Transcript Slide 1

Advancing Patient Engagement
through Coalition Partnerships
2nd Annual
Optimizing Patient Adherence Conference
Wm. Ray Bullman, M.A.M., Executive Vice President
N. Lee Rucker, MSPH, Senior Advisor
National Council on Patient
Information and Education
Rockville, MD
www.talkaboutrx.org
January 15, 2014 -- Raleigh, NC
Objectives
1. Overview: the National Council on Patient
Information and Education (NCPIE)
2. Case Studies of Current NCPIE Initiatives
3. Future Public / Private Partnerships
Introduction to the National Council on
Patient Information & Education
Decades before
patient safety, medication adherence, or patient
empowerment became part of our lexicon, they
informed the heart and soul of NCPIE’s mission:
To stimulate and improve communication of
information on the appropriate use of medicines to
consumers and health care professionals.
Since 1982, NCPIE has:
• Brought together public and
private stakeholders who are
committed to improving
communication about the
safe, appropriate use of
medicines;
• Empowered and engaged
consumers, patients and
caregivers so they can have
informed dialogue with
clinicians (and other trusted
sources) about their
medicines, to optimize
outcomes;
• Created and implemented
programs to ensure that
medicine information is
useful, timely, and
scientifically accurate in
whatever form – and for
whichever audience – it is
delivered.
NCPIE’s Campaigns
Serving as:
• Catalyst
• Convener
• Collaborator
Case Study #1:
Adherence Action Agenda -- A3
• Why NCPIE?
• History as respected
catalyst on Rx
adherence (authored
reports in 1995, 2007)
• When?
2012 – Present
(Launch: Oct. 2013)
• Funding:
Adherence Action Agenda
(A3 Project)
Adherence Action Agenda:
Development Process
• NCPIE surveyed key stakeholders to determine
and validate A3 focus areas
• Facilitator-led:
– stakeholder discussion
– decision-making process
– consensus development during multiple Project
Advisory Team meetings
Identification of Adherence Focus Areas
• Chronic conditions & co-morbidities:
where we know taking meds safely and
appropriately will make a difference in
outcomes;
• Patient-related factors;
• Provider-related factors.
Identification of “Macro” Factors
• Current drivers impacting or reshaping medical care
configuration, access, delivery, payment:
• Practice patterns and configurations
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Policy change efforts
Payment / Incentives
Pharma innovation – including packaging
Technology innovations & adoption
Health Literacy
Priorities of Adherence Action Structure
• Zeroed in on persons with the two most common, or with
three most common, chronic conditions.
• Also considered how adherence challenges may differ
for persons with just one chronic condition, versus those
with several; and if multiple prescribers are involved.
• Patients’ Medicine Journey encompasses many
similarities / many differences depending on life stage:
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Older adults with multiple chronic conditions
Aging boomers with family caregiving responsibilities
Working age adults (who also manage meds in the home)
Retirees
Youth
Source: CMS, Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD. 2012.
Source: CMS. Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD. 2012.
Source:. CMS, Chronic Conditions among Medicare Beneficiaries, Chart book: 2012 Edition, Baltimore, MD. 2012.
A Window into High-need Patients
• Patient Factors, such as:
– Low health literacy
– Misunderstanding/ need for educational interventions
– Economic challenges, esp. inability to pay for needed
meds
– Cultural beliefs that might affect adherence
– Depression or other behavioral changes
– Transportation, other challenges to accessing medrelated services?
There and Home Again, Safely: 5 Responsibilities of Ambulatory Practices in High Quality Care Transitions, American Medical
Association, Chicago, Feb. 2013: http://www.ama-assn.org/ama/pub/news/news/2013-02-06-principles-patient-safety-after-hospitalstays.page
Case Study #2:
Rx Abuse Prevention Recovery
• Why NCPIE? Established, trusted source
on Rx communication for older adults, and
for youth (Rx drugs & kids: 1989 report)
• When? 2009-Present
• Funding:
NCPIE Highlighted Rx Use in Youth
in 1989 Report
Rx Abuse Prevention ↔ Recovery
Key Products
• Taking Action to Prevent & Address Prescription Drug
Abuse: A Resource Kit for America's College Campuses
• Recovery Opens Doors: An Online
Resource for Young People in Recovery
• The Pass It Forward Video Challenge
Rx Abuse Prevention ↔ Recovery
Nothing About Us Without Us
• These projects were developed with input from NCPIE
Project Advisory Teams
– Representation from federal, private and non-profit
sectors.
– Hands-on involvement by young people ages 18-26.
– Campus programs, too: next slide 
Rx Abuse Prevention ↔ Recovery
A Campus Dialogue
• Gaining Insights from Historically Black Colleges and
Universities
• Engage on-campus target audiences / stakeholders:
Admissions
Police / Judiciary
Fraternities/sororities
Residential Life
Health Center
Student Athletics
Career Center
Administration
Student Counseling
Spiritual Services
Case Study #3: Communicating
Medication Risk and Safety Information
• Why NCPIE? 30+ years of collaborativelydeveloped general and specific messages
on safe use of medicines. FDA, industry,
health care professionals and consumers
at the NCPIE Board table from Day One
• Timing: 2012-2015
• Funding:
Communicating Medication Risk
and Safety Information
• Assess consumers’ and health care professionals’
knowledge, attitudes, use and preferences of
medication risk and safety information.
• Project is engaging multiple stakeholders in design,
implementation of national educational initiative.
Future Public / Private Partnerships with
NCPIE
• Adherence: breaking
down barriers, building
incentives
• Accountability for the Rx
value proposition
• Motivating patients and
caregivers to optimize
medication outcomes
• Why NCPIE?
• Efficient
• Experienced:
– Catalyst
– Convener
– Collaborator
• Effective – Join Us!
For More Information:
National Council on Patient
Information and Education
www.talkaboutrx.org
200-A Monroe Street, Suite 212
Rockville, MD 20850
Ph: (301) 340-3940
W. Ray Bullman:
[email protected]
N. Lee Rucker:
[email protected]