screening
The Good News: By 2005, all states had a
newborn hearing screening program in place
The Sad News: Almost 60% of newborns
who did not pass screening, failed to have
appropriate follow-up in audiology and
early intervention programs
Virginia’s UNHS 2006
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Number of Live Births: 108,716
99% Screened Before 1 Month
2.9% Did not pass
83.5% Received follow-up
1.7% Passed screening, but at-risk for
progressive or delayed-onset hearing loss
• 111 children born in 2006 have been
identified with hearing loss
2008 What we have
learned
• Children still slip through the cracks
• Physicians in the NICU not always
reporting to the primary pediatrician
• Families lost to follow-up
• Lack of standardization in re-testing
• Delays in fitting amplification systems
• Appropriate Early Intervention not always
offered to families
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Early Identification is
Important !
• Enables early intervention to take
place
• Takes advantage of the critical
window for growth in all areas of
development
• Gives parents more time to make
decisions
Oh No, Not Another Committee
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Recommendations
Expanded Definition of
Targeted Hearing loss
Separate protocols for
NICU and well baby
nurseries
Genetics consultation
is recommended for
confirmed hearing loss.
Interventionist are
specialists not
generalists
• Joint Committee on
Infant Hearing (JCIH)
2007 Statement
• Major influence on the
reauthorization of
Early Detection of
Hearing Impaired
Infants in Congress now
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Reauthorization of the Early Hearing
Detection and Intervention Act of 2008
Improves Services for Newborns and Infants with Hearing Loss
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Highlights Central Point of Entry
Early Screening
Diagnosis
Follow-up care
Early intervention
Family support services
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Commonwealth of Virginia’s
EDHI Agency
• VEDHI info
• Part of VA’s Department of Health (VDH)
• www.infanthearing.org/states/virginia/ind
ex.html
• Gayle Jones, MPH, CHES
• Goal of audio eval by one month and EI by
6 months
Virginia’s Early Hearing, Detection
& Intervention Agency
Mission: to minimize or eliminate
communication disorders resulting
from a hearing loss
Goal: to identify hearing loss in
children before 3 months of age and
provide appropriate EI services
before 6 months
www.vahealth.org/hearing/
Clueless? Who to
contact
Virginia Network of Consultants (VNOC)
Professionals with expertise in working children who
are deaf or hard of hearing are available to
provide consultation/training in school divisions
and state operated programs in Virginia to
promote and enhance the educational services for
the children
Contact:
Ann Hughes
804-828-1342
[email protected]
What Services are available
•
Universal Newborn Hearing Screening
prior to one month of age
•
Follow up by the Virginia Department of
Health(VEDHI)
•
Early Intervention Part C Services
•
Family support
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Success Story
“Our daughter, Jane, was born 6 weeks
premature. She was in the NICU for 1
month. While in the NICU, her hearing was
tested and she failed. We were advised to
follow up with audiological testing within one
month after she came home. The results of
the next evaluation indicated a mild to
moderate hearing loss in both ears. She did
not have a profound loss and we were
relieved.
Our pediatrician referred us to our local
early intervention program. We have been
with this program now for 2 years and are
grateful for the services they have provided
for Jane and for us, as well.
Jane, now 26 months, is such a pleasure in
our lives and is learning to talk “up a storm”.
We are blessed to have had EI professionals
work with us to show us what to do with Jane
since she was diagnosed at birth.”
After Identification: Now
What?
• Be sure to report to VEDHI
• Find audiological contact within
medical home
• Refer for parent support
• Provide appropriate EI services
Partnerships
• Deaf adults
• Families of children
who are deaf/hard
of hearing (GBYS)
• People representing
different
communication
options (H&V)
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