Transcript Slide 1
Why raise awareness – to save lives? Why raise awareness – to reduce disability? www.headsmart.org.uk www.headsmart.org.uk www.headsmart.org.uk Acknowledgement • • • • • • • • Ms Jo Fen Liu Miss Maya Sussman Dr Sophie Wilne Professor Richard Grundy Professor Colin Kennedy Professor Jacqueline Collier Dr William Whitehouse Dr Gabby Chow • • • Professor Michel Coleman Dr Thomas Chu London School of Hygiene and Tropical Medicine • • • • • • • • • • • • • All Party Parliamentary Party Group HEADSMART Clinical Champions HEADSMART Project Team Jan Dudley - Chair Julia Trussler Paul Carbury Sarah Lindsell Lucie Clough Dr Peter Lachman Ian Phillips Dr Monica Lakhanpaul Neil and Angela Dickson HEADSMART Community Champions and Volunteers Sustainability www.headsmart.org.uk 3 into 1 Public Awareness ++ ++++++ Enhance the experience of consultation Professional Awareness ++ Reassure Review Refer Sustainability Professional Awareness - Confidence How confident are you in your ability to recognise when a child might have a brain tumour? Low? Intermediate? High? How confident are you in your ability to recognise when a child might have a brain tumour? Which of the following symptoms and signs do you think may occur in a child with a brain tumour? Symptom : abnormal head position Baseline survey (spring 2011) Follow up survey (Nov 2011) 99% 84% 53% 88% 76% 48% GP Paediatricians All respondents HeadSmart Clinical Champions Symptom Interval by Month of Diagnosis (weeks) (Jan2011-Jan 2012, data extracted 30/01/2012) P25 – Median – P75 Sample size <10 Median Symptom Interval All patients Pre-launch Post-launch 8.0 weeks (min 0, MAX 398.1) 9.2 weeks (min 0, MAX 398.1) 7.4 weeks (min 0, MAX 363.6) 1.8 months (min 0, MAX 91.6) 2.1 months (min0, MAX 91.6) 1.7 months (min0, MAX 83.6) 30/01/2012 Median Symptom Interval (months) Multi-centre Studies in the UK P25 – Median- P75 • Significant difference across 3 cohorts (Kruskal-Wallis test, p<0.01) • No significant difference between pre- vs post-launch (Mann-Whitney U test, p=0.136) Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England? <1 month 1-2 month 2-3 month 3-4 month 5-6 month >6 month Professional Awareness – Symptom Interval What do you think is the average time from symptom interval currently experienced by children diagnosed with a brain tumour in England? 44.5% 28.1% 9.7% 7.7% 9.4% 0.7% <1 month 1-2 months 2-3 months 3-4 months 5-6 months >6 months Delayed Diagnosis of Cancer: Thematic Review NPSA March 2010 / NRLS Groups 1 and 2 National Reporting and Learning System (NRLS)