Transcript Slide 1

Working with people living with
dementia and other long term
conditions
Karin Tancock
Professional Affairs Officer
for Older People & Long Term Conditions
Background
 3 or more long term conditions
(1.9 million in 2008 rising to 2.9 million by 2018)
 People with several long term conditions have poorer:
• Quality of life
• Longer hospital stays
• Poorer health care treatment and clinical outcomes (Kings Fund
2010)
 Limited evidence on what high quality care looks like
for this population group.
Multiple Long Term Conditions
 Recommendations for best practice
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Continuity
Access to self management approaches
Support for carers
Integrated treatments and care planning
 Maybe more challenging for people with dementia:
• Changing routine and making life style changes
• Learning new strategies
• Use of active assistive technology
Challenges
• The range of specialist services
• Communicating with many agencies.
• Different funding arrangements
• What is a health care need or a social care need?
• Balancing the person’s needs with carers needs.
Overcoming Barriers
• Provide stimulus (funding or other means) to support local
initiatives to improve care.
• Avoid a top-down policy that requires structural or
organisational mergers
• Remove barriers, such as differences in financing and
eligibility, in the system.
• Multi disciplinary teams with clearly defined roles.
Kings Fund, 2014
Occupational Therapy:
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provides practical support to enable people to overcome any
barriers that prevent them from doing the occupations that
matter to them.
aims to increase people's independence and sense of well
being.
What is occupation?
• Activities that allow us to live independently
and give us a sense of identity.
Advantages of focusing on occupation:
• Captures stories – the person, the carers . This identifies
what motivates someone, their strengths as well as difficulties
and what has meaning for that person e.g. Personal, family
and community life roles.
• Assesses function. This measures how symptoms or
conditions impact on people day to day. Supports decisions
regarding goal setting, pain and symptom management,
assistive technology.
Advantages of focusing on occupation:
• Naturally fosters partnership working
• Doing things helps us to feel better!
• Occupation offers all the key elements that give life meaningchoice, control, routine, roles, stimulation
What we are doing as a profession
• Unique perspective – work across health and social care.
• Maintaining skills from dual training.
• Collecting a broad range of evidence. Developing outcome
measures to reflect this.
• Broadening roles: Teaching and training, assessment and
advisory roles.
Example: Reablement
Reablement either prevents the need for hospital admission or
post-hospital transfer to long term care, or appropriately reduces
the level of ongoing home care support required and associated
costs
• Assessment
• Adapting the environment and assistive technology
• Goal setting- taking gradual steps to reach a person’s overall
objective.
• Training and supporting reablement workers
• Involving family and friends
• Reviewing progress.
Example: Care Homes
Focus on occupation:
Train staff to work with residents to help them to maintain
independence in self-care and mobility, enhance their daily routine
and enjoy an active life.
Advice on use of space and equipment, such as seating.
Strategies to prevent falls and manage risk
Address behaviours, such as restlessness and lack of inhibition
Assess systems and process –
do they support occupation?
Good examples:
• Integrated health and social care teams in South
Devon
& Torbay - patients having faster access to services with
one phone call for occupational therapists and other
disciplines.
• Greenwich: Occupational therapists as part of Joint
Emergency Teams respond to emergencies arising within the
community within 24 hours. Offers treatment at home or
through short term residential care. Over 2,000 patient
admissions were avoided
• DH, 2013
References
• College of Occupational Therapists (2013) Living well through
activity in care homes toolkit. London: COT
http://www.cot.co.uk/living-well-care-homes
• Department of Health (2013) Integration pioneers leading the
way for health and care reform
• Kings Fund (2010). Managing People with long term
conditions.
• Kings Fund (2014). Providing integrated care for older people
with complex needs. Lessons from seven international case
studies.