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ORGAN DONATION THE CHALLENGES AHEAD

Sister Lee Alexander Regional Donor Transplant Co-ordinator Specialist Nurse – Organ Donation

The National Challenge

Deceased donors, transplants and active transplant list : UK

8000 7655 7000 6000 5000 5345 4000 5354 5532 5604 5654 5673 6142 6698 7234 Donors Transplants Transplant list 3000 2360 2428 2311 2247 2388 2396 2241 2195 2385 2381 2000 1000 738 777 773 745 777 770 751 764 793 809 0 1998-1999 1999-2000 2000-2001 2001-2002 2002-2003 2003-2004 Year 2004-2005 2005-2006 2006-2007 2007-2008

Potential Donor Audit Increase in family refusals

• • •

Widespread public support for organ donation yet family refusal rate for donation was 40% When someone’s wishes are known family refusal drops to less that 10% But only 28% are registered on the NHS ODR

Organ Donation Taskforce

• • • •

Ministerial Task Force

established in November 2006 Its brief was

to overcome barriers to the organ donation and transplantation process and recommend solutions within existing operational and legal frameworks Its report ‘Organs for Transplant’ published in January 2008

14 recommendations, accepted in full by the Government which the Task Force believed would increase organ donation by 50% in five years 18 months into a three year implementation strategy

Main Recommendations

A donation committee to be established in each Trust

Clinical Lead for Organ Donation to be appointed for each Trust

Specialist Nurses – Organ Donation resident in each level 1 Trust

Making donation “usual not unusual”

Minimum notification criteria to be established in each critical care area

OUR CHALLENGE AT BVH

We need to make donation “usual not unusual”.

How???

Minimum Notification Criteria

Ensuring all appropriate patients are referred to the Organ Donation Specialist Nurses from the Critical Care Areas.

Bringing the option of donation into end of life discussions.

We can’t work alone!

Work in conjunction with:-

Bereavement Services

Specialist Palliative Care Services

Blackpool patients listed for transplant

• • • • •

Kidney only – 47 Heart – 2 Liver – 1 Single Lung – 1 Kidney + Pancreas – 1 Total = 52 25/05/2010

What can be donated?

Corneas

To restore or improve sight

Heart

A heart transplant can return a person to near normal life

Lungs

Single life and double lung transplant along with heart lung transplant is a second chance at

Liver

Children and adults need this lifesaving transplant

Kidneys

From each organ donor, two people can be free from dialysis

Pancreas/Islet Cell

Can dramatically improve or cure diabetes

Iliac Crest

Made into several blocks; for spinal fusion and stabilization

Heart Valves

To replace defective or diseased valves

Intestine

For children with malabsorption or congenital defects

Long Bones & Connective Tissue

Long bones for whole or partial replacement to repair skeletal defects caused by cancer, degenerative diseases, trauma or birth defects

Tendons

for knees, ankle and shoulder repair and stabilization surgery

Skin

Life-saving temporary skin replacement for severely burned patients; also used for trauma reconstruction

Saphenous & Femoral Veins

To replace blocked arteries in heart bypass surgery; also used for limb saving reconstructive surgeries

The two sides of donation Why we do what we do?

About Me: “24 years old, small blonde and smiley. I love life, but was facing a death sentence due to end stage cystic fibrosis”

For me, transplantation equals hope, a chance, a rainbow. It offers a hope that there are better things to come. Hope that you might step through the looking glass and experience a life you've not dared to dream about in case it should not materialise. And that dream alone is worth fighting for, especially as when it comes true, it's bigger, better and more colourful than you ever could have imagined.

(Emily Thackray)

“Transplants don't last forever. Sad but true. But do you know what? If it all ended tomorrow, I've already done a billion and one things I never thought I'd do, seen a billion and one things I never thought I'd see. I've experienced "normal" life...all thanks to one person, one decision...one family”

Schoolboy, 10, killed in road crash saves lives of FIVE people after donating his organs “George wanted to change things for the better and his attitude was 'if you think you can, you can.' He will certainly have changed the lives of those five people and we are very proud of him” (Sarah and Jonathan Higginson)

Who can be a donor?

The Facts!

You are more likely to need a transplant than to become a donor.

Although 90% of the population support donation, only 28% are on the Organ Donor Register.

Over 10,000 people are currently waiting for a transplant.

Last year over 1,000 people died waiting for a transplant.

More women than men are on the Organ Donor Register.

ORGAN DONOR REGISTER

www.organdonation.nhs.uk

0300 123 23 23

The next Members Health Seminar is on: Wednesday 11 th August 2010 4 – 5 pm Education Centre Lecture Theatre Cataracts/Cornea Problems – Mr Imran Rahman