Inclusion of people with disability due to leprosy in C B R & Vice Versa AIFO CBR EXPERIENCES AND SCOPE

Main focus of AIFO

• • • Inclusive -sustainable development of marginalised

-leprosy -disability - vulnerable children

To create a long-term positive impact on the lives these persons To enable them to become productive members of the society.

A paradigm shift from -

charity to - compassion to rights mode opportunity

paradigm shift

SHG - exclusion into inclusion

- rehabilitation to

development .

CBR is a process of change

Changing the

attitudes

of :

service providers

- persons with disability -their family members -the community.

Who has to change ?

• • •

CBR CBR suppose to include all the persons with disability But in practice, excludes certain categories of disabled persons owing to various reasons. Persons affected by leprosy are one such group who are not included in most of the CBR projects .

Inclusion of people with disability due to leprosy in C B R programme

• The complexity of CBR –it is multi-disciplinary • To provide assistance , improve the

quality of life

•

Ideal for leprosy rehabilitation too.

• • • • •

CBR and AIFO

All the SET projects supported by AIFO included rehabilitation activities. Results -did not bring desired change in the lives of the people affected by leprosy. In 1992 AIFO initiated CBR concept to all our partners . Today all the projects view rehabilitation from rights based approach. Leprosy and CBR orientation for all personal in the projects is a priority.

• • • • •

Result

NGOs/projects are working for all kinds of disability.

DPOs and SHGs included persons with disability due to leprosy as equal members.

CBR workers collaborating with health departments . Leprosy colonies are facilitated for integrated development.

• • •

SHG & DPO

It is a movement for the life with equal respect,

dignity

with equal rights for an independent living.

SHG • • Entry point , Have power & information

MANDYA LEPROSY- CBR

• • • • • • In Mandya district , Modified-MDT began in 1992. 1997 initiated a pilot leprosy and CBR integrated project and extended to whole district.

MOB RHC , SET NGO adapted CBR ( GHS ) SRMAB, CBR NGO included leprosy affected.

population of nearly 1.8 million.

21152 persons (472 are grade II ) with disability directly benefit.

Combined efforts of



people with disabilities



their families, organizations in the community



SHGs, DPOs other organisations



government and non-government agencies

Net work

• • Network of all self-help organizations of disabled persons established.

Partnership with concerned Govt. & NGO –

exchange of information

–

Optimum use of facilities

–

effective advocacy

Indiranagar colony

• • • • The colony is situated on the outskirts of Ranchi town in Jharkhand. 150 families with 435 people, Focussed on education of their children along with developmental activities.

To bring about a positive change in the colony.

• • • • 1994 AIFO supported the activities in the colony.

Children went with the elders for begging. The schools to admit the children from the colony. Result - children are accepted by other schools for higher education and they are faring better.

100% Child Literacy in a colony

Combined effort

• - Community Members –

Community leaders,

–

Religious leaders

–

Volunteers

–

Local NGOs

–

Government departments

• • • • •

Medical care (ulcer dressing), housing, common well and roads provided by NGOs.

Drinking water and electricity by concerned govt. departments.

Formation of SHGs, women’s groups Vocational training for the youth for gainful employment has enhanced economical condition. At present only few elderly persons with disability go

for begging.

• • Over the period many changes no more identified as a colony. In many respects it is better developed, comparing to nearby villages.

Can we, the leprosy organisations rehabilitate all the persons de-habilitated due to leprosy??

•

Challenges

To ensure all the agencies providing rehabilitation services to include persons affected by leprosy. • To make them realise that it is their responsibility to include leprosy affected persons

Challenges

• • To include other persons with disability in to leprosy programmes.

To build trust & mutual confidence among members • To realize the benefits of co-operative enterprises.

To work together in groups for a common enterprise.

Challenges

• To ensure the marginalized do not become the marginalized. • To ensure the proper use of the government schemes. • To avoid unhealthy competitions among service providers (especially NGOs).

TRUST

CHHALLENGES TRASPARENCY ACCOUTABILITY

“We will not be able to do everything, but we can do something”

Jose Manikkathan Varghese.

AIFO, Representative India / Bangladesh Amici di Raoul Follereau No. 58, 4 th Cross, Kavery Layout Bangalore, India – 560029 [email protected] www.aifo.org