Transcript Document
Medical, Legal, Ethical Aspects of Geriatrics Min H. Huang, PT, PhD, NCS ELDER MISTREATMENT Reading assignments • Mosqueda & Dong, 2011 (posted on Blackboard) • Yaffe & Tazkarji, 2012 (posted on Blackboard) • http://www.nlm.nih.gov/medlineplus/ency/patienti nstructions/000472.htm • http://www.caringinfo.org/files/public/brochures/E nd-of-Life_Decisions.pdf • http://www.cancer.org/acs/groups/cid/documents /webcontent/003014-pdf.pdf Learning objectives • Differentiate between elder abuse, self neglect, and exploitation • Identify the risk factors and screening methods for elder mistreatment • Describe the signs and acts suggestive of elder mistreatment • Take appropriate actions to protect geriatric clients from mistreatment Elder mistreatment • Elder mistreatment typically refers to elder abuse and self-neglect • National Research Council (NRC) excluded self-neglect from the definition of elder mistreatment: “Intentional actions that cause harm or create a serious risk of harm, whether or not intended, to a vulnerable elder by a caregiver or other person who stands in a trust relationship to the elder, or failure by a caregiver to satisfy the elder’s basic needs or to protect the elder from harm.” Three components of elder abuse defined by National Research Council • Older adults o 55+ or 65+ y.o. as defined by law • (Intentional) Harm o Psychological abuse o Financial abuse o Physical abuse o Sexual abuse o Neglect • Trust relationship o Individuals in whom the older adult would reasonably have confidence o Family members, close acquaintances, professionals, and paraprofessionals. Institutional neglect • Elder abuse is not limited to the home or to a community encounter, but might occur within retirement homes, assisted living facilities, nursing homes, and hospitals Self-neglect • The National Center on Elder Abuse defined self-neglect as “…. The behavior of an elderly person that threatens his/her own health and safety. Self neglect generally manifests itself in an older person as a refusal or failure to provide himself/herself with adequate food, water, clothing, shelter, personal hygiene, medication (when indicated), and safety precautions.” Self-neglect vs. elder abuse • Self-neglect is the MOST COMMON form of elder mistreatment in clinical settings • Self-neglect (not unique to seniors) might be reflective of personal problems that generally fall OUTSIDE the realm of elder abuse • Self-neglect is mistreatment caused by self • Elder abuse refers to mistreatment by others • State reporting mechanisms often lump selfneglect and elder abuse together Michigan State Laws: Definition of Abuse SOCIAL WELFARE ACT 400.11 • “Abuse” means harm or threatened harm to an adult's health or welfare caused by another person. Abuse includes, but is not limited to, non-accidental physical or mental injury, sexual abuse, or maltreatment. • “Adult in need of protective services” or “adult” means a vulnerable person not less than 18 years of age who is suspected of being or believed to be abused, neglected, or exploited. Michigan State Laws: Definition of Neglect (THE SOCIAL WELFARE ACT 400.11) “Neglect” means harm to an adult's health or welfare caused by the inability of the adult to respond to a harmful situation or by the conduct of a person who assumes responsibility for a significant aspect of the adult's health or welfare. The failure to provide adequate food, clothing, shelter, or medical care. A person shall not be considered to be abused, neglected, or in need of emergency or protective services for the sole reason that the person is receiving or relying upon treatment by spiritual means through prayer alone in accordance with the tenets and practices of a recognized church or religious denomination, and this act shall not require any medical care or treatment in contravention of the stated or implied objection of that person. Michigan State Laws: Definition of Exploitation and Vulnerability THE SOCIAL WELFARE ACT 400.11 • “Exploitation” means an action that involves the misuse of an adult's funds, property, or personal dignity by another person. • “Vulnerable” means a condition in which an adult is unable to protect himself or herself from abuse, neglect, or exploitation because of a mental or physical impairment or because of advanced age. Most commonly reported elder mistreatment 1. Self neglect (29%) 2. Caregiver neglect (26%) 3. Financial exploitation (19%) 4. Psychological abuse (12%) 5. Physical abuse (12%) Cultural Aspects of Elder Abuse • AA & CA: less likely to view a situation as abusive & to seek help due to revealing family shame • Japanese Americans: silence and avoidance is an extreme form of punishment and as devastating as physical abuse • Latinos: strong family ties and respect for elders thought to decrease risk of abuse • Native Americans: exploitation is a cultural conflict Risk factors of being a victim of elder abuse • Cognitive impairment • Tendency to be physically or verbally abusive • Psychological distress • Frailty • Physical vulnerabilities • Need for activities of daily living assistance • Old age Risk factors of being a victim of elder abuse • Women • Dependency on the abuser • Premorbid relationship to the abuser • A shared living arrangement • Isolation, lower levels of social network and support • Absence of anyone to call on for help • Lower household income Factors predispose caregiver to mistreat elderly • Family relation • Substance abuse, e.g. alcoholism, drugs • Mental illness • Unemployment • Caregiver stress • Financial dependency on the care receiver • Being male Risk factors of self-neglect • • • • • • • • Age older than 75 