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PEPFAR OVC Survey Toolkit Janet Shriberg, EdD Senior Evaluation Advisor Office of HIV/AIDS USAID **please note that slides were created with work done by MEASURE Evaluation PEPFAR Mission & Goal (OVC) Mission: To mitigate the social, emotional and economic impacts of HIV/AIDS on children and to reduce their risk and vulnerability while increasing their resilience A goal: To care for 5 million orphans and vulnerable children 10% funding earmark for OVC The problem High investment in OVC programs BUT impact is unclear & questions regarding “what works” in improving household well-being Part of the challenge: lack of standardized measures and tools for child and household outcomes (well-being) 3 A proposed solution Standardized questionnaires for use in a survey of children ages 0-17 years and their adult caregivers Who are these tools for? Local and international research institutions and other implementing organizations with evaluation agenda USAID Forward – supporting local researchers The purpose Standardize population-level child and caregiver wellbeing data beyond what is available from routine surveys Produce actionable data to inform programs and enable mid-course corrections Enable comparative assessments of child and caregiver well-being and household economic status across a diverse set of interventions and regions Focus on PEPFAR OVC programs Indicators need to reflect & be amenable to change by PEPFAR program intervention HH interventions led by home visitors Community interventions Low direct funding per target, focus on linkages Often inadequate services in vicinity How did we start… Two step, participatory process: Build consensus around core impact indicators for PEPFAR-funded OVC programs Develop OVC program evaluation (survey) tools Distilling the core indicators Our starting point: 6+1 domains of PEPFAR OVC programming Step 1: Extensive literature search Step 2: Gaps (HES, PSS) filled through targeted research Result: >600 child/HH wellbeing questions/indicators Step 3: Analysis against 8 criteria Result: shorter list of questions for discussion 9 Finalizing the core indicators External working group: solicited review from 49 stakeholders Finalized core set of 12 child and 3 household measures 10 Developing the tools Tools drafted with strong stakeholder input Draft tools piloted in Zambia and Nigeria Cognitive interviews to test key concepts (e.g. social support) Household pre-test of full tools, procedures Structure and content 1. Caregiver questionnaire (including questions on household) 2. Child questionnaire (ages 0-9 years), administered to caregiver 3. Child questionnaire (ages 10-17), administered to child with parental consent & child assent Caregiver questionnaire Sections Section 1: Household schedule Core questions Optional modules Section 2: Background Information on Caregiver and Household Household schedule* (10) Changes in household composition (4) Demographic information* (7) Work* (3) Access to money (3) Shelter (1) Section 3: Food Security Household food security (6) Section 4: Caregiver Wellbeing and Attitudes General health (2) Caregiver support (4) Parental self-efficacy (1) Section 5: HIV/AIDS Testing, Knowledge, Attitudes Basic HIV/AIDS knowledge* (7) HIV testing* (3) Attitudes to condom educ (1) Section 6: Access to HIV Prevention, Care & Support Household access to services (1) *DHS, bold=core indicator Household Economic Status (forthcoming) Progress out of Poverty Index or similar (country specific) Dietary Diversity (1) Perceptions and experience of child discipline, violent discipline (forthcoming) Gender roles and decisionmaking power* (9) HIV/AIDS attitudes* (4) Child questionnaire (ages 0-9) Sections Core questions Optional modules Section 1: Child Health and Welfare Section 2: Education and Work Section 3: Food Consumption Section 4: Access to HIV Prevention, Care & Support Section 5: Anthropometric Measures (of Children) *DHS, bold=core indicator Confirm demographics (5) General health & disability (4) Birth certificate (2) Vaccinations (11) Fever (<5 years)* (1) Diarrhea (<5 years)* (1) Experience of neglect (2) Slept under mosquito net* (1) HIV testing experience* (2) School attendance*, progression/repeats, drop-outs, missed school days (5+ years) (9) Work for wages (2) Early childhood stimulation (2) Food consumption (2+ years) (8) Child access to services (1) Weight*, Height*, MUAC • Fever: extended* (4) Diarrhea: extended* (3) Health for children living with HIV/AIDS (forthcoming) Dietary diversity (1) Child questionnaire (ages 10-17) Sections Core questions Section 1: Background Information on Child Section 2: Diary Section 3: Education Section 4: Chores & Work Confirm demographics* (5) Identity of caregiver (1) Daily log (6) School attendance*, progression/repeats, dropouts (9) Chores (3) Work (7) Food consumption (8) Alcohol consumption (3) Birth certificate (2) General health & disability (3) General support (4) Basic HIV/AIDS knowledge* (7) HIV testing * (3) Section 8: Sexual Experience Section 9: Access to HIV Prevention, Care & Support Section 10: Anthropometric Measures: Weight and Height • Section 5: Food & Alcohol Consumption Section 6: Health, Support & Protection Section 7: HIV Testing, Knowledge, and Attitudes Child access to services (1) Weight, Height, MUAC Optional modules Dietary diversity (1) Health for children living with HIV/AIDS (forthcoming) Perceptions/experience of violence (forthcoming) Child development knowledge (6) HIV/AIDS attitudes and beliefs (4) Sexual behavior (13-17 yrs) (5) Using the Tools There is no single data collection tool that can meet all OVC program M&E requirements. Situation analysis Targeting Case management Yes x X X Program monitoring Evaluation No X x What’s in the toolkit? Tools & Manual Template protocol with consent/assent forms Methodological guidance Data analysis guide Data collector training manual and materials French translations Global Monitoring, Evaluation and Reporting (“ the MER”) PEPFAR shift towards outcomes and impact All technical areas participating (CARE, PREVENTION, TREATMENT) Specific Changes for OVC Programs 2 indicators at Level 1 (required, reported to HQ) Outcomes Package at Level 2 (required, reported at country level; indicators elevated from survey toolkit) 2 Education indicators: attendance and progression Systems Strengthening and Social Protection at Level 3 (recommended) Where can I find out more? Go to MEASURE Evaluation website: http://www.cpc.unc.edu/measure/ our-work/ovc Email: Janet Shriberg [email protected] Special Thanks to… Dr. Jenifer Chapman, MEASURE Evaluation* (*Technical Lead for Toolkit, slideset creator) Dr. Lisa Parker, MEASURE Evalution OVC TWG Working Group, HQ and Missions Stakeholders globally working on OVC programming IATT Education for Guidance on education questions