Transcript Functions for Personal Health Records in Sweden

Functions for Personal Health
Records in Sweden – Patient
Perspectives
Sumithra VELUPILLAI, Omran IBRAHIM, Maria KVIST
SHI, Copenhagen, August 20 2013
Clinical Text Mining Group, Dept. of Computer and Systems Sciences
(DSV)
Introduction & Background
•  Ongoing shift in health policy
•  Focus on patient empowerment
•  Patients’ access to their medical records
•  Different models for personal health records
(PHR) are suggested.
•  “Which PHR functions are preferred by patients
living in Sweden?”
Sumithra Velupillai
2
Reading your own medical record
Hypertoni o DM, brtsm och St lyft anteriort,
PCI mot ockluderad proximal LAD med 2
stent. Cirk stabil.
Material & Methods
•  Structured interviews (5 patients) à themes à
•  Online survey
•  5 demographic questions, 18 statements
•  Free-text comments
•  5-point Likert scale
•  2 months during summer 2012
•  201 respondents
Sumithra Velupillai
4
Results
•  5 Themes:
•  Content overview
•  Help to understand content
•  Help to understand screening results
•  Communication/interaction with health
care
•  Additional functions
Sumithra Velupillai
5
Results (survey)
•  Typical respondent:
•  Middle-aged female with health problems
and good computer skills
•  All categories deemed important, almost all
answers at the level of ”agree” or ”strongly
agree”
Sumithra Velupillai
6
Results
EHR
De parenkymatösa organen i buken
är utan fokala förändringar, liksom
mesenterium och tarmar.
PHR
Inga organ i magen har ovanliga
förändringar.
Overview image from http://www.eptin.net/medical.html
Results: Communication
EHR
PHR
Free-text comments
•  (Almost) All automated support welcomed, but a
general worry that this would decrease face-toface contact
•  Clearer, understandable language requested
•  Security issues big concern
Sumithra Velupillai
9
Thank you for your attention
Experiences from other countries?
Ideas and comments welcome! [email protected]