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NHS VULNERABLE GROUPS HEALTH CHECK Date 22RD APRIL Job Number: 1271 Prepared for: NHS Leeds Prepared by: Kath Rhodes Caroline Snell 1 BACKGROUND 2 BACKGROUND • NHS Leeds is committed to reducing health inequalities • With this in mind it has put in place a systematic process for delivering health checks to ‘at risk’ men and women in more deprived areas of Leeds aged 40-74 through their GPs • However there are key vulnerable groups that may not be reached by these measures – these are: – – – – – 3 Homeless Gypsies and Travellers Asylum Seekers Those with learning disabilities Those with mental health problems BACKGROUND • Equally key groups from ethnic minority backgrounds may not be reached through the current health check offer • So, research was also needed to understand how to target and deliver the health check for men and women aged 40-74 from the following ethnic groups: – South Asians – African Caribbeans – Africans • Overall the project was designed to understand how to deliver health checks most effectively to these specific target groups 4 RESEARCH OBJECTIVES • To understand general attitudes to health and the priority that these groups place on health within their lifestyles and those of their families • To gauge initial reactions to the invitation to attend an NHS Health Check (Vascular Risk Assessment) and motivators to attend • To determine their understanding of health risks generally and Vascular Risk specifically, and its perceived relevance to them. • To explore their expectations of what this assessment would involve and what follow-up they might expect. 5 RESEARCH OBJECTIVES • To identify in detail, the main barriers to attending for this group and gain insight into what factors may motivate them to attend • To gain feedback on the current invitation letter (and the DH letter) and provide guidance on how to optimise, where appropriate. • To understand the potential role of community groups, community leaders, religious groups etc in influencing attitudes and attendance rates 6 RESEARCH METHOD A mix of depth interviews, group discussions with the key target groups and depth interviews were carried out for each target group. Specific details are listed in the main body of the document. (The only exception to this is with respondents with mental health issues, who were represented across all our other target groups – here we also interviewed a support worker). Fieldwork was carried out in March and April 2010 by Kath Rhodes and Caroline Snell for Claro 7 MAIN FINDINGS 8 SHARED THEMES 9 SPECTRUM OF NEEDS Across each target group there is a spectrum of needs and attitudes People who will easily access the letter and leaflet People who easily understand the benefits of health check and find it appealing People who have more barriers to understanding People who are less connected into the system 10 Within each vulnerable group there are easier and harder to reach individuals ADDITIONAL SUPPORT REQUIRED For all those with more barriers to understanding and access the leaflet and letter is not enough on its own. Greater support is required to encourage participation. Support to access the information Via support workers or a support group 11 Via community leaders Support to understand/believe the benefits Via GP Via appropriate materials /translations SHARED ATTITUDES: AGE Some common themes emerge across the target groups The impact of age • Midlife crisis – 40 -55 can be a time when people’s attitude to their health changes – From confidence/ oblivious to awareness/concern • This leads to a receptive attitude to a health check ‘to know where you stand’ 12 SHARED ATTITUDES: AGE The impact of age: attitudes of 60+ can be more varied 13 Already in contact with GP Head in the sand I don’t want to know It will only be bad news Keen to get additional Information. Willing to attend health check A minority (?) but harder to access SHARED ATTITUDES: GENDER Male / female split • Women are often more open to health checks than men • Women often have a proactive attitude to health care – Don’t view selves as healthy and fit There are of course exceptions to this 14 • Male self image and family/provider/ breadwinner role can create more barriers to attending a health check – – – – Won’t go until their leg falls off Only react to health problem No time to stop Want to see themselves as healthy and fit – Don’t want to miss work SHARED ATTITUDES: ATTITUDE TO GP Negative experience of the GP is common • Doesn’t listen • Doesn’t look at or touch me • Doesn’t ask questions • Is keen to get me in and out in as quickly as possible • Just wants to look at one particular problem and not all of me • Just wants to write a prescription • Doesn’t explain things to me There can be a large gap between how the patient expects to be treated and their experience 15 