Transcript The Arc of California Presentation to the Independent Way

The Arc of California
August 2012
“The Arc is the nations oldest and largest association for people with intellectual
and all other developmental disabilities and their families since 1953”
Overview…
 Core Values
 Chapters
 Systems Reform Projects
 Advocacy Publications
 Public Policy: State Lobby
 Sponsored Legislation
 Public Policy: National
Lobby
 State Stakeholder Role
 Conferences and
Professional Development
The Core Values of The Arc
 People First
 Democracy
 Visionary Leadership
 Community
Participation
 Diversity
 Integrity and
Excellence
Chapters of The Arc of CA
1. The Arc of Alameda County
11. The Arc of Riverside
2. The Arc of Amador & Calaveras 12. The Arc of San Francisco
Counties
13. Alpha Resource Center of Santa Barbara
3. Bakersfield Arc
14. The Arc of Solano
4. The Arc of Butte County
15. The Arc of South Bay
5. Contra Costa Arc
16. The Arc of Southeast Los Angeles
6. The Arc of Fresno
17. The Arc of Taft
7. The Arc of Imperial Valley
18. The Arc of Ventura County
8. People First of California
19. The Arc of San Bernardino
9. The Arc of San Diego
20. The Arc of San Joaquin
21. Placer Arc
22. DesertArc
23. Desert Area Resource Center
Supporters…
Orange County ARC
Over 10,000 members in California and 250,000 members nationwide making The Arc the largest
membership association for parents, families, self-advocates and supporters in the country.
Also the latest Forbes poll indicates The Arc is the eighth largest non-profit organization in the
nation.
Projects of The Arc of California
 Community Organizing.
 The California Alliance for Direct
Support Professional – a state
association for direct service
workers who support people with
disabilities and seniors.
 Advocacy Training
 Fetal Alcohol Spectrum Disorder
Advocacy
 Coalition Building: Lanterman
Coalition, Alliance for Full
Participation, Vendor Advisory
Chairs, etc.
Publications
 Monday Morning Memo
 Fusion
 Annual State Budget
Report
 Capitol Insider
 National Legislative
Agenda
 5000 Facebook Friends
 250 Twitter Followers
 4500 Constant Contact
 4200 CapWiz Political
Action Alerts
Public Policy: State Lobby
 Registered Lobbyist in Sacramento,




California
2 Non-registered advocates
Conduct Grassroots Advocacy Campaigns
Track 100 bills a year
Monitor floor sessions and committees
addressing issues impacting people with
developmental disabilities and their
families in the following categories:
Children & Families, Criminal Justice , General
Systemic , Health & Medical , Housing, In Home
Support Services, Mental Health, Olmstead
Related, Special Education, Work, Prevention &
FASD
Sponsored Legislation
 SB 1381 Fran Pavley (2012) – The R-Word –
Signed by Gov Brown
 AB 540 Jim Beall (2011 -2012) – Prevention
Bill – Vetoed but may be considered in
special session.
 SB 110 Carol Lui (2010) – Criminal Justice Bill
– Signed by Gov Schwarzenegger.
 AB 2702 Wesley Chesbro (2010) – The IPP
Bill – Implemented by DDS (bill withdrawn)
Public Policy: State Budget
Ongoing Budget Related
Positions
 Protection of the California
Lanterman Act
 Protect an individual’s right in
their IPP to determine the
supports and services they
need.
 Invest in Direct Support
Professionals
 A comprehensive State
Commitment to Prevention
Public Policy: National Lobby
 Full office of registered
professional lobbyists in
Washington, DC.
 Disability Policy Seminar
 Monthly Conference Call
Updates on Congress and the
Administration.
 Weekly and Monthly
publication updates on national
policy.
National Advocacy














Medicaid, Medicare, & SCHIP
Home and Community-Based Services Option
Community Choice Act
Other Long Term Services and Supports
ADA Restoration
Employment
Direct Support Workforce
Education
TANF
Social Security
Housing
Title XX Social Services Block Grant
Transportation
Disability Savings Accounts
State Stakeholder Role





















