THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Quality of Life Measures: Mental Health Services and Consumer Satisfaction For further information, please contact: Dennis McBride:
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THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Quality of Life Measures: Mental Health Services and Consumer Satisfaction For further information, please contact: Dennis McBride: (253) 756-2335 | [email protected] Catherine M. Wilson: (253) 761-7573 | [email protected] Part 1 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys The Mental Health Statistical Improvement Program (MHSIP) For further information, please contact: Dennis McBride: (253) 756-2335 | [email protected] Catherine M. Wilson: (253) 761-7573 | [email protected] MHSIP Emerges 1976 – MHSIP Advisory Group (developed data standards for public mental health systems) 1987 – National Research Institute (NRI) to Support MHSIP 1989 – MHSIP Policy Group (Refined Data Standards for Mental Health Systems) 1996 – MHSIP Consumer-Oriented Report Card (Developed base survey we now use). National Association of State Mental Health Program Directors (NASMHPD) was created to further develop the Application of MHSIP. 1997 – Five State Feasibility Project (refined survey) 1998-2001 – 16 State Study on Mental Health Performance Measures (refined survey) 2001- 2014 – Current Survey Consumer Goal & Audiences Satisfaction Surveys 2013 The consumer surveys are designed to examine service quality issues related to Washington State’s delivery of state-funded mental health services. Using Survey Data for: Federal Reporting Performance Indicator Work Groups Provider Agencies and RSNs (e.g., EQROs) Consumer Groups THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Federal Uses • • • • Data Infrastructure Grants (DIGS) National Outcome Measures (NOMS) Government Performance and Results Act (GPRA) Uniform Reporting System (URS). The MHSIP Consumer Survey is now being implemented in 55 states/territories for the adult survey and 54 states/territories for youth surveys. Consumer Satisfaction Surveys 2013 Surveys to Meet CMS Requirements Survey Year Statewide Sample Based Outcomes Survey 1998 Children with Special Needs 1999 MHSIP Adult Consumer Survey (10 surveys) 2002-2013 MHSIP Child and Family Consumer Survey (9 surveys) 2002-2013 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction 2013 MHSIP Survey Samples Surveys 2013 • Persons receiving at least one hour of service within a 6 month time frame: May-Oct 2012 Adult Survey: 18+ years old Youth Survey: 13-20 years old Family Survey: <13 years old • Stratified Random Sample (Stratified by RSN, Age, Minority Status • Probability Proportionate to Size (Size adjusted for small RSNs) THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 WIMHRT’s CATI Lab System THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Sources of Data ProviderOne Data System Contact Information ACES Barcode data – Economic Services Administration (DSHS) Research and Data Analysis (DSHS) THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Adult Consumer Survey (ACS) Sample Frame Selecting Participants 49,746 5,646 Drawn Sample Respondent Sample 1,334 Child & Family Consumer Survey (CFCS) Sample Frame Drawn Sample 30,311 3,924 924 Respondent Sample F=604 Y=320 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 ACS & CFCS Disposition Adult Disposition N (%) Family/Youth Disposition N (%) Completions 1344 (23.6) 924 (23.5) Refusals 647 (11.5) 260 (6.6) Incorrect Numbers 2073 (36.7) 1015 (25.9) No MH Services 46 (0.8) 54 (1.4) Language Barrier 114 (2.0) 9 (0.2) Unavailable 310 (5.5) 86 (2.2) Deceased 33 (0.6) 1 (0.03) No Answer 932 (16.5) 1534 (39.1) Other 157 (2.8) 41 (1.04) TOTAL 5646 3924 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 100 90 80 70 60 50 40 30 20 10 0 Response & Cooperation Rates Over Time ACS % Cooperation Rate ACS % Response Rate CFCS % Cooperation Rate CFCS % Response Rate 2004 Data CFCS % Cooperation Rate N/A CFCS % Response Rate N/A THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 States’ MHSIP Completion Rates 2008 State Sample Method Survey Method Adult N Adult % Y/F N Y/F % Texas Stratified Random Mail Out 334 19% 389 18% Wisconsin* Random Mail Out 803 36% 524 39% Vermont Random Mail Out 737 36% 251 20% Washington Stratified State Random Telephone/M 1500 ail Out 24% 906 33% Illinois Random Mail Out 561 19% 586 17% Oregon Total Population Mail Out 3240 24% Combined Source: Sampling and the MHSIP Consumer Surveys: