Transcript Progress of the Cancer registration in Greece

Renee Otter
WP5 leader
in Europe.
Lisbon, 12-13 July 2006. Coleman M.
Health Strategies in Europe. Lisbon, Health
12-13 JulyStrategies
2006. Coleman
M.
EUROCHIP 3 WP5
 In 2008 no cancer registry in Greece
 Aim of EUROCHIP:
 Support Greece polically and scientifically in starting
the CR mainly by exchanging expertise through
meetings, phone and mails
Steps undertaken (1)
 2006 :1st collaboration between EUROCHIP-2 and
KEELPNO
 13th of june 2008: Central Health Committee
recognized the relevance of a Cancer registry
 March 2009: meeting EUROCHIP-3 WP5 &
KEELPNO to contribute to the ongoing development
of het national CR
Meeting 2009: points discussed
 The need for a Document describing all the issues
concerning the CR
 Sources and items to be collected
 Training of CR personnel
 Pilot registry
Update
 Document:
 No official document available on the PB CR
 But a national cancer plan has been developed with 5
main issues and 1 of these is the CR (KEELPNO
newsletter March 2011)
 Training personnel
 September 2009: one week training at the IKNL
focussing on the different topics
 Attendance to the EUROCOURSE meeting
 Pilot registry has never been undertaken
However
 HCR develop a mission and a purpose:
 To develop, operate and constantly improve the
national population-based mechanism for registering
all new and metastatic cancer cases throughout
Greece, reported by primary and secondary sources
of the public and private networks.
 To develop, operate and constantly improve the
mechanisms for evaluation, assessment and proper
dissemination of collected data and related results

 With the aim of complete cancer case registration and reliable
population-based results, data will be collected by all public
and private hospitals in Greece (140 in total), as instructed by
the recent ministerial decisions (numbers 136216/9-12-2011
and 1010/12-2011).
 Data collection will be carried out by health officials, in
particular health visitors, already employed as permanent
hospital (and private clinics) staff that have already been
nominated as ‘cancer registrars’.
 Cancer registrars will work closely with the members of
the oncology committees of the public hospitals and
private clinics.
 Cancer registrars will be connected directly to and liaise
with the HCR in KEELPNO for continuous training,
education and support.
 For the first 2 years, the registrars will be trained on a
regular basis and educational seminars will run for each
health region, roughly every 6 months.
 Cancer registration will be made online with strict ground-
rules to secure the privacy and safety of personal and
health-sensitive data;
 The necessary tools for registration:
 the ‘registration form of malignant or marginally
malignant neoplasm’ available (on EUROCHIP
website)
 The corresponding software for online data registration
have been developed in co-operation with the KEELPNO
experts committee for HCR.
 The aforementioned tools will be tested during the first
phase of the system’s application and improvements
 The program officially commenced on February 1st, 2012 where a
congress took place in Athens and 80% of the registrars attended.
 A workshop was organized to present the notification form and
the web-based software. A manual with details for the registration
and a manual for the use of the software were handed out to the
registrars.
 ICD-O-3 has been translated in Greek and is about to be
published.
 Funding for the first 2 years has been obtained by the National
Strategic Reference Network (NSRF) 2007–2013 program.
Proposals to HCR
 Quality checks next year by IACR
 Keep in contact with ENCR and IACR concerning the
consultancy requirements
 Helpdesk on coding problems available at the IKNL