Represents our constituents at all ad hoc DDS stakeholder meetings
President appointed by Gov Schwarzenegger to serve on the State Council on Developmental Disabilities
Three representatives from The Arc of CA serve on the national board of The Arc.
The Olmstead Advisory Committee to the Secretary of Health and Human Services – Appointed by Kim Belshe, Secretary of CA
Health and Human Services Agency.
The California Early Start Interagency Coordinating Council – Appointed by Dr. Raymond Peterson, Chair.
Governors Committee on Employment of People with Disabilities, Education & Employment Subcommittee – Appointed by
Janice Emerzian, Ed.D. Chair.
Chairs the Lanterman Coalition, a coalition of ten of the states largest and most influential statewide stakeholder groups.
Think Tank on Abuse of People with Developmental Disabilities.
The California Fetal Alcohol Spectrum Disorders Task Force.
Member of the California Compassionate Care Coalition, Developmental Disabilities Workgroup.
Community Advisory Committee to the Tarjan Center, the University Center for Excellence on Developmental Disabilities at
UCLA.
Planning Committee for the Supported Life Institute Conference, the largest California conference supporting community
inclusion.
The California Task Force on Mental Health Services for People with Developmental Disabilities.
Member of the California Association of Voting Advocates – a statewide voting rights and access and participation.
Member of the California Affordable Housing Coalition
Member of the statewide workgroup on Disaster Planning and response headed by the Dept of Developmental Services.
Elected to the Board of Directors (Vice President) of the National Conference of Executives of The Arc.
Appointed to The Arc of the United States strategic planning committee and later to the committee on affiliation and the future
of The Arc.
Organizer for the CA Alliance for Full Participation
Planning Committee for the NCE Summer Training and Education Committee for NCE
Etc., etc., etc.
Conferences
 National
 Convention
 Public Policy
 NCE – Executive Directors
Summer Training
 State
 Convention
 Strategic Planning
 Public Policy
 Annual Planning for the
Supported Life Conference
 And more…(Capitol Action,
Quality Conference, ANCOR
conference, Wellness, etc)
Executive Staff:
Professional Development
CCE: Support from
Training:
colleagues in the California  Annual Summer Training for
Conference of Executives of Executives of The Arc.
The Arc – plus quarterly
 A National Network and List
meetings.
Serv for Executives of The
Arc to help focus on the
NCE: Support from
unique expectations of an
colleagues in the National
advocacy oriented executive
Conference of Executives of
director.
The Arc – annual meeting
and topical conference prior
to the national convention.
Association and Member Benefits
National Benefits









Met Desk – Special Needs Trust
Mutual of America - Retirement
Qquest – time sheet data tracking systems
The Conference Depot – Teleconference Services
Jefferson Leasing – Vehicle Leasing
Masune – Discounted First Aid and Safety Supplies
Furniture Concepts – Residential Care furniture supplier
Therap – Web-based Case Management Tools
College of Direct Support, Colonial Insurance, and Philadelphia Insurance (reduced insurance
rate) Workforce Development Offer.
State Only
 Therap – Free for two years only for The Arc of CA chapters
 College of Direct Support (reduced rate state only), Colonial Insurance, and Philadelphia
Insurance (reduced rate national offer) Workforce Development Offer.
 Aflac Special Association Benefit (State Only)
What We Did in 2012
 Filed Lawsuit in September 2011 that influenced
the 2012-2013 budget proposals
 Facilitated a coalition of supporters for the lawsuit
that helped with a major communications plan
plus raised about $250,000 to fund the lawsuit.
 Consistent advocacy with the Los Angeles Special
Victims Unit yields results.
What We Did in 2012
 Organized the statewide vendor advisory
committee chairs.
 White house briefing regarding Medicaid and all
disability programs.
 Hosted the 5th Annual Public Policy Conference in
Sacramento.
What We Did in 2012
 Joined the California Coalition for Long Term
Supports and Services.
 Organized 15 advocates from The Arc and UCP for
Stakeholder budget meetings
 Lobbied the state legislature and Brown
Administration officials.
What We Did in 2012
 R-Word Bill, Senator Fran Pavley. – The governor
signed the bill.
 Organized meeting events with Senator Barbara
Boxer and Diane Feinstein in Washington DC.
 Met with high-level CMS officials.
What We Did in 2012
 120 bills tracked, all opposed bills died in legislature,
governor signed 21 of our remaining 25 bills.

 Increased outreach to the National Association of
Elder law Attorney’s.
 Continued community organizing and power building,
took board role on the board of directors of Gamaliel
of California.
What We Did in 2012
 Fought for successful outcome on issue of the
crime against people with I/DD DC
 Led in opening professional develop opportunities
to all executive level staff in The Arc.
 Created the California Alliance for Direct Support
Professionals (CADSP).
What We Did in 2012
 Outreach for action alerts grew by 40%, doubled our
Facebook to 5000, and doubled our general email
marketing to over 4600 readers and related advocacy
groups.
 Led in our endorsement of Proposition 30 - Prop 30
passed and millions of dollars in cuts were avoided.
Questions?
Tony Anderson
Executive Director
The Arc of California
1225 8th Street, Suite 350
Sacramento, California 95814
(916) 552-6619
[email protected]