Techniques, Models, Issues. Mary E. Smith & Vijay Ganju (June, 2008). THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING *Removes non-contacts from the denominator. Consumer Satisfaction Surveys 2013 2013 Calls & Completions Total number of attempts/calls: 32,628 ACS: 22,023 CFCS: 10,605 Average number of attempts/calls per completion: 14.45 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Total Calls & Completions Total number of attempts/calls: 341,078 ACS: 231,995 CFCS: 109.083 Total number of completions: 24,005 ACS: 15,592 CFCS: 8,413 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Representativeness ACS CFCS 50 40 30 20 10 0 Respondent Sample Drawn Sample Sample Frame Age Hours Age Hours 80 60 40 20 0 Female % Minority % Female % Minority % THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Adult/Youth Perception of Outcomes Alpha = 0.90 Surveys 2013 As the result of services I received: 1. 2. 3. 4. 5. 6. I am better at handling daily life. I get along better with family members. I get along better with friends and other people. I am doing better in school and/or work. I am better able to cope when things go wrong. I am satisfied with my family life right now. Scale Scoring: 1-Strongly Disagree; 2-Disagree; 3-Undecided; 4-Agree; 5-Strongly Agree THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Scale Scale Construction ACS CFCS General Satisfaction .87 .92 Appropriateness/Quality of Services .87 .91 Participation in Treatment Goals .56 .70 Perceived Outcomes .91 .90 Perception of Access .82 .48 Satisfaction with Staff NA .84 Cultural Sensitivity of Staff NA .84 NOMS Functioning* .87 NA NOMS Social Connectedness* .79 .81 Stigma* .86 .85 (Youth only) *Added in 2007 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 ACS Scales 100% 5 4,5 4 Percent Satisfied 75% 3,5 3 50% 25% Strongly Agree Agree 2,5 Undecided 2 Disagree 1,5 Strongly Disagree 1 Average Score 0,5 0% 0 General Satisfaction Quality of Service Participation Perception of Perceived in Treatment Access Outcomes THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 CFCS Scales 100% 5 4,5 4 Percent Satisfied 75% 3,5 3 50% Agree 2,5 Undecided 2 Disagree 1,5 25% Strongly Agree 1 Strongly Disagree Average Score 0,5 0% General Participation Perceived Staff Quality of Staff Access to Satisfaction in Outcomes Satisfaction Service Cultural Services Treatment Competence 0 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Other Relationships • • • • • Demographics and Total Service Hours Living Situation by Age, Gender, & Ethnicity Employment Status by Age, Gender, & Ethnicity Employment Status by Age, Gender, & Ethnicity Medical/Insurance Information by Age, Gender, & Ethnicity • Satisfaction Scales by Age, Gender, & Ethnicity • Satisfaction Scales by RSN THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer What two things do you like the most Satisfaction about the services you received? Surveys 2013 ACS First Response General Positive 1% General Negative 1% Services Services 14% Support Therapy/Counseling No Response 21% Medications Access Staff Environment 1% Support 21% Professional Staff Environment Professional Staff 22% No Response General Positive General Negative Access 6% Staff 1% Medications 1% Therapy/Counseling 11% THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Open-Ended Responses: Adult – Like Most Support: ”The support that they give me. If I need someone to talk with, they are there. If not, they call right back. They are good listeners and very understanding .” ”You are not rejected on account of anything you might be experiencing/feeling. If there’s one counselor that you’re just not clicking with, they will rotate you to another. They’ll bear with you and just keep going until you can identify your feelings and handle them.” THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer What two things do you like the least Satisfaction about the services you received? Surveys 2013 CFCS First Response General Positive 2% 0% General Negative 1% Services Services 16% Support Therapy/Counseling Medications No Response 25% Access Staff Support 21% Professional Staff No Response Professional Staff 17% General Positive General Negative Access 7% Staff 2% Therapy/Counseling 8% Medications 1% THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Open-Ended Responses: Family – Like Least Access: ”The location and difficulty in getting after school appointments .” ”Long waiting list and it takes months to see a psychiatrist.” ”I liked least that they are short of time. They had so few choices of time. My child would miss school for appointments.’ THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 STIGMA THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction ACS Perceived Stigma by Gender/Age Surveys 2013 100% 4 90% 3,5 Percent Stigmatized 80% 3 70% 60% 2,5 50% 2 40% 1,5 30% 1 20% 0,5 10% 0% Most Stigmatized (3.5-4) More Stigmatized (2.5-3.49) Less Stigmatized (1.5-2.49) Least Stigmatized (1-1.49) Average Score Female Male 18 to <21 21 to <41 41 to <61 61 to <76 0 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction ACS Perceived Stigma by Gender/Ethnicity Surveys 2013 Consumer Satisfaction ACS Perceived Service Outcomes by Stigma Surveys 2013 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING ACS Consumer Satisfaction Surveys 2012 -13 Correlations: Service Perception by Stigma Service Perception Scores Stigma Scale Satisfaction with Services -.124 Appropriateness and quality of Services -.175 Participation in Treatment Goals -.166 Perceived Outcome of Service -.241 Perception of Access to Service -.189 NOMS Functioning Scale -.232 NOMS Social Connectedness Scale -.312 THE WASHINGTON INSTITUTE N = 2578 p < .001 FOR MENTAL HEALTH RESEARCH & TRAINING Part 2 Trends THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction ACS Surveys 2013 Perceived Stigma by Year 100% 4 Percent Stigmatized 3,5 75% 3 2,5 50% 2 1,5 25% Most Stigmatized (3.5-4) More Stigmatized (2.5-3.49) Less Stigmatized (1.5-2.49) Least Stigmatized (1-1.49) Average Score 1 0,5 0% 2007 2008 2009 2010 2011 2012 2013 0 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Trends in Mean ACS Satisfaction Scores Over Time 4,2 4,1 4 3,9 3,8 General Satisfation Quality of Service 3,7 Participation in Treatment Perception of Access 3,6 Perceived Outcome 3,5 3,4 3,3 3,2 2002 2004 2006 2007 2008 2009 2010 2011 2012 2013 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Trends in Mean CFCS Satisfaction Scores Over Time 4,4 4,2 General Satisfation 4 Satisfation with Staff Perception of Access Participation in Treatment Cultural Sensitivity of Staff 3,8 Appropriateness of Services Perceived Outcome 3,6 3,4 2002 2005 2007 2008 2009 2010 2011 2012 2013 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Functioning/Connectedness Scores Over Time 4,3 4,2 4,1 4 ACS Social Connectedness ACS Functioning 3,9 CFCS Social Connectedness CFCS Functioning 3,8 3,7 3,6 3,5 2007 2008 2009 2010 2011 2012 2013 THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 States’ Adult MHSIP Scores 2010 ACS Measures Texas Wisconsin Vermont Washington Illinois State Oregon Access to Services 78.40% 74.40% 82.20% 68.20% 84.60% 74.00% Quality/Appropri 83.70% ateness of Services 79.60% 84.60% 80.70% 83.20% 82.90% Outcome of Services 57.20% 57.20% 69.30% 61.50% 67.30% 57.20% Participation in Treatment 71.00% 67.30% 76.90% 71.90% 85.90% 66.80% Overall Satisfaction 89.00% 76.70% 84.40% 77.10% 85.70% 80.40% Source: 2010 CMHS Uniform Reporting System Output Tables Note: Scores represent the average of those positively agreeing or strongly agreeing with each scale. THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Summary of Findings: ACS • Satisfaction scores on most scales remain high, with at least 70% of consumers on most scales saying they are satisfied or very satisfied with services. • Since 2002, satisfaction score trends have shown slight but steady improvement over time. • Across years, Perceived Outcomes has remained the lowest, with more than one third of consumers being undecided or dissatisfied in this area. • Consumers continue to be most satisfied with Appropriateness and Quality of Services. • Perceived Stigma affects nearly half of consumers and has remained relatively constant since 2007. THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 Summary of Findings: CFCS • Satisfaction scores on most scales remain high, with at least three quarters of consumers on most scales saying they are satisfied or very satisfied with services. • Since 2002, all areas of youth and family service satisfaction have continued to improve. • Cultural Sensitivity of Staff and Satisfaction with Staff continue to be the highest rated areas. • Perceived Outcomes is consistently the lowest rated area. THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING Consumer Satisfaction Surveys 2013 HTTPS://DEPTS.WASHINGTON.EDU/PBHJP/DEV/PROJECTSPROGRAMS/PAGE/MENTAL-HEALTH-STATISTICS-IMPROVEMENTPROGRAM-CONSUMER-SATISFACTION-SURVEYS THE WASHINGTON INSTITUTE FOR MENTAL HEALTH RESEARCH & TRAINING