EDUCATING NURSING STUDENTS AND COMMUNITY ABOUT …

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EDUCATING NURSING STUDENTS AND COMMUNITY ABOUT END OF LIFE CONVERSATIONS

EDUCATION

Our Patients Depend on OUR Knowledge about End of Life Care

WE WILL NOT LIVE FOREVER

RELATIONSHIPS

EOL Nursing Competencies

1.

Recognize dynamic changes in population demographics, health care economics, and service delivery that necessitate improved professional preparation for end-of-life care.

(AACN, 2001)

2.

Promote the provision of comfort care to the dying as an active, desirable, and important skill, and an integral

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component of nursing care.

3.

Communicate effectively and compassionately with the patient, family, and health care team members about end-of-life issues.

4.

Recognize one's own attitudes, feelings, values, and expectations about death, and the individual, cultural, and spiritual diversity existing in these beliefs and customs.

5. Demonstrate respect for the patient's views and wishes during end of- life care.

6. Collaborate with interdisciplinary team members while implementing the nursing role in end-of-life care.

7. Use scientifically based standardized tools to assess symptoms (e.g., pain, dyspnea, gastrointestinal symptoms, anorexia/cachexia, asthenia, anxiety, delirium, depression, and communication barriers) experienced by patients at the end of life.

8. Use data from symptom assessment to plan and intervene in symptom management using state-of-the-art traditional and complementary approaches.

9. Evaluate the impact of traditional, complementary, and technological therapies on patient centered outcomes.

10. Assess and treat multiple dimensions, including spiritual psychosocial and physical needs to improve quality at the end of life.

11. Assist the patient, family, colleagues, and one's self to cope with suffering, grief, loss, and bereavement in end-of-life care.

12. Apply legal and ethical principles in the analysis of complex issues in end-of life care, recognizing the influence of personal values, professional codes, and patient preferences.

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Identify barriers and facilitators to patients' and caregivers' effective use of resources.

14. Demonstrate skill at implementing a plan for improved end-of-life care within a dynamic and complex health care delivery system.

15. Apply knowledge gained from palliative care research to end-of life education and care.

END OF LIFE REVIEW

Advance Directive

1

. Designate a surrogate decision maker 2. Stimulate end-of life discussions between patients, families and caregivers, 3. To document what outcome scenarios are acceptable to the patient.

(Gordy& Klein, 2011)

• • • •

Living Will A written document Voluntarily executed by an individual.

Directing the withholding or withdrawal of life-sustaining procedures Usually when individual is in a terminal condition, coma, or persistent vegetativ

e

state.

5 WISHES

WHO WILL MAKE DECISIONS WHEN I CAN’T WHAT MEDICAL TREATMENT I WANT OR DON’T WANT

5 Wishes

How comfortable I want to be

How I want people to treat me

What I want my loved ones to know

Introduced in 1997

Distributed with support from a grant by The Robert Wood Johnson Foundation.

Addresses Needs: Medical, personal, emotional, and spiritual.

GEORGIA POLST FORM

Five Sections

Cardiopulmonary Resuscitation

Medical Interventions

Antibiotics

Artificially Administered Nutrition

Reason For Orders And Signatures

POLST

• •

Medical order completed by a health care provider

Mechanism to communicate patient preferences for end-of-life treatment Designed to travel with patient from one care setting to another

The Go Wish Game

Developed by the Coda Alliance

Values assessment tool

Help people and their loved ones decide what is important to them at the end of life.

Why Does The Game Work?

• •

Educational- New Concepts/Ideas Great for Visual, auditory and Kinesthetic learners.

