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Demystifying dementia
Module one:
Providing person-centred care
This module covers:
1.1 Providing individual care for people with
dementia
1.2 Focusing on the individual not the illness
in the context of relationships and family
1.3 The impact of the physical, social and
emotional environment
Learning outcomes
At the end of this module you will be able to:
• Define and explain person-centred care
• Describe the impact of dementia on a person, their family
and significant others
• Identify the impact dementia can have in terms of assisting a
person with dementia
• Describe the feelings and needs of a person with dementia
• Describe the factors in the environment that can impact on a
person with dementia
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What is it like to have dementia?
From “Opening Shutters – Opening Minds” by James McKillop
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Providing individual care
Encouraging positive social interaction
(relationships) in care by working with the
person with dementia, their families, our
care workers and our care environments
(physical and social).
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Best practice
The environment
The person
Relationships
The staff
The family
Philosophy of care
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What is a Philosophy of Care?
Definition:
The core values an organisation uses in delivering
their services. Your organisation has values which
you and the organisation agree are important or of
value in the workplace
Core values = Philosophy of Care or Mission
Statement
Actions are greater than words!
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Examine your organisation's philosophy or mission
•
Is it clearly defined?
•
Does it help staff work effectively together?
•
Does it have the support of Management?
•
Does it help you in your daily work?
•
Is it alive in your service?
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What are the benefits?
• A guideline to help with decision-making
• A tool to allow people and the service to all move in the same direction
• Must be alive in the workplace
Unites everyone (care workers, clients
and family carers) in a common
purpose!
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1.2 Focus on the individual not the disease
• In the context of relationships and family
• Improve the quality of life for people with dementia
• Try to understand people with dementia and what
matters to them
• Appreciate the uniqueness and individuality of each person with
dementia
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C entre
A ccept
R
espect
An individual or
person centred
approach
E
nable
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Centre
The better we know the person behind the illness the more
likely it is that we will treat them as an individual.
Explore a person’s
Background
•Abilities
•Culture
•Relationships
•Health
•Likes and dislikes
•Disabilities
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Accept
• Do not take what people with dementia
people say or do personally - it is the illness
that is the problem
• What works for one person may not work
for another person. There are no magical
solutions
• Spend time to save time
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Respect
• Instead of seeing the illness as dominating the
person we see the person first and the illness
second
• Understand and respect the individual and what
they value
• Support participation, choice and independence
• Maintain dignity
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Enable
Through our caring relationship and physical and social
environment you:
• Maintain skills, abilities, dignity and self esteem
• Provide opportunities for the
individual’s growth.
• Maintain safety and feelings of security
Focus on the relationship and uniqueness of the
person.
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Comparison of care approaches
Traditional care
Person-centred care
•
•
•
•
•
• Abilities & strengths
• Active coping
• Rich emotional world
• ‘Personhood’ & sense of self
• Quality of life and well being
Relationship focused
Disease and deficit
Dysfunction
Irrational
Cognitive symptoms
Behavioural symptoms
and ill-being
Task focused
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In a nutshell
• Know the person – background habits,
individual needs (centre)
• Understand the person – especially their
behaviour, communication, individual needs,
abilities and limitations (accept)
• Respond to the person – in ways they
understand and know (respect and enable)
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My Person Centred Checklist
 Do my actions value and honour people?
 Do I recognise individual uniqueness?
 Do I make a serious attempt to see my actions from the
person’s perspective or stand point?
 Do my actions provide the support for people who I care for
to feel socially confident and to feel that they are not alone?
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1.3 Impact of environment
What do we mean by ‘environment’ ?
• Physical – bricks and mortar
• Social – communication and interactions
• Emotional – atmosphere and feelings
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Making the most of the environment
•
•
•
•
Minimise background noise
Clear signs at eye level ( e.g. for toilets)
Play music that is relaxing in the background
Manipulate the environment to suit the person’s
needs (lights to the toilet at night, toilet door open)
• Get the person involved in everyday activities around
their house
• Make the area more homely and domestic
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Key Messages
1. Put your Philosophy of Care / Mission into action
2. Person first, illness/dementia second - try to see
the person behind the illness
3. Individual/person centred, relationship focused
4. CARE - Centre, Accept, Respect and Enable
REMEMBER… Get to know the person then you will
understand the person and know how to respond
individually to the person
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