Transcript New England Regional Spinal Cord Injury Center

New England Regional
Spinal Cord Injury
Center (NERSCIC)
At Boston Medical Center &
Gaylord Hospital
…in affiliation with Northeast
Rehabilitation Hospital
Overview
January 17, 2007
About NERSCIC
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At BMC, est. in 1955 as the first civilian
SCI rehab unit in US
Recently re-designated by NIDRR as 1 of
14 National Model Spinal Cord Injury
Systems
• BMC & Gaylord constitute NE network of care,
in association w/ Northeast
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Conduct socio-medical research and
educational programs
More attention to rigor in research &
multi-center collaborations
NERSCIC Components
PI: Steve Williams
Gaylord PI: Dave Rosenblum
Research
Alan Jette
Research Director
Clinical Svc
Coordination
Steve Williams
Dave Rosenblum
Directors
Training &
Dissemination
Bethlyn Houlihan
Director
NERSCIC Major Goals
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Research focus area: Technology and
Science for Health and Function
• Use computer technology to measure function
and to reduce secondary conditions
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Clinically, develop a New England
Standard of Care
Develop regional capacity for
dissemination
Minority/underserved focus
• Representation in research
• Reduce clinical disparities
• Consumer products—ex. Low literacy wording
Model System of Care
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Comprehensive Services
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Emergency care
Acute care
Inpatient acute rehab
Outpatient / follow-up services
Interdisciplinary team: nursing,
physiatrist, PT, OT, RT, psych., social work,
case mngmt
Other required services: Vocational
rehabilitation education, peer mentors,
psychosocial services
National SCI Database:
Purpose
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~250 participants from BMC, Gaylord
• Northeast Rehab in Salem, NH
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To ID & evaluate trends over time in:
etiology, sociodemographics, injury
severity, health services delivery,
treatment
To establish standards of treatment
To facilitate other research (both internal
& external)
30 new patients REQUIRED per year
NMSCIS publications
National SCI Database:
Methods
Two data collection instruments:
 Post-discharge (“Form I”)
• medical record, physiatrist
• Demographics, acute care & rehab received,
treatment outcomes
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Phone interview @ 1 yr & every 5th year
thereafter (“Form II”)
• Change at Year 1, health status, psychosocial
status
• FIM, CHART, CHIEF, Patient Health
Questionnaire
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If refuse participation  Registry