One Size does NOT Fit All: Addressing Cultural and Developmental Issues in HIV Prevention for Diverse Youth Gary W.
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One Size does NOT Fit All: Addressing Cultural and Developmental Issues in HIV Prevention for Diverse Youth Gary W. Harper, Ph.D., M.P.H. Department of Psychology DePaul University Primary Sources of Funding • Adolescent Trials Network for HIV/AIDS Interventions (National Institute on Child Health and Human Development; NIMH; NIDA) • AIDS Foundation of Chicago • Chicago Department of Public Health • DePaul Faculty Research and Development Committee • DePaul University Research Council • Health Resources and Services Administration (HRSA) • Illinois Campus Compact • National Institute on Mental Health • Universitywide AIDS Research Program (California) • Vincentian Endowment Fund What Do You See? #1 #2 #3 Developmental Issues of Adolescence • Biological Changes • Cognitive Changes • Social Changes • Identity • Intimacy • Autonomy • Sexuality Bronfenbrenner’s Ecological Systems Theory of Human Development Multiple Factors to Address in HIV Prevention Programs for Youth • Developmental (cognitive, identity, autonomy) • Linguistic/Language (ethnic, youth) • Social (friends, peers) • Community/Environmental (neighborhood, city) • Culture (ethnic, youth, lgbt) • Societal (oppression, marginalization) The Five M’s of Adolescent HIV Prevention Interventions (For Youth and Interventionists) • Meaning • Motivation • Methods • Money • Merriment (Make me Laugh!) •Ana Pedraza •Luule Vess •Michelle Tolliver •Richard Contreras •Audrey K. Bangi Narrative Ethnography: Understanding Multiple Levels of Narratives • Story = personal story • Narrative = shared or common stories • Dominant cultural narratives related to MexicanAmerican culture • Community narratives related to the community agency (Project VIDA) and the neighborhood (Little Village). • Personal stories of agency staff, agency clients, and community members Narratives as a Way to Give Voice to the Experiences of the Agency and the People Individual In-Depth Interviews • Cultural and community narratives revealed dating and sexual scripts for young women • Personal stories uncovered participants’ unique stressors Focus Groups • Offered insight into program’s shortcomings • Provided youth an opportunity to shape and create new stories for program modification Non-participant Observations • Increased understanding of specific stories shared between participants and facilitators Additional Sources • Written text; Rituals; Physical spaces and structures SHERO’s Program • Theoretically grounded in the AIDS Risk Reduction Model. • Addresses a range of social, cultural, and relational barriers to HIV protection. • Delivered in group setting by young women from the community. • Sessions include the following: – – – – – – – – – – Women’s sexual health Pregnancy HIV transmission fact/myths Dating & Relationships Self-esteem Protective barriers Gangs Communication/negotiation Sexual Assault Sexually Transmitted Diseases M. Margaret Dolcini Cherie Boyer Susan Watson Heneliaka Jones Jessica L. Gehle INITIAL QUALITATIVE STUDY (individual interviews) LONGITUDINAL STUDY (RDD community recruitment; quantitative surveys with youth & friends over 1 year) INTERVENTION DEVELOPMENT (longitudinal study, focus groups, qualitative interviews, clinical experience, and other interventions PILOT TESTING & PROCESS EVALUATION (quantitative surveys & focus groups) RANDOMIZED COMMUNITY TRIAL PROJECT ÒRÉ Intervention • Incorporated input from expert in ethnic/cultural studies and local youth. • Incorporated rite of passage rituals, community-specific risk data, and videos made with youth. • Delivered to small groups of 3-6 adolescents who are members of a friendship network. • Emphasizes issues of connectedness among friends and “friends protecting friends”. • Theoretically grounded in the AIDS Risk Reduction Model. • Modules include: – Introduction and Rites of Passage – HIV/STI Facts – Identifying and Assessing Personal Risk – Commitment to Change – Condom Knowledge and Skills – Communication and Negotiation – Workshop Closure ADRINKA SYMBOLS (Ghana) Chicago Team Miami Team Jessica L. Gehle Marco A. Hidalgo Omar B. Jamil Alejandro Rodríguez R. Sebastián Torres Bianca D. M. Wilson M. Isabel Fernández Luis Alzamora Cesar deFuentes Nilda Hernandez Jacob Warren Juggling Multiple Identities Gay Identity Adolescent Ego Identity Ethnic Identity Masculinity Community Recruitment & Screening: 14-22; GBQ; AA/L/W Quantitative Questionnaire (n=201) Qualitative Interviews (n=19) [3(age) x 3(ethnicity) x 2(gay identity)] Confirmation of Preliminary Themes: Adult Expert Interviews (n=4) Confirmation of Preliminary Themes: Youth Interviews (n=3) Qualitative Interviews (n=41) [3(age) x 3(ethnicity) x 2(gay identity)] Confirmation of Overall Themes: Focus Groups (n=2 groups) Intervention Model Development Intervention Model Confirmation: Focus Groups (n=2 groups) “Man Drawings” •Participants were asked to represent how their masculine, sexual, and ethnic identities were “coming together”. •They were asked to physically represent this by coloring in their identities in this outline of a figure (meant to represent themselves) •The participants selected which color would represent each of their identities. PROXIMAL FORCES DISTAL FORCES Messages about Masculinity SEXUAL IDENTITY ETHNIC COMMUNITY Perceived Behavioral Expectations of Masculine Identity PEERS MEDIA FAMILY Life Experiences COGNITIVE PROCESS Fit/No Fit (+/-) Reaction and Response to Expectations and Perceived Roles of Men AFFECT (+ / - ) COGNITIONS (+ / - ) BEHAVIOR (+ / - ) EXTERNAL SOCIETY LABEL INTERNAL FORCES EXTERNAL FORCES LOW AWARENESS (“Always Knew”) ACTIVITY / EVENT EXTERNAL SOCIETY LABEL HEIGHTENED AWARENESS PERSONAL VIEWS OF COMMUNITY INTERNAL LABEL SELF-LABELING / IDENTIFICATION FAMILY MASCULINITY SEXUAL IDENTITY PERSONAL ATTITUDES ABOUT ETHNIC IDENTITY COGNITIVE PROCESS PEERS Fit/No Fit (+/-) STEREOTYPES MARGINALIZATION DISCRIMINATION CULTURE EVALUATION OF COMMUNITY / ETHNIC GROUP COMMUNITY CONNECTION (family, peers, neighborhood) IDENTITY CONCEPT HISTORICAL OPPRESSION AWARENESS OF SAMESEX ATTRACTIONS DISTAL INFLUENCES PROXIMAL INFLUENCES Perceived Roles & Responsibilities Family Social / Cultural Pressures COGNITIVE EVALUATION Religion SI-RELATED EXPLORATIVE EXPERIENCES Peers Influential Others Perceived Roles & Responsibilities SI Community Connection EVALUATION Socio-Cultural Messages +/FIT / NO FIT -Ethnic/Cultural Values -Gender Roles -Heterosexism Family Peers Influential Others Religion AFFECT (+ / - ) COGNITIONS (+ / - ) BEHAVIOR (+ / - ) Thigio Team Elizabeth Gikulti Matthew Mburu Peter Mwangu Eileen O’Callahan Nairobi Team Augusta Muthigani Julius Ruto Magnus Bruening Chicago Team Leah C. Neubauer Audrey K. Bangi Lexa G. Murphy Bridget Crowell Omar B. Jamil Marco Hidalgo Jessica L. Gehle Jason Johnson Tume Chill First, Let’s Talk! Kwanza Tushauriane! Making Life’s Responsible Choices Asante Sana! Questions??? [email protected]