Transcript Improving Family-to-Family Services in Children`s Mental Health
Saratoga Springs December 1, 2010
Kimberly E. Hoagwood, Columbia U Serene Olin, NYSPI Mary McHugh, OMH Geraldine Burton, NYSPI Nancy Craig, OMH Anne Kuppinger, Families Together of NYS
Project Director: ◦ Mary A. Cavaleri, NYSPI Research Assistant: Jennifer Ball, NYSPI ◦ ◦ ◦ ◦ Additional Collaborators: ◦ Jennifer P. Wisdom, NYSPI ◦ Naihua Duan, NYSPI Charles Glisson, U of TN Sue Marcus, NYSPI Mary M. McKay, Mt. Sinai School of Medicine *Funded by: National Institute of Mental Health
Overview of study: Kimberly Hoagwood OMH initiatives in family support: Mary McHugh Credentialing and training in family support: Anne Kuppinger Perspectives on the value of research partnerships from family advocates: Nancy Craig and Geraldine Burton
Family-to-family (i.e., peer-delivered) services in children’s mental health are gaining national attention ◦ National Federation of Families credentialing project ◦ 137 chapters ◦ ◦ NAMI Basics curriculum: 12,000 parents have participated in year 1 ½ dozen states making it a billable service Important service model with little research data to document its content and impact on families and systems (Hoagwood et al., 2010 review)
Reduces stigma and distrust by improving communication (Linhorst & Eckert, 2003) Improves activation in seeking care (Alegria et al., 2008) Improves self-efficacy– i.e., active participation in decision making (Heflinger & Bickman, 1997; Bickman et al., 1998) Improves knowledge and beliefs about children’s mental health and this is associated with use of higher quality services for children (Fristad et al., 2003; 2008) Almost no rigorous studies thus jeopardizing long term viability 5
What is the content and structure of family to-family services: components, staff models, attitudes/beliefs of staff.
Is it effective—Does it have a positive impact on parents, youth, and on systems (e.g., costs, efficiencies).
What are the best models for integrating family peer advocates into service programs.
How can family support services be used to further the OMH goal of clinic restructuring
OMH Perspectives: Reshaping Policy—Mary McHugh, OMH
From an emphasis on ‘family engagement’ to ‘family-driven services’.
A focus on developments in both the family support movement and research regarding the delivery of high quality, effective family support services.
To guide these policies, the Division of Children and Families includes Parent Advisors who are intricately involved in our planning and program operations.
Investing in Family Support Services
We invest over $14 million state and federal dollars in the delivery of family support services.
We support Family-run and provider-operated family support programs that deliver individual and group peer support, referrals and linkages, advocacy, skill development, care coordination, respite, family recreation and basic supports. We support strategies to improve partnerships between mental health programs and family run family support programs
Three Level Approach to Improving Family Support in Mental Health System
COMMUNITY PROGRAMS Expertise Training Shared Resources STATE POLICY Definitions Measurement Financing PROVIDER ACTION Redesign Quality Improvement
Systems not Services
“ You can’t expect an individual service provider to transform their practice on their own; it is much too expensive and complex. It is easier to transform practices when they are part of a system and achieve economies of scale”. Ed Schor M.D., The Commonwealth Fund
FTNYS Perspective: Training/Credentialing of Family Peer Advocates: Anne Kuppinger
Family Advocates Perspective: Geraldine Burton
What is research?
◦ The right question ◦ The right time ◦ Gathering of information
Who can do research?
Why is research important?
Parents/caregivers Scientist Scholars Students Teachers Helps to inform, educate and enhance what we already do.
What is it like to work in research as a Family Advocate?
Opportunity to work in collaboration and partnership with the community and other researchers Opportunity to learn from each other Opportunity to share your experience Continue to work with families
Primary purposes of the study
To examine the process and content of services provided by family peer advocates within 25 Waiver programs To examine the social organizational context within which family support is delivered To understand how best to enhance the quality of family support services
Examine the structure, process and content of family support services
25 waiver programs within 6 to 10 mental health service agencies.
3 to 5 staff per waiver program (e.g., supervisors, ICCs, family peer advocates, skill building staff, others).
Participants Measures Time point
Agency Director Waiver Program Staff a. Interview 1 time a. Organizational Social Context questionnaire *b. Walkthrough of Services with focus on Family Support c. Interviews with staff about Family Support Services 1 time
Duration Method of Data Collection
30 minutes a. + c. = 1 hour *2 hours a. In person/phone call a. Staff meeting b. In person c. In person or phone interview
Standardized Parent Walkthrough
Standardized Parent (SP) will participate in first meeting with relevant Waiver staff SP will participate in a face-to-face appointment with FPA At the end of the Walkthrough, the family peer advocate will complete an interview
What will we do with the information collected in Phase 1?
Describe variations in process and content of family support services across Waiver programs ◦ Identify what family peer advocates do Describe how the social-organizational context of Waiver programs relate to indicators of service quality Identify how agencies can support what family peer advocates do
Examine organizational strategies to improve the integration of family support within agencies
Complete the application or contact us: ◦ Kimberly E. Hoagwood (Principal Investigator) [email protected]
◦ Mary Cavaleri (Project Director) [email protected]
◦ Jennifer Ball (Research Assistant) [email protected]