Strengthening the public voice in shaping sexual and reproductive health services - Changing relationships

Prof Nicola Robinson and Dr Ava Lorenc, Thames Valley University SH Forum 26 th November 2010

Background: PPE in the NHS

2000 2001 2008 • NHS Plan: “

empowered patients”

• • Strengthening accountability: High Quality Care for All: “

patients are the most important people in the health service”

“

patient experience as a key driver of quality”

2009 2010 • • • • • • PPE Support programme: NHS Constitution: Working together: “

patients and the public to drive the design and delivery of high quality services”

“

the NHS belongs to us all”

“

personalisation of public services. information revolution”

Understanding what matters: “

patient and service user experience to transform the quality of services”

Big Society Liberating the NHS

“patient experience”

Aims of project

• • •

Project one (research project) : Review

current policy, guidelines and practice on patient and public engagement (PPE) in SRHH Identify Identify

best practice gaps

examples in existing guidance • •

Project two (working group)

Produce

recommendations

on how to effectively engage patients and the public  influence planning, development, delivery, evaluation and improvement of London SRHH services

Disseminate

recommendations

Research study

Methods: Data collection

Databases Web searches

Phase 1:

Documentary analysis and literature review (policies, websites, journal articles, published reports) Emails to PCT PPE leads

Phase 2:

Survey of PCTs in England regarding their PPE policies - Emails to LSHP contacts - London SH Forum - Snowballing

Phase 3:

Online survey of stakeholder views and experience of PPE

Phase 4:

Qualitative in-depth interviews with key stakeholders

• • • • •

Response

Phase 1: 59 articles/documents included Phase 2: 49 PCTs gave details of PPE activity 15 PPE strategy but not SRHH-specific 4 Mentioned SRHH in PPE strategy 1 PPE SRHH strategy 66 No response Phase 3: 72 completed survey Phase 4: 25 interviews conducted ( 7 Non NHS ; 4 clinicians; 3 public health; 3 patient reps; 2 service users; 1 commissioner; 1 health promotion; 1 researcher) 28 Best practice examples (in Boxes)

• • •

Methods of PPE

One-off consultations – – – Radio advertising Events With community groups Collecting views (routine) – – – – – – Needs assessment Audit Feedback on website Surveys Comments boxes/electronic Online survey • • Collecting views (in-depth) – – – – – – Online forum/network Facebook Qualitative Interviews Social marketing Participatory Action research • Focus groups/workshops/forums User designed methods – – – – – – – – – Radio advertising Helping design materials Mystery shopping/ peer evaluation As part of self-management Patient reps – peer support Peer education Helping with service design Innovative methods including videos etc Community/peer researchers Involvement in management – Taking part in job interviews – Reps on groups/executive/committee – Volunteers at service Involvement in policy/decision-making – Direct contact with decision makers – – – Developing strategy Simulated funding distribution Leadership programs/role models

Key themes/issues/barriers (prioritised by participants)

1. Organisational commitment to PPE 2. Motivating patients/public 3. Using public awareness/education campaigns to engage patients 4. Changing NHS philosophy 5. Informing patients/public 6. Overcoming the barrier of stigma.

7. Working with voluntary sector organisations.

Current gaps in:

• • • • • • • • • Engaging certain population groups Specifically targeting non service users Sexual/reproductive health (not HIV) Structured PPE/organisational committment Training for patients/staff Dedicated staff/time/money Measuring impact Knowledge amongst NHS staff Universal standards for PPE

Six overall recommendations

General public and non service users Services and patients Trusts/health authorities Commissioners DH

1. Involve non service users and hard to reach/at risk groups 2. Overcome stigma 3. Inform patients/public 4. Motivate patients/public 5. Develop organisational commitment to PPE 6. Change NHS philosophy

Report

www.londonsexualhealth.org/ patient-public-engagement

Working group

Remit

• • • • To take the findings/recommendations from the report and make them real To advise the 2011-12 commissioning round, including GP consortia To disseminate report findings and recommendations To advise on training for NHS staff on PPE

• • • •

Plan

To create a PPE resource for SRHH services : – Advice, sources of information (including how to write a strategy and how to design audit tools) and best practice examples on PPE – Website format?

Large stakeholder event – – – – Marketplace format, CPD, Feb/March 2011?

Who?

Where?

Sponsorship?

Network – suggestions?

Follow up training/events – suggestions?

Thank you!

Prof Nicola Robinson Dr Ava Lorenc e-mail: phone: [email protected]

0208 209 4414 Many thanks to LSHP for funding the project and to all the participants in the study