SHARED ATTITUDES: MENTAL HEALTH In all target groups mental health issues and related barriers emerge • Mental health, specifically depression and psychoses can be significant barriers to attending a health check • When in a positive phase attending a health check is more likely • When in a negative phase attending a health check can seem an impossible ask 16 SHARED ATTITUDES: EXPECTATION OF WHAT THE ASSESSMENT WILL INVOLVE • When the letter is understood there is a clear understanding of the tests that will be carried out in the Health Check – Weight, height, BP, family history, blood test etc • However many expect the health check to cover more than cardio vascular health (and mentally add on other elements) – Mental health – Cancer screening – Full body scan 17 SHARED ATTITUDES: EXPECTATION OF FOLLOW UP Many do not think as far as the follow up, but when questioned further.. • Expect to either get the ‘all clear’, or a lecture on lifestyle • Most do not think as far or expect medication to be a benefit 18 SHARED ATTITUDES: EXPECTATION OF OUTCOMES Many take a passive approach to the health check and any outcomes • Most imagine if they were prescribed medication they would comply • But many feel they would struggle to make strong lifestyle changes – Some asylum seekers and less medically knowledgeable Africans may be an exception as they have a stronger desire to adapt to the ‘rules’ of their new country 19 SHARED ATTITUDES Overall, when it is understood, a cardio vascular health check is perceived to be positive and desirable service Good for future health 20 FEEDBACK ON LETTER AND LEAFLET 21 BALANCE OF ATTENTION Of the two elements, the letter is the most influential The leaflet gives additional information and detail but is only read once the reader has already decided to attend Decision to attend (or not) is taken based on the letter 22 INVITATION LETTER 23 QUESTIONS ASKED AS LETTER READ What is this about? Is it relevant to me? 24 An appointment/a health check Yes …my age, my name, from my GP QUESTIONS ASKED AS LETTER READ Yes, it’s a good idea. Do I want to attend a health check? 25 Yes but …my life, my circumstance issues READ LEAFLET DON’T READ LEAFLET No, its not important. DON’T READ LEAFLET No, I don’t want to think about my health. DON’T READ LEAFLET TAKE OUT FROM LETTER Overall the letter is clear but there are different levels of take out dependant on mental capacity, reading ability, interest, standard of translation performed Some no understanding Some understand NHS logo It is a doctors appointment For a health check For people 40 – 74 It takes 20 – 30 minutes 26 Learning disabilities and illiterate Basic reading skills, ‘lazy’ translators, less interested skimmers TAKE OUT FROM LETTER You can change it if it not convenient For these specific illnesses To help prevent or spot these illnesses early This is what will happen in it Look at the leaflet for more information Only the word cholesterol can be difficult but meaning not required for good understanding of letter. 27 Higher level of reading skills, more time, more interest, more commitment to health LETTER DEVELOPMENTS • Also include GPs address at top of page • Some don’t see this as an appointment, which diminishes importance. • GPs could increase take up in vulnerable groups where they know or suspect reading skills are low by including a filled out appointment card in the envelope 28 LEAFLET Level of attention given varies Some don’t read, just look At the front cover -Too onerous - Not interested in detail until just before appointment -have already decided if they will attend or not 29 Others read in detail When there is lots of new news for them When they have lots of free time When particularly interested in free services When trying to be diligent COVER • Cover take out varies according to literacy skill • The illiterate can interpret the cogs as different parts of the body – brain, mouth, throat. Which gives no understanding of CVD • Some focus on ‘free’ and ‘health check’, then see the visuals as illustrating different part of the body and the illnesses they can have • A few understand the front cover entirely and the interconnectivity of CVD 30 LEAFLET COVER • We recommend adding 40 – 74 on front cover to reinforce relevance 31 LEAFLET • For those who have the literacy skills and engage with the leaflet its meaning is clear. • Others can view it as the unnecessary extra – ‘the glossy marketing bit’ • The leaflet’s role as influencer is limited, as most have decided to attend before they have read the leaflet • The most significant influences of whether a person will or will not attend are down to overcoming the barriers in their own lives, attitudes and needs and not the written communication. 