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“National Picture of Celiac Disease in
Greece ”
Eleftheria Roma
Professor of Paediatric Gastroenterology
of Athens University
COELIAC DISEASE IN GREECE
•Incidence: unknown (1:135 children from recent pilot study, unpublished)
•Under-diagnosed
•National cover of the cost for GF products
• Need for:
•collaboration of health professionals
•registry of patients
• more dieticians
•Need for education about the disease of:
•Patients
•Food producers and restaurants
•Schools and other services
•Health care professionals with regard to the detection and
management of CD
Greek National task force
Composed from 8 members:
4 Paediatric and an adult gastroenterologist, dietician, a coeliac
patient member of the council of the HCS , and a representative of
the Ministry of Health (dietician)
The plans:
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Training and dissemination at national level all about CD
Effort to register all diagnosed coeliacs (children and adults )
Better follow up (especially adults)
Providing gluten-free menus in restaurants, schools
Arrangement for the proper cost of GF products provided by the Government
Effort for detection of asymptomatic or atypical CD
Building National Task Forces : which are the plans
• State of the art in the training and dissemination at
national level
• Information about CD by the media, local societies , schools
• Work with Institution and Professional Societies
• Communication with Hellenic :
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Gastroenterology associations (Adult & Paediatric)
Paediatric Association
College of Paediatricians
Internal medicine association
Information and sensitization of medical students about CD
• Dissemination tailored to the General Practitioners
• Distribution by the government information about CD to GPs over the
country
• Seminars about CD
GREEK COELIAC SOCIETY
•Members (children and adults): about 1300
•Established in 1987
•Activities
•Annual meeting (600-700 participants)
•Annual participation of council members to AOECDS meeting
• Annually updated pamphlet with local and manufactured GF
products
•Site for information
•Forum (chat between members)
•Support information by members
•Youth meetings (2-3/year, participants 16-30 years old)
•Summer camp
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The Association of European Coeliac Societies (AOECS)
was founded in 1988.
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AOECS is the umbrella organisation of European
Coeliac Societies and is an independent non-profit
association.
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AOECS reviews problems of international importance,
coordinates international activities and matters of
common interest of the members and favours the
exchange of information among the members for the
benefit of Europeans affected by the coeliac condition
or dermatitis herpetiformis.
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Greek coeliac society is also a member of AOECS and
CYE.
http://www.koiliokaki.com
Greek coeliac society
• General information
• Administration council
• AOECS
http://www.aoecs.org/
The Greek Mediterranean diet and naturally
gluten free foods
The key components of the Greek
Mediterranean diet
• The key components of the Greek
Mediterranean diet includes many naturally
gluten free foods such as fruits, vegetables,
protein rich legumes-beans, fish and sources
of monounsaturated fatty acids (olive oil) and
polyunsaturated fatty acids (such as omega-3
fatty acids)
Greek vegetable dishes
• Naturally gluten free Greek vegetable dishes
are rich in fiber, vitamins and antioxidants.
Traditional Greek bean & lentil soups rich in
soluble fiber & vegetable protein
Traditional stuffed vegetable dish called
gemista
• Traditional stuffed vegetable dish made with
several different vegetables(tomatoes), rice,
parsley, mint and olive oil.
Vine leaves
stuffed with rice
& parsley
(dolmadakia)
Greek fast food-souvlaki and
homemade french-fries
Traditional Greek deserts are naturally
gluten free
Rice pudding
Yogurt, walnuts & honey
Greek desert made of honey and sesame
seeds are naturally gluten free used by
ancient Greek civilizations
The Diagnostic Guidelines actually
working in the reality of our country
• How they are applicable in the country
• T-TG, EMA, (AGA occasionally)
•Biopsy
•HLA typing (especially in atypical cases ) not in all centers
• The status of contribution to the retrospective
study
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Available data concerning the above tests
Training and dissemination in your
country
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Medical students
General practitioners
Work with all institution and professional societies
Information by the media
Starting a pilot study in the field far from
reference centers
• A stratified study funded by the
Hellenic SPGHAN concerning detection
of CD by whole blood quick test is on
the way
• Pilot data exist.
CONCLUSION
Coeliac disease remains undiagnosed in the high
proportion
Need for intervention:
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education about the disease
screening the high risk groups
availability of GF products outside home
follow up for improvement of compliance to GFD
THANK YOU