years . African Americans. Lower socioeconomic status. Cognitive impairment , especially the executive function. Mini-Mental is not very useful in identifying people at risk of self neglect. Physical disability . Psychological distress or depression. Lower levels of social relations. Alcoholism. Prevalence of elder abuse • 14.1% of non-institutionalized older adults had experienced physical, psychological, or sexual abuse; neglect; or financial exploitation in the past year www.gao.gov/products/GAO-11-208 • Estimate ranges from 2.2% to 18.4% • Odds of financial mistreatment ―African Americans > Whites > Latinos ―People without a spouse/partner > People with a spouse/partner If you’ve seen 15 or 20 older people a day, you have probably met an elder abuse victim Consequences of elder abuse • Elder abuse is associated with morbidity and mortality, especially among vulnerable populations • In 2009, federal agencies spent $11.9 million for all activities related to elder abuse Assessment of elder abuse: questions asked by clinician Abused Elder Caregiver • Has anybody hurt you? • Are you afraid of anybody? • Is anyone taking or using your money without your permission? • Are your mom’s needs more than you are really able to handle? • Are you worried that you might hit your mom? • Have you hit your mom? Assessment of elder abuse • An elder seems fearful of the caregiver ―conduct a private interview and examination • Bruises, lacerations, burns, and other injuries in unusual locations without explanation • Assess patient’s function and cognition • Note any inconsistencies between the history and the physical examination findings ―e.g. a patient with good balance reported “I tripped over a rug and fell”, with multiple facial bruises, and circumferential bruises on the upper arm. Assessment of financial abuse • An elder who is no longer able to afford basic items • An elder who suddenly appear at appointments with a new friend or caregiver who seems intrusive or protective (e.g. reluctant to leave the room) • Direct reports by the patient that an individual is taking or mishandling the elder’s money • Ask: “Is anyone taking or using your money without your permission?” Elder Abuse Suspicion Index (EASI) • Outpatient setting • Seniors with Mini-Mental score > 24 • 1 or more + responses on #2 to #6 suggest elder abuse Abuse assessment actions taken by clinician • Inform patient that you are making a report • Tell patient: “I am concerned about this situation and want to help. I am going to call an organization called Adult Protective Services. They will send someone to see you at home and assess the situation. We need to see if there is something we can do to prevent this from happening again.” Abuse assessment actions taken by clinician • Document injury and related history • Check patient’s injury for size, location, color and appearance, tenderness, swelling, and pattern (if present) • Note if the patient seems fearful of the caregiver • Document patient’s language about any possible abuse incidents in the patient’s own words Documentation of elder abuse • Include the patient’s and caregiver’s descriptions of the mechanism of injury • Use direct quotes when possible (e.g. “my daughter hit me with a broom handle”). • Include photographs • Include a clear, concise description of the injuries Assistance • If health system, may contact social work ―Document your follow-up ―e.g. Spoke with SW, SW will contact state. Next day: Discussed case with SW, SW stated she contacted state services • If private practice, may consult social work ―Document steps taken Cardinal signs that indicate self-neglect • Lack follow-up when they do have a physician (refuse to go) • They’ve gotten so sick that they end up in an ER, it turns out that they haven’t been to a doctor in 15 or 20 years • Usually they are disheveled • They are usually malnourished. . . . • They have untreated medical conditions even though they may have prescription medications Assessment of self neglect • Ask how the patient manages his/her daily lives (Do this for ANY geriatric client!) ―Answers can suggest incipient problems that will impair the patient’s ability to live independently • Minor difficulties in ADLs ―May predict future self-neglect in months or years • Early detection and interventions ―Treat underlying conditions ―Community-based services ―Appropriately involving family or caregivers From: Elder Abuse and Self-neglect: “I Don't Care Anything About Going to the Doctor, to Be Honest. . . . ” JAMA. 2011;306(5):532-540. doi:10.1001/jama.2011.1085 CLOX-1 test completed by Mrs O had a score of 8 out of 15, revealing substantial limitations in executive function. Date of download: 4/21/2013 Copyright © 2012 American Medical Association. All rights reserved. Clinician’s Approach When Selfneglect Is Suspected APS: adult protective services Self-neglect: Consideration for patient’s decision-making capacity • Does …….. have a right to live like this? • Under what circumstance do the medical community and society at-large have a responsibility to override an adult’s wishes? • Capacity is often NOT completely gone • The clinician is forced to make it black or white for purposes of guiding next steps • Commonly used screening testing, e.g. Mini Mental, are inadequate to determine capacity except at the extremes of the scores Responsibility of reporting elder abuse and self-neglect • Most health care professionals in the United States are mandated reporters. • The clinician should tell the patient and caregiver that a report will be made except in the unusual circumstance where there is reasonable concern that reporting might escalate a