Transcript Joe Selby
Putting the Patient at the Center of Health Care Research
Joe Selby, MD, MPH Executive Director, Patient-Centered Outcomes Research Institute The Conference of Montreal 11 June 2014
PCORI was Created in the Affordable Care Act, 2010 “The purpose of the Institute is to
health decisions assist patients, clinicians, purchasers, and policy-makers in making informed
by advancing the quality and relevance of evidence concerning the manner in which diseases, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed
through research and evidence synthesis...and the dissemination of research findings
with respect to the relative health outcomes, clinical effectiveness, and appropriateness of the medical treatments, services...” — from
Patient Protection and Affordable Care Act
3 Why PCORI?
Research tends not to address many of the practical questions faced by patients, caregivers and clinicians People often need to know which treatment is better for them, given their characteristics and their personal preferences This kind of research is best done in “real world” settings
We Emphasize
Engagement
as a Path to Practical, Useful Research
The 1990s: the Services/Knowledge Industries Look Toward Being “Customer-Centric”
Creating a Customer-Centric Culture: Leadership in Quality, Innovation, and Speed —
Robin L. Lawton, 1993
The Trend Broadens10 Years Later…
Building a Customer-Centric Organization
9 out of 10
CEOs say they are strengthening customer and client engagement programs.
— PriceWaterhouseCoopers Survey, 2013
The Path to a Customer-Centric Organization Source: Beyond Philosophy
Introducing PCORnet: The National Patient-Centered Clinical Research Network
PCORNet:
The Patient-Centered Clinical Research Network A collaborative array of health data networks, some based within large health systems and others in patient groups, many of which are focused on rare diseases Seeks to improve the nation’s capacity to conduct clinical research more efficiently, by creating a large, highly representative platform with a focus on conducting outcomes research – both randomized and observational.
Aims to support a learning US healthcare system, which would allow large-scale research to be conducted with enhanced accuracy and efficiency within real-world care delivery systems.
11 CDRN and 18 PPRN awards were approved December 17, 2013 by PCORI’s Board of Governors
This map depicts the number of PCORI-funded Patient-Powered or Clinical Data Research Networks that have coverage in each state.
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PCORnet: Infrastructure for a Learning Health System
Find PCORI Online