32 LEAFLET • Identifies risk • Identifies benefit • But already assumed by most who read 33 LEAFLET • Interesting new news for some. Makes the leaflet feel worth reading. • ‘Type 2 diabetes’ can be an unfamiliar term for many • Confirms attitudes that it is worth attending 34 LEAFLET • Some don’t get this far • See this as a reiteration of the letter • Most focus on the check rather than what happens afterwards. Can be surprised when they consider it might require a second appointment 35 LEAFLET • Least read section • In our sample all who read this far did not need these questions. Already knew they would attend. • Request from support workers for clear direction to translations on the back page 36 DEVELOPMENTS • Important to have translation of letters • Have clear direction for support workers /family carers to translation • Consider an audio version of the translation – basic points only like the letter for non readers – In English – In Bengali, Urdu, Hindi, Gujarati, Punjabi • Put the age range on front page to reinforce sense of relevancy 37 LANGUAGES • Translations are also requested in the following languages: – – – – – – – 38 Kurdish Tigrinya (Eritrean language) Amharic (Ethiopia/Eritrea) Farsi Czech Hungarian Bulgarian THE LETTER AND LEAFLET When they are engaged with, read and understood the letter and leaflet are effective at encouraging attendance. However, amongst these vulnerable groups more support is required. 39 NEEDS OF SPECIFIC GROUPS 40 GYPSY AND TRAVELLERS 41 GYPSIES AND TRAVELLERS Sample • 4 women from the Cottingley Site in Leeds • 1 ‘roadside’ man • 2 women living in houses • 1 GATE support worker – health visitor 42 ATTITUDE TO HEALTH • Health not top of mind for men and many women • Women focus on kids health • Women more aware of and interested in health • Men do not think about health until ill • None aware that they are a community more at risk of CVD than broader population – Risks resonates once explained – lots of family history 43 ACCESS TO GPS • Feel excluded and self exclude from health services • Can feel GPs don’t want them and don’t like the way they are treated – Think GPs and their HCPs see them and their children as ‘trouble makers’ – Can prefer to access emergency out of hours treatment to avoid GPs • Some, particularly roadside, are not registered • Some are registered in different cities – Hang on to a sympathetic GP • Some are registered – Set up systems with local pharmacist to receive mail (and repeat prescriptions) from doctor. Pharmacist rings when new post has arrives and reads it to patient. 44 GYPSY AND TRAVELLERS KEY BARRIERS Illiteracy Awareness of CVD risks Attitude to GP Attitude to prevention in health Transport Access to post 45 GYPSIES AND TRAVELLERS - BARRIERS • All able to collect mail, either because live on static site or house or have made an arrangement with a friend or pharmacist (when need repeat prescription) • Some 40+ illiterate – ‘scholar’ e.g.. child, friend, support worker or even pharmacist asked to read it (probably letter only for gist) • Needs to feel important enough to get someone to read – Recognise NHS logo – Communication of age on leaflet would help relevance 46 GYPSIES & TRAVELLERS - BARRIERS • Once content of letter understood….. NOT INTERESTED INTERESTED • Practical Barriers – Too far/difficult to travel to GP on bus – May have to take children • Men: – – – – Not a priority See self as fit Don’t go to doctor unless ill See health check as indulgent See self as too busy – Don’t value preventative health • Can expect health check to have broader • Both men and women: remit – Don’t see as particularly relevant to themselves 47 GYPSIES AND TRAVELLERS They just plain simple they do not care about us, they are doing what Hitler done, shoot all the bloody gypsies, that’s what it is (laughter) F61 Travelling people is not like ordinary people, they’ve got their own way of living. If they get a cold they won’t bother with the doctors, because they know it’s not really bad. It’s got to be bad before they go and do something about it,…. especially men. Men don’t like going to doctors, I wouldn’t go myself except I’ve got to. They don’t worry about it. Until they are poorly and when they feel ill and they’ve got to go they go. M 60s 48 GYPSIES AND TRAVELLERS - SOLUTIONS For the health check to seem worthwhile and increase chance of attendance additional communication is required • Aural communication days through trusted spokespeople – E.g. GATE – Use word of mouth to spread message – Explain potential problems more than in current leaflet, what could having a stroke mean for their lives – Give more time to sessions to allow their style of communication • Place health checks away from the GP (for some) – With gender specific HCPs if possible 49 GYPSIES AND TRAVELLERS - SOLUTIONS • Have a system that can react to the arrival of roadside camps – different times of year • Also use pharmacists and trusted GPs to communicate importance of Health check • Use