Transcript Brain Book Bionic - Traumatic brain injury

What is the Washington
Traumatic Brain Injury
Resource Center?
Jessica Giordano
Operations Manager
Washington TBI Resource Center
May 4, 2012
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This Presentation
* BIAWA
* Education
* Assistance
*TBI Resource Line
*Adult Resource Management
*Pediatric Resource Management
*Clinical Case Management
*Support Groups
*Support Activities
* Advocacy
* Tying it All Together
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The Brain Injury Association of
Washington (BIAWA)
1982 families and caregivers of individuals
with brain injuries saw a need for support
Mostly volunteer based
Support Groups and a Resource Line
2007 Resource Line Contract
2011 1st Pediatric Resource Manager
2011 Resource Center Contract
2012 Pediatric Services Statewide
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Current Team
Brittney Neidhardt-Gruhl – Puget Sound Resource Manager
Carla-Jo Whitson – Southwest Resource Manager –CDM Services
Deborah Crawley – Executive Director
Denise Hansen – Information and Referral Specialist
Janet Jones – Central Resource Manager
Janet Mott – Clinical Case Manager
Jennifer Peloquin – Information and Referral Specialist
Jessica Giordano – Resource Line Operations Manager
Julie Dawning – Pediatric Resource Manager
Mary Hughes – Northwest Resource Manager
Nancy Huseman - Western Resource Manager – Cascade Park
Pauline deHoog– Administrative Assistant
Phil Mikkelson – Database and Web Manager
Wendy Lomax – Eastern Resource Manager
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BIAWA Vision Statement
Our vision is a world where brain injury is
prevented, and every person already affected
by its impact benefits from resources that
maximize his/her quality of life.
BIAWA Mission Statement
Our mission is to increase public awareness,
support, and hope for those affected by brain
injury through education, assistance, and
advocacy.
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Education
Increase public awareness of and
knowledge about brain injury through:
• Participation in Conferences and
other Community Events;
• Trainings to the public;
• Website, Facebook,
Billboards.
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Expanding Outreach
Activities
Already more than 98 days of conference and
event participation in the 2011/2012 Fiscal year.
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Training
Cover the basics of brain injury and are then
modified to meet the needs of the audience
such as:
- Medical Providers at Overlake Hospital
- Catholic Community Services
- Domestic Violence Advocates
Providing others with the tools
needed to ensure the best
services possible to those affected
by brain injury.
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Facebook
• BIAWA shares information about:
• Upcoming events such as our Annual Holiday Party
• Opportunities such as our Academic Scholarship
• New and Exciting Research
• Others in the community to spread the word about their
events
Heather Rooney’s Rainbow Courage
www.facebook.com/braininjurywa
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Facebook
BIAWA asked our Facebook friends and fans, “What does
brain injury community mean to you?” The responses were
both powerful and inspiring.
“The brain injury community is my hope amidst my
heartache. It keeps me connected with others who live and
understand my struggles. It educates the public, including
my family and friends, on what brain injuries actually are,
how to prevent them, and the trials that people with a TBI
suffer through. I am a 15 year survivor and could not have
made it this far on my own.”
- Jane
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Assistance
• The Washington
Traumatic Brain Injury
Resource Center
• Support Groups
• Support Activities
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The Tommy Manning Act 2007
$2
Traffic
Tickets
Approx.
$1.6M
Annually
Governor
Appointed
TBI
Council
DSHS
Fiduciary
Agency
TBI
Resource
Center
Support
Groups
TBI
Conference
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The Washington
Traumatic Brain Injury
Resource Center Grant
2011
Continuation of:
• Washington TBI Resource Line
• Clinical Case Management
Addition of:
• In-Person Resource Management (RM)
• Pediatric Services
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Washington TBI Resource Line
• Statewide Toll Free Line 877-824-1766
• 9am-5pm M-F
– 115 Calls Per Week
– 6,000 Calls Per Year
Offering Support, Information & Referrals to:
• Individuals throughout the state of
Washington whose lives are affected by
brain injury or who are interested in
learning more about brain injury.