violent situation • Failure to report may lead to legal consequences ranging from monetary penalties to jail sentences What to Report • All suspected cases or incidents of a “vulnerable person” • Vulnerable: “condition in which an adult is unable to protect self from abuse, neglect or exploitation because of physical or mental impairment or advanced age” J. Blackwood When to Report • Immediately • When person required to report suspects or has reasonable cause to believe that an adult has been abused, neglected or exploited J. Blackwood How to Report • Local office of the Family Independence Agency (FIA) in county where the suspected occurrence took place ―Genesee County 760-2202 ―Locate your local reporting agency • Adult Protective Services Statewide ―1-800-996-6228 ―Verbal and/or written report J. Blackwood The Report • Telephone call • Report ―Patient name ―Description of the Abuse, Neglect, Exploitation ―Other information that may establish the cause of the Abuse, Neglect, Exploitation ―Patient age, address, name and address of guardian or who patient resides with J. Blackwood Failure to Report • Civil fine up to $500.00 per occurrence • Civil liability for the damages approximately caused by the failure to report J. Blackwood Michigan State Laws III. PUBLIC HEALTH CODE a. Mistreatment of Nursing Home Patients: MCL 333.21771 1. Nursing home employees aware of abuse or neglect must report to nursing home administrator and administrator must report to MDCH 2. Nursing home administrator may not retaliate against a patient, a patient’s representative, or an employee who makes a complaint. Michigan State Laws IV. SOCIAL WELFARE ACT a. Reporting of Suspected Abuse of Adults: MCL 400.11a 1. Health care providers, law enforcement, medical examiner employees and service providers, and employees of agencies providing health care, educational, social welfare mental health and other human service must report suspected abuse, neglect, or exploitation to the FIA. 2. Report of suspected adult abuse made by a physician is not considered a violation of any legally recognized privileged communication. b. Confidentiality of Identity of Reporter MCL 400.11c 1. Identity of person making a report shall be confidential, subject to persons consent or judicial process. Reasons why clinicians don’t report • Lack of confidence in the referral agency • Professional confidentiality • Fear of losing rapport with clients • Fear of litigation • Lack of awareness about reporting • Belief in the sanctity of the family • Desire to avoid possible court involvement • Someone else will do it J. Blackwood CAPACITY, COMPETENCE, AND INFORMED CONSENT References • Tunzi M. Can the Patient Decide? Evaluating Patient Capacity in Practice. Am Fam Physician. 2001 Jul 15;64(2):299-308. • Informed consent. http://www.amaassn.org//ama/pub/physician-resources/legaltopics/patient-physician-relationshiptopics/informed-consent.page Learning objectives • Differentiate between capacity and competency • Describe the assessment and determination of a patient’s capacity • Describe the information communicated with a patient during the informed consent process • Discuss the best practice for providing an informed consent to a patient Capacity • Definition: Clinical determination of a patient’s ability to make decisions about treatment interventions or other health care issues • Clinicians are called on to make decisions about patients’ capacity, NOT competency, which is a legal issue Competency is determined by the court. When to assess a patient’s capacity • Patients have an abrupt change in mental status ―may be caused by hypoxia, infection, medication, metabolic disturbances, an acute neurologic or psychiatric process, or other medical problem • Patients refuse recommended treatment ―when they are not willing to discuss the refusal, when the reasons for the refusal are not clear or when the refusal is based on misinformation or irrational biases When to assess a patient’s capacity • Patients consent to particularly risky or invasive treatment too hastily and without careful consideration of the risks and benefits • Patients have a known risk factor for impaired decision-making ―e.g. a chronic neurologic or psychiatric condition, a significant cultural or language barrier, an education level concern, an acknowledged fear or discomfort with institutional health care settings, or adults older than 85 years How to assess a patient’s capacity • Directed clinical interview ―History from therapists or caregivers ―Physical assessment ―Laboratory evaluation and other tests ―Possibly neuroimaging studies ―A general mental status examination Determination of a patient’s capacity • Patients has decision making capacity if they ―Understand their health condition ―Consider benefits, burdens, risks ―Weigh the consequences of treatment against their preferences and values ―Reach a decision that is consistent over time ―Communicate that decision to others Determination of a patient’s capacity • Whether a patient has medical decisionmaking capacity depends on whether the clinician believes that the patient is free of significant psychopathologic-impaired thinking and possesses sufficient abilities to make the specific decision in question Determination of a patient’s capacity • The lack of any one ability does NOT mean that a patient lacks the overall ability to make a decision ―e.g. patients with limited education, with diverse cultural backgrounds or with minimal prior experience in a medical setting may not completely understand all the alternatives to, or all the major risks of, a proposed treatment. However, they may still have enough understanding