text messaging – e.g. your GP wants you to come for a health check (for all people 40 – 75) next time you are in the area ring for an appointment. • Ring (mobile) to invite 50 ASYLUM SEEKERS AND REFUGEES 51 ASYLUM SEEKERS AND REFUGEES SAMPLE • All interviewed via SOLACE • 2 Kurdish men • 1 Nigerian woman • 3 Iranians men • 1 Ugandan woman • 1 Eritrean woman • 1 Support worker 52 ATTITUDE TO HEALTH • Expect themselves to have poor health – Because of trauma of life so far – View own life as unhealthy, with lots of stress – Poor health may also be a reason to be allowed to stay in UK • • • • • All have very positive attitude to a health check Have time to attend (if not working) Worried about own health See access to free NHS as a major benefit Expect to be denied / rejected so delighted to be included • Have less knowledge of CVD and their own risks, eager to gain knowledge 53 ACCESS TO GPS Relatively easy to access GP services. • Once registered as asylum seeker, taken to NAS accommodation. When taken to accommodation shown local facilities including the local GP. – Can have short gaps in GP registration when move NAS accommodation • Failed asylum seekers may be nervous to register because fear deportation if they give an address. But in reality GPs do not check asylum status. • 3 in sample had recently been invited to NHS health check 54 ASYLUM SEEKERS AND REFUGEES KEY MOTIVATIONS TO ATTEND Fear around health Want to conform to GP request Want to access benefits of the UK 55 Lots of free time Want to learn more about health ASYLUM SEEKERS AND REFUGEES KEY BARRIERS 56 Language English Literacy Time off work Health connected to spirituality for some Africans ASYLUM SEEKERS AND REFUGEES I would do as I am instructed to improve my health (m) The best form of health prevention is praying and reading the bible… living your life under the will of god. (f) There is no reason not to go unless I am a mad person (m) 58 (if I am depressed) I leave it, I don’t care about my life any more. (m) Would she attend? Yeah she don’t joke about that. She says no one pays for this and this is for free so if I am getting this because people are thinking for my health I should get up and get help, it’s not a big deal for me to go there, where ever it is (f) ASYLUM SEEKERS AND REFUGEES KEY SOLUTIONS • Provide clearer access to translation help • Increase number of languages • Provide a translation of the letter too • Engage support organisations to promote health checks (Solace, Pafras, BHI, Refugee council) – Provide clarification as to who is and isn’t eligible 59 PEOPLE WITH MENTAL HEALTH PROBLEMS 60 MENTAL HEALTH SAMPLE • We interviewed people with mental health problems across almost all target groups - homeless, asylum seekers, African Caribbean, Gypsies, Learning Difficulties (8 in total) • 2 support workers – 1 working with homeless and 1 from a Community Psychiatric Support Team 61 MENTAL HEALTH SUFFERERS Attitude to health in this group is completely dependant on their state of mind • When feeling positive and in control, looking after your health and attending a health check can feel entirely possible 62 • When feeling vulnerable or depressed it can seem an impossible and pointless task MENTAL HEALTH SUFFERERS Additionally there are those within the system and those outside it Currently under medical care • Regularly see GP for prescriptions • Psychiatrist and psychiatric support teams more aware of physical health impact of antipsychotics (particularly diabetes) • Likely to already be monitored for CVD 63 Not under any medical care/not a service user • Life likely to be far to chaotic to turn up for a health check • Can have negative relationship to GP • Can feel suspicious • Requires GP to identify mental health need MENTAL HEALTH SUFFERERS KEY BARRIERS Depression and Psychosis Attitude to longevity Attitude to GP 64 Transport Literacy MENTAL HEALTH SUFFERERS KEY MOTIVATIONS TO ATTEND Worry about own health Want to discuss mental health probs 65 MENTAL HEALTH SUFFERERS This is the 49% 51% thing… With my depression they obviously talk about suicide and its like 49% yes I will do it and 51% is no I won’t. If, I wouldn’t sit plan to go and hang myself or take an overdose because I am a coward, pain eughh, but the other 51% which is the side that says no you ain’t gonna do it sort of says well why don’t you get cancer cos that would be alright because you would die. Just get a terminal disease like aids or cancer or a brain haemorrhage and just be dead, that would be better because you wouldn’t have to kill yourself. So yes I think it’s good but 51% thinks I’m not really bothered if I drop dead. The way I am feeling at the moment with life I wouldn’t really mind if I had a stoke or a brain haemorrhage. But then there is another part of me if it were a good day I would be like yeah lets go and do it. And there is a family history of things like strokes. 