Flexible –Complete in many places Simple not threatening Open ended Wild card Familiar comforting format

Easy to read Basic format Young to Old is appropriate Introspection

NATIONAL INITIATIVE Conversation Ready National Health Care Community February 13, 2014

OPPORTUNITIES FOR HAVING THE CONVERSATION Senior Centers Nursing AD, BSN, APN Classes Community Outreach Events Church/Temple/Synagogue gathering and services

END OF-LIFE PRINCIPLES End-Of-Life Care Is About:

Compassion at the bedside

Providing comfort

Honoring patients’ preferences

GOLD STANDARD Discussing and following a patient’s preferences for end-of life care is as routine as asking about and responding to a patient’s allergies to medicines

HEALTH CARE AGENT Responsibilities:

To follow the patient’s known preferences

To honor the patient’s Advance Directive and POLST

To act in the best interest of the patient

Healthcare Team Responsibilities:

To follow the patient’s known preferences

To honor the patient’s Advance Directive and POLST without regard to personal views

If unable to honor preferences, facilitate the transfer of patient’s care

When necessary, Clinical Ethics Departments can be utilized as a resource in the hospital systems.

Getting It Right

• • • •

Honor all patients wishes Encourage all patients to have an Advance Care Plan Utilize POLST when patient condition applies Apply reasonable medical judgment

Honoring End of Life Documents When, in the judgment of the physician, one of “three conditions” are met:

Patient is in a Terminal Condition

Patient is in a permanent state of unconsciousness

Medical judgment that CPR would be futile

ADVANCE CARE PLANNING Discussion Documentati on Decision

Engage with our patients and families to understand what matters most to them at the end of life

Steward this information as reliably as we do allergy information

NURSING CURRICULUM EOL Health Assessment Pharmacology Psychiatric-Mental Health

Nursing Management Courses Interprofessional Collaboration for EOL Care Ethical Legal

Cultural Issues Content Nursing Research Hospital, Nursing Home/Home Care/Assisted Living

EOL COSTS OF CARE: WHERE IS THE MONEY GOING

Health Care Costs Highest in the World

Outcomes No Better

( Goodman, Skinner, Bronner, Fisher,2009)

Barriers to Effective Palliative End of Life Care Minority Populations

Rural settings

Patients with FFS insurance

Regardless of the Outcome Resource utilization increased sharply As death approached Particularly in the last 3 months of life

.

(Langton, et al, 2014)

In nearly half of the patients that die in US hospitals, the last three days of their life is spent in an ICU.

More than 25% of health care cost is spent in the last year of life.

(Curtis, Engelberg, Bensink & Ramsey, 2012)

Australian Trial Hospitalized patients over 80 years old 100% May Opt Out of ICU Care

Patients Die in the ICU

60–80% do so after life-sustaining therapy is held.

(Abrahm, 2011)

Education of Nursing Students Involves

Interprofessional Effort of Engagement in Many Ethical Opportunities.

LET’S TAKE OUR EOL TEACHING RESPONSIBILITY SERIOUSLY

References

Abrahm JL. Advances in Palliative Care Medicine and End-of-Life Care. Annu Rev Med. 2011;62:187–9.

AACN: Peaceful Death: Recommended Competencies and Curricular Guidelines forEnd-of-Life Nursing Care: Amercian Association of Colleges of Nursing Publications, Washington, D.C.: 2001: p, 1-5, Retrieved from: http://www.aacn.nche.edu

Curtis, J. R., Engelberg, R. A., Bensink, M. R., Ramsey, S. D. (2012) End-of-Life care in the intensive care unit: Can we simultaneously increase quality and reduce costs?

American Journal of Respiratory and Critical Care Medicine, 186,

587-592

Langton, Blanch, Drew, Haas, Ingham & Pearson (2014) Retrospective studies of end-of-life resource utilization and cost in cancer care using health administration data: A systematic review. Palliative Medicine, 28, 1167-1196.

O’Mahony, S., Mchenry, J., Blank, A. E, Snow, D., Eti Karakas, D., Santoro, G.,…Kvetan, V. (2010). Preliminary report of the integration of a palliative care team into an intensive care unit. Palliative Med 24, 143-165.

Neuberg, G. W. (2009). The cost of end of life care. A new efficiency measure falls sort of AHA/ACC standards, Circulation: Cardiovascular Quality Outcomes, 2, 127-133.