Transcript Service User Involvement in Prison Health Research

Removing Barriers. Achieving Change.
Service User Involvement in
Prison Health Research
Chiara Samele, Head of Research
Graham Durcan, CJS Programme
Lead
Removing Barriers. Achieving Change.
Background
• Commissioned by the PHRN
• Jointly funded by SCMH
• Identify models of service user involvement
in prison health research
– Literature Review
– Consultation with experts
Removing Barriers. Achieving Change.
Review aims
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Identify the methods or models by which service users
and carers can become meaningfully involved in
prison health research by examining
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current methods for involvement in prison health service
development;
methods for service user involvement in mental health
research
Identify the particular challenges and barriers of
service user involvement in prison health research;
and
Assess how the practical difficulties of service user
and carer involvement in this area can be overcome.
Removing Barriers. Achieving Change.
User involvement in research
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Meeting their needs
More appropriate research questions
More appropriate methodologies
Capture experiences
Better and more relevant outcomes
Removing Barriers. Achieving Change.
In other words…
• The less distance there is between direct
experience and its interpretation the more
accurate, reliable and less distorted it is
likely to be.
(Beresford 2005)
Removing Barriers. Achieving Change.
The literature
• Using a systematic methodology
• Ongoing
• Results
– Very limited number of published studies
– Some literature in related mental health field
(forensic mental health)
Removing Barriers. Achieving Change.
The literature
• Michael Coffey- Researching service user views in forensic
mental health: A literature review (2006)
• Faulkner A & Morris B - User Involvement in Forensic
Mental Health (2003)
• Banongo E et al - Engaging Service Users in Evaluation
and Development of Forensic Mental Health (2005)
• Rob Jayne - Service user engagement in prison mental
health in-reach service develop (2006)
• Nurse et al – Focus groups with prisoners (2003)
Removing Barriers. Achieving Change.
The expert consultation
• Just starting these…
• …Volunteers please?
• Prisoner interviews (n=98) in five West
Midlands prisons
– Part of another review
– Publication – next year
– Useful insights
Local findings
Removing Barriers. Achieving Change.
• secondary care
– Whilst some changes required - a major overhaul is not
– Need for development of broader consultative role
– Service gaps in both services (e.g. family work, groups,
working with PTSD)
– Inreach– weak on social care and psychological
elements of care
– Service user feedback is hugely complimentary and
positive about these services.
– Primary care is the major gap/weakness in provision
– Anything but client centred
– Considerable unmet need and some need missed
– Few RMNs and operating in generic role.
Removing Barriers. Achieving Change.
Barriers
• NHS ethics and research governance
– more scrutiny over past year
– lack of confidence in prisons research
• Vetting – CRB & CRO
– security training
• 10 – 12 months…perhaps unique…but
• The easy bit = data collection (5 weeks)
– organising interviews around prison routines – difficult
– prisoners very open and willing to be interviewed
Removing Barriers. Achieving Change.
The prisoner experience
– How involved are prisoners in their health care?
– A mistrust of prisoners – the ‘default’
• Most prisoners just wanted someone to talk to someone
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Family/carer work – a huge need for
Disclosing and dealing with trauma
Help at night
Meaningful activity
prisoners report being ‘ejected’ from prison
prisoners report considerable anxiety over leaving
prison… many predict their return
– Positive impact of inreach
Removing Barriers. Achieving Change.
next
• …no really …….volunteers please
[email protected]
07957 595 593