66 MENTAL HEALTH SUFFERERS SOLUTIONS • Engage community psychiatric teams with promoting the Health Checks • Ensure all more general support services for vulnerable groups are aware of the increased risk those using anti-psychotics have of developing CVD and diabetes and encourage attendance • Encourage GPs to promote health check to those with mental health needs 67 HOMELESS 68 HOMELESS • Sample • 1 group (including a woman) • 6 depth interviews • 2 support workers – 1 at St Anne’s, 1 at St George’s Crypt • More men than women are homeless in Leeds and most are under 40 69 ATTITUDE TO HEALTH Attitudes to health can be split according to current outlook on life • Health is very important • Health is a low priority • ‘It is all I have’/’ I need • Hard to focus on the it to survive’ future/live day to day • Can be easy to eat • When in a self healthily and get destructive phase can be exercise disinterested in own • Especially when in a health and resistant to phase where want to change change 70 ACCESS TO HEALTHCARE • Long term homeless can be most informed about the system and where to access support • More recently homeless have more problems accessing healthcare • However as soon as in contact with a support organisation access to healthcare and information is much easier – Leeds Street Team and St George’s Crypt directs the newly homeless there to NFA team/ St Anne’s – Delivers a respectful and well regarded service • St Anne’s can be used as a ‘care of’ address – But this facility only kept open for 2 weeks if person does not pick up their post 71 HOMELESS KEY BARRIERS Lack of desire to look after self Not telling GP so post never reaches Focus on day to day survival Language New to homelessness 72 Drug and Alcohol addiction Mental health HOMELESS KEY MOTIVATIONS TO ATTEND 73 Have time to attend Have time to read literature Want personal attention Worry about own health HOMELESS I’ll be honest, what would attract me is that I’m the star in my own movie (m) There are times when it (a health check) just wouldn’t be on your radar (m) If they find anything wrong with me they can fix it (m) (Sigh) No important in the past, no important in the future, just now. OK (m) I think the reason it being done here (St Anne’s) you get respect from the doctors and nurses.. They don’t talk down to you. They respect you. They realise that because there are problems you are not half baked (m) 74 HOMELESS SOLUTIONS • Hold health checks in a trusted place e.g.. St Anne’s • Encourage support services to direct homeless people to health checks • Have posters at all services and shelters and ads in the Big Issue • Have print outs of leaflet in many languages available in shelters and services. • Include maps of how to get to the place carrying out the checks • Communicate age on front cover of leaflet • Consider text invite from GP • Free phone number on letter 75 PEOPLE WITH LEARNING DISABILITIES 76 LEARNING DISABILITIES • Sample • 2 x women with learning difficulties • 1 support worker (PIA) • 1 home carer 77 ATTITUDE TO HEALTH • Short term attitude to health – E.g. being overweight is bad for your knees and makes it difficult to walk • Difficulty understanding prevention, risk and consequences • Care of their health integrated into their lives by state and carers 78 ACCESS TO HEALTHCARE • Those with more severe learning disabilities very connected into NHS support – However easy read materials can be hard to access • Some with much milder learning disabilities may be outside the system – See own health as low priority – Only driven to act by an immediate problem – Chaotic life can make it hard to attend appointments 79 LEARNING DISABILITIES KEY BARRIERS Understanding prevention and risk Organisational skills Depression Literacy/ understanding 80 Seeing Health Check Simply as a lecture LEARNING DISABILITIES KEY MOTIVATIONS TO ATTEND Told to attend, happy to follow instruction 81 Want to be healthy LEARNING DISABILITIES – SOLUTIONS • Engage NHS Leeds carers to encourage attendance – Help carers access easy read version • Shorten easy read version to cover: – State the purpose as to help you be healthy/keep your heart healthy – List what happens in the check – Explain meet again for results and advice • Use support organisations to engage harder to reach people • (GPs and or social workers required to identify who might need more help in wider community) 82 AFRICAN CARIBBEAN COMMUNITY 83 AFRICAN CARIBBEAN SAMPLE • 2 support/community workers • 6 men • 2 women 84 ATTITUDE TO HEALTH • On the whole this community do not hold particularly different in attitudes to mainstream population • Good awareness that heart disease, stroke and diabetes is prevalent in their community – via prominent young deaths and health care education – aware a traditional diet can have negative health implications • Men less likely to consider their health until they are ill • 65 – 74 year olds (if not already in GPs care) thought to be a particularly hard target to engage – Prefer traditional herbal approach to health 85 ACCESS TO HEALTHCARE • All likely to be registered with GP • Some do not like their GP and therefore avoid going – Do not feel listened to or given enough time 86 AFRICAN CARIBBEANS KEY BARRIERS Male attitude to health Time off work Culture of privacy Traditional herbal practices 87 Low sense of importance AFRICAN CARIBBEAN MOTIVATIONS TO ATTEND Desire to look after long term health Knowledge allows prevention and treatment Know CVD relevant to their community 88 AFRICAN CARIBBEANS It’s conducive to my health to go and my health is my wealth (F) We have no community leader, the community leader is a waste of time (m) 89 You tend to think, it doesn’t matter, I’ll ride this out (m) I’d read and act.. To ensure I remain healthy, prevention is better than cure..it’s better to deal with things before they are full blown (f) AFRICAN CARIBBEAN SOLUTIONS • Use community/support groups to emphasise significance and potential impact on their lives and that this is preventable – diabetes might lead to amputation or erectile dysfunction – stroke might lead to not being able to walk • Use community groups to access hard to reach older traditionalists (hold additional clinics away from GP) • Also engage church leaders • Distribute posters in local male frequented cafes e.g.. ‘Dutch Pot’, ‘Cabin’ ‘Counter fish and chip shop’ • Encourage GP to include a filled out appointment card with letter to make appointment feel more fixed and pressing 90 AFRICANS 91 AFRICAN SAMPLE • 4 support workers (2 x BHI, 1 St George’s Crypt, 1 Solace) • 5 women • 2 men 92 ATTITUDES TO HEALTH • Gender divide: – Women more motivated than men to look after their health – Men prefer to ignore health unless feel ill • Can feel the UK is a sick place, feel more unhealthy here • Can feel that looking after your body is part of their religion (both Christianity and Islam) • Less knowledgeable of health and illness, than other groups – Keen to get more information on health – Don’t see selves as a vulnerable group re CVD • Value free healthcare and respect the doctor (likely to do what he/she wants of them) 93 ACCESS TO HEALTH CARE • Good access to healthcare, quickly registered 94 AFRICAN KEY BARRIERS Male attitude to health Time off work Sense of importance 95 AFRICAN MOTIVATIONS TO ATTEND Value free healthcare Desire to look after long term health Respect GPs request 96 Religion encourages looking after your body Good health allows you to look after family better AFRICAN We would always think health checks, its for aristocrats… a luxury Where we grew up, having medical check up is a rich thing.. aristocrats, yeah its like a luxury I am a little concerned about my health when I am getting ill, but when I am fine I don’t think about my health (m) You should get the pastor to tell everyone to go (f) It’s the women who will get the men to go (f) 97 AFRICAN - SOLUTIONS • Make sure the letter is clearly from GP – respect own doctor and more likely to attend • Include a appointment card to make it seem more fixed • Engage Imam (or assistant) and Pastor to communicate importance of looking after your body for god (as part of notices not just leafleting) – Even going as far as to quote from the scripture/Koran – To encourage men and women to prioritise attending • Use community groups to communicate – e.g.. Nigerian community in Leeds – Express particularly vulnerability of this target group 98 SOUTH ASIANS 99 SOUTH ASIANS • Sample • 1 x family session • 1 x support worker • 1 x mini group of older women (all who had CVD issues) • 1 x male depth interview • 1 x female depth interview 10 0 SOUTH ASIANS – ATTITUDE TO HEALTH • Women can be highly engaged: – Carers for the whole family – so concerned about how everyone in the family is doing – As the care-giver need to remain in good health – Recognise the importance of health • Men are less interested in their health status: – – – – Whilst care of the body is integral to Muslim faith.. … so is fatalism Men see selves as too busy to attend doctors Men’s health is to some degree controlled by external forces – sedentary work/ diet controlled by women – Low overall engagement with health risks (smoking; diet; exercise) 10 1 SOUTH ASIANS – ATTITUDE TO HEALTH … reactive – they’re not proactive. Unless they’ve had a medical diagnosis they won’t act on it until after they’ve had it. We know loads of taxi drivers, they’re obese, they eat all the junk food, the hours of work... the messages are there – unless you have a reaction something that stops them, they’ll carry on. They will associate religion.. They might not associate it outwardly but they’ll say, whatever is written for you is written for you (religion). (Health support worker) 10 2 SOUTH ASIANS – ATTITUDE TO HEALTH Overall there is some awareness that S Asian (men) in particular are at risk from CVD… several examples of young deaths (under 40) through heart attack 10 3 SOUTH ASIANS – ACCESS TO HEALTHCARE • Access to GPs for women can be complicated: – – – – – Many don’t speak English with any degree of fluency Many are illiterate in any language Need an interpreter to go with them to the doctor’s Rely on family members to go with them to the doctors Rely on family members to read letters/ communications – tend only to get ‘topline’ information from family members • Men can be dismissive of GP service: – Don’t have time to visit the GP – Feel the GP doesn’t give them full attention/ highest quality medication – More trust of the pharmacist (local community) 10 4 SOUTH ASIANS – BARRIERS TO HEALTH CHECK Illiteracy/ ltd info from letter Awareness of CVD risks Attitude to GP Attitude to prevention in health Co-ordinating family members Language barriers (women) 10 5 SOUTH ASIANS – KEY BARRIERS • Women: – Family members who act as gatekeepers may not endorse the health check or be available for the appointment – Women may not be able to engage with the health check messages (without the help of translators) – Expectations of the health check can be high (getting the full well woman treatment) • Men: – Low degree of interest in attendance 10 6 SOUTH ASIANS – SOLUTIONS • Wave one: letters inviting the householder to attend with the offer of interpreter service at the GPs • Wave two: health check days promoted at local community centres where interpreters are available • Within wave two: – Social element – Education element – as a group learn what you can do to improve your cardio vascular health • Specifically for men: health check to be promoted through local mosques. End of Friday prayer notices – Linked to insight around caring for your body.. 10 7 SOUTH ASIANS – SOLUTIONS • Wave one: letters inviting the householder to attend with the offer of interpreter service at the GPs • Wave two: health check days promoted at local community centres where interpreters are available • Within wave two: – Social element – Education element – as a group learn what you can do to improve your cardio vascular health • Specifically for men: health check to be promoted through local mosques. End of Friday prayer notices – Linked to insight around caring for your body.. 10 8 CONCLUSIONS 10 9 CONCLUSIONS • When understood the letter and leaflet are clear and make it easier for those who are keen on the idea of a health check to attend by giving them all the information they need. – Only main development for the leaflet is to communicate the age range on the front cover. • However, to reach people in these vulnerable groups more effectively further support is required. Both to make sure people can understand the information and to convinced them that a health check is worthwhile. 11 0 CONCLUSIONS • Additional support to understanding of the letter and leaflet should be provided by: – Translating the leaflet and the letter into more languages – Making it clearer how to access the translations and easy read version – Shortening the easy read version – Having shortened audio versions in different languages available online • Additional support to communicating you have an appointment for a health check – Adding an doctors appointment card to the letter sent out – Using text messaging and voice messaging to mobiles 11 1 CONCLUSIONS • Raising awareness of availability of a health check by putting up poster and leaving leaflet in appropriate venues, community centres, shelters and cafes. • Making the health check feel accessible by holding them away from mainstream GPs surgeries – For Homeless - NFA/St Anne’s – For Gypsies and Travellers - GATE – For African Caribbean community 11 2 CONCLUSIONS • Additional support to communicate the benefits and importance of attending by engaging appropriate community/support/religious groups – Engaging the community – Highlighting the specific relevance to them as a community (higher risks) – Explaining more directly what the implications of getting these problems might mean to their life – Communicating the importance of health as part of faith 11 3 CONCLUSIONS • Additional support through NHS services – GPs raising awareness and persuading patients to attend – Carers bringing it to the attention of the people they look after – Community Psychiatric Services also communicating it to the service users 11 4 CONCLUSIONS • Once a person has attended their attitude to the information received is likely to be quite passive • Most are likely to comply if asked to take medication but lifestyle changes will be harder for people to take on board. 11 5 Claro 71a Walmgate York YO1 9TZ 01904 673114 Email:- [email protected] www.claro-research.com 11 6