Transcript Document

COCHRANE CONSUMER
NETWORK
PRESENT
PAST
FUTURE
November 2003
Liz Whamond
1
THE PAST
• 1993 - the first Colloquium in Oxford,
England – first steering committee was
appointed by the participants – Hilda
Bastian represented consumers on that
Steering Committee
• 1994 – the Cochrane Consumer Network
was proposed – a second consumer position
on the Steering Committee was granted
November 2003
Liz Whamond
2
THE PAST – CONT’D
• 1995 – there were 25 members in the Network and
Hilda Bastian became Coordinator
• First AGM was held in in Oslo, Norway
• Interim coordinating committee consisted of Jean
Jones (Canada), Fran Visco (USA), Ros Woods
(Australia) and Hilda Bastian (Australia)
November 2003
Liz Whamond
3
THE PAST – CONT’D
• 1996 the membership more than doubled
• The second AGM was held in Adelaide,
Australia
• 14 consumers attended from six countries
• The first newsletter was published
November 2003
Liz Whamond
4
THE PAST – CONT’D
• 1997 membership was a key priority
• The second newsletter was published
• 25 consumers from 8 countries attended the
Amsterdam Colloquium
• A local management committee in Adelaide was
developed that was directly accessible to
Convenor rather than an international structure
November 2003
Liz Whamond
5
THE PAST CONT’D
• 1998 the Convenor was supported financially for
two days plus a coordinator who worked for two
days per week
• Funding was provided by ACC to CCN
• Three newsletters were published
• The first consumers from developing countries
(South Africa and Zimbabwe) attended the
Colloquium in Baltimore, Maryland
November 2003
Liz Whamond
6
THE PAST CONT’D
•
•
•
•
1999 was the year of the Rome Colloquium
Two newsletters were published
CCN membership was at 353
Communications costs were increasing
necessitating the switch over to e-mail and
web communications
November 2003
Liz Whamond
7
THE PAST CONT’D
• ACC grant moved to Melbourne, CCN stayed in
Adelaide and was left with some funding
• Medibank Private began funding a web-based
consumer health information system paid directly
to CCN
• Capetown, South Africa AGM was attended by 20
consumers from 11 countries
• Less emphasis on recruiting consumers with more
concern for activating and supporting existing
membership
November 2003
Liz Whamond
8
PAST CONT’D
• 2001 saw a decrease in funding from the ACC
• Funding became a major concern
• CCCNI was incorporated as a non-profit
association to receive outside funding
• AGM in Lyon was attended by 23 people from 10
countries
• A governance working party was established
November 2003
Liz Whamond
9
THE PAST CONT’D
• 2002 was a real shift for the organization
• While membership had grown substantially, it was
felt that the governing body should be truly
international
• Working group continued on the governance
document
• The Convenor resigned from the Management
Committee and her work with Medibank Private
on the health information website continued
November 2003
Liz Whamond
10
THE PRESENT
• 2003 (January) the new governing council took
office
• Membership of the Governing Council is:
Godwin Aja (Nigeria), Don Baumber (Australia),
Gill Gyte (England) Samuel Ochieng (Kenya),
Silvana Simi (Italy), Janet Wale (Australia), Liz
Whamond (Canada) and Sara Yaron (Israel)
November 2003
Liz Whamond
11
THE PRESENT CONT’D
• We have major challenges in terms of funding as
there were no assets remaining from the previous
management. All work is conducted by the
Governing Council
• We procured funding through the Australian
Department of Health and Ageing to host a
workshop in Australia, to develop a checklist
exercise, to conduct a survey of Cochrane
Collaborative Review Groups and Fields on
consumer participation and a model strategic plan
November 2003
Liz Whamond
12
THE PRESENT (CONT’D)
• An orientation folder has been developed
through the Australian funding
• Four newsletters have been produced
• We continue to monitor the consumer email list
• We have members on the Cochrane Steering
Group and several sub-committees
November 2003
Liz Whamond
13
THE PRESENT (CONT’D)
• The Governing Council met in Barcelona in Oct.
• Our name changed to Cochrane Consumer
Network (CCNet)
• We had a Special General Meeting and an AGM
during the Colloquium
• Several consumer workshops were held including
“Making Sense of Evidence”
• The Governing Council has been renamed to the
Coordinating Team
• The CCSG provided discretionary funds to CCNet
November 2003
Liz Whamond
14
The Future
• Our governance document will be re-examined to
ensure that it’s realistic and meets the needs of
consumers worldwide
• We will to continue to grow our membership
• Our draft Strategic Plan will be further developed
• We are working towards becoming a Cochrane
Field
November 2003
Liz Whamond
15