Transcript Regina Lally: NPCA data submission and reporting: update from the
Slide 1
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 2
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 3
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 4
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 5
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 6
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 7
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 8
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 9
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 10
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 11
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 12
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 13
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 14
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 15
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 2
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 3
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 4
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 5
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 6
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 7
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 8
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 9
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 10
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 11
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 12
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 13
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 14
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes
Slide 15
NPCA data submission and
reporting
Update from the National Cancer Registration Service (NCRS)
The National Cancer Registration Service
8 NCRS Regional
Offices
Northern and Yorkshire
North West
East Midlands
160+ Trusts
submitting to NCRS
West Midlands
Eastern
Oxford
London
South West
*
2
The Improving
National Cancer
Registration
Service
for England
the Quality
and Timeliness
of Cancer
Clinical Data Reported to the National Cancer Registration Service (NCRS)
Dimensions of the NCRS
1700
MDTs per
week
160+ NHS
Providers
200k
records
per month
188+ Data
Items per
cancer
type
Monthly Data
Submission
Hospital
Episodes
Statistics
Cancer
Waiting
Times
Office of
National
Statistics
Periodic Data Feeds
350k tumours
spanning 42
cancer types
registered per
year
Cancer Registration
160 expert Cancer Registration Officers
QA and integration of all these data at individual patient level across the whole pathway
3
NPCA Data Collection
NCRS Data Flows
NatCanSat
Radiotherapy
COSD / MDT
Death Cert
ONS
PAS
NHS Acute Trust
Radiology
4
Audit
Regional Office
Pathology
Encore
CWT
Open Exeter
Chemo
Oxford
NPCA Data Collection
NPCA Data Submission
• Monthly data submission
• NPCA data expected to be submitted alongside COSD
• Separate files, but same timescales
• Data entered once – extracted by system into
appropriate report
• NCRS Data Liaison Staff using existing relationships with
Trusts to encourage and support the submission of
NPCA data
• Initial validation and processed into ENCORE
5
NPCA Data Collection
NPCA Submissions: November
98
Trusts
6
42
Trusts
National Disease Registration: Overview of Key Programmes
140
Trusts
NPCA Data Quality
• Submitted data
• Initial check – patient numbers in COSD v NPCA
• Data completeness of each field
• Trust by trust report
• Data liaison teams to work with trusts to improve
completeness of data
7
NPCA Data Collection
Data Quality Report
8
National Disease Registration: Overview of Key Programmes
9
National Disease Registration: Overview of Key Programmes
10
National Disease Registration: Overview of Key Programmes
11
National Disease Registration: Overview of Key Programmes
12
National Disease Registration: Overview of Key Programmes
NPCA Reporting Timeline
Data Quality Feedback to Trusts
13
NPCA Data Collection
NPCA Trust Engagement
• Building on existing relationships through NCRS
• Data quality reports and feedback provided via trust level
reports from ENCORE via NCRS offices
• NPCA Prospective Audit data will inform 2nd Annual
Report.
• Establishing timelines and final submission point annual
report data; will be shared with Trusts
14
NPCA Data Collection
Questions?
15
National Disease Registration: Overview of Key Programmes