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Why Call?
Knowing Where to Turn
Finding Resources
• Neuropsychologists, Attorneys,
Placement Facilities, Benefits
Support Activities
Referrals to RM
• Adults and Pediatrics
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Resource Database
• Online database
• More than 1,100 Resources
• Attorneys, Neuropsychologists, Physiatrists, Home
Health Care, and more.
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Adult Resource Management
In-person support for survivors, families, and
caregivers to assess their current resources and
needs and to provide support in accessing additional
resources.
Resource Management is:
• Goal Driven
• Client Centered
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Pediatric Resource
Management
Supports school-aged pediatric brain injury patients,
their families, and caregivers with reintegration into
their homes, schools, and communities during and
subsequent to the discharge process.
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What Can RM Do for You?
“To keep her house from going
into foreclosure”
“Getting all of her medical
needs met through one
provider”
“Successful transition home
from the hospital with
rehabilitation in place”
“Find an educational placement
that will support emotional and
behavioral needs”
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Resource Management
The BIAWA has boots on the ground in counties that cover more
than 90% of the TBI incidence
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Clinical Case Management
Conducts assessments and implements
care plans for individuals referred to
Resource Management whose needs
require complex care coordination.
“Clarify his status in relationship
to potential guardianship needs
and legal ramifications of recent
divorce”
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Who We Help
-
25% of the people we help are caregivers and 80% of
them are unpaid
Female
39%
Male
61%
80+
65-79
50-64
35-49
20-34
5-19
0-4
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Contact Closer to Injury
Reported Time Since Brain Injury for Clients of the
Resource Center
100
90
80
70
60
50
40
30
20
10
0
0-1 Year
1-5 Years
5-10 Years
10-20 Years
20+ Years
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Support Groups
• Help find facilitators
• Provide staff to fill in when needed
• Help start new groups such as the Pediatric Brain
Injury Support Group
• Boost public awareness about current groups and
their activities via:
• Website,
• Facebook,
• Referrals through the Washington TBI Resource Center.
www.braininjurywa.org/supportgroups
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Support Activities
Ski for All
Strolling through
the Tulips
Academic
Scholarships
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Advocacy
Leaders in Legislation
The Zackery Lystedt Law, 2009
Contains 3 essential elements:
• Athletes, parents and coaches must be educated about
the dangers of concussions each year.
• If a young athlete is suspected of having a concussion,
he/she must be removed from a game or practice and
not be permitted to return to play. When in doubt, sit
them out.
• A licensed health care professional must clear the young
athlete to return to play in the subsequent days or
weeks.
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“As of October 2011, 31 states (plus the District of Columbia and the city of Chicago)
have adopted youth concussion laws.”
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http://nflhealthandsafety.com/zackery-lystedt-law/states/
What It’s All About
Rita received Resource Management
through the BIAWA and had this to say
about one of our Resource Managers,
“She's been my Resource Angel. I
was feeling lost and overwhelmed
when I moved to the Great Northwest
w/ my significant other of 8yrs from
California where my TBI situation
first started, but with her warm
friendly heart she welcomed me to
the support group n encouraged me
to seek help. Thank You & God Bless
You!”
Elizabeth had this to say about one of
our resource Line Specialists, “I just
wanted to thank you for your time
yesterday. I was feeling so
frustrated, alone, depressed and
not sure what to do to help
myself. You gave me great advice
and referrals I desperately
needed… I am so glad this
organization exists and I am very
grateful. Thank you again for all
your time and help. I appreciate it
more than you can know.”
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Contacts
Washington TBI Resource Center
877-824-1766
Brain Injury Association of Washington
877-982-4292
www.braininjurywa.org
www.facebook.com/braininjurywa
Jessica Giordano
206-897-5755
[email protected]
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Thank You!
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