Transcript Slide 1
The EPEC-O TM Education in Palliative and End-of-life Care - Oncology Project The EPEC-O Curriculum is produced by the EPECTM Project with major funding provided by NCI, with supplemental funding provided by the Lance Armstrong Foundation. E P E C EPEC - Oncology Education in Palliative and End-of-life Care - Oncology O Module 1 Comprehensive Assessment Main message A comprehensive assessment that includes the issues that cause patients suffering guides cancer care Objectives Describe conceptions of suffering Use a framework to guide assessment Use a validated screening tool, NEST, to facilitate an initial screening assessment Carry out a detailed assessment of active issues Video Why skill at assessment is important Patients expect relief of suffering Key diagnostic tool Coordinates team of health professionals Can have therapeutic effects Develops the physician-patient relationship The physician’s role Listen Acknowledge Analyze Offer information, practical suggestions Introduce sources of support Conceptions of suffering Fragmentation of personhood – Cassell Broken stories – Brody Challenge to meaning – Byock Total pain – Saunders The Nature of Suffering The relief of suffering and the cure of disease must be seen as twin obligations. Failure to understand the nature of suffering can result in medical intervention that (though technically adequate) not only fails to relieve suffering but becomes a source of suffering itself. Eric Cassell, MD Suffering Experienced by persons, not bodies Meaning, Context, Coping Persons exist in relation to families Biological, Acquisition, Chosen The Broad perspective A narrow focus will miss the target depression affects experience of pain medication useless if can’t get it spiritual strength may enhance tolerance feeling abandoned may be expressed as physical suffering Dimensions of illness, bereavement and cancer care Fixed characteristics of the patient Modifiable dimensions of the patient’s experience Healthcare interventions including their associated outcomes Fixed Patient Characteristics Race, Ethnicity Culture Religion Socioeconomic Class Culture A group’s learned, repetitive, characteristic way of behaving, feeling, thinking and being A strong determinant in attitudes toward health, illness, dying Respect Err on the side of formality Ask, don’t assume Language Use interpreters when language barriers exist Not family members Modifiable dimensions Spiritual, existential beliefs Symptoms Function Fixed Characteristics Patient Caregiving needs Loss, grief End of life, dying Social, issues Psychological, cognitive symptoms Health system interventions Decisionmaking Care planning Information sharing Care delivery Patient Process of providing care Patient Utilization, errors Quality of life Pain / symptom relief Satisfaction Outcomes Efficient assessment Initial screening Detailed assessment Physical examination, tests Initial screening Validated questionnaires NEST RAI-PC NEST: 9 areas to screen Needs Social context Physical Practical Mental Personal Existential Personal spirituality Spiritual distress Financial Therapeutic Culture Decision-making Detailed assessment Detailed frameworks in Appendix 1-2 Assessments throughout EPEC-O Additional not-validated questions in Appendix 3 E P E C O Summary A comprehensive assessment that includes the issues that cause patients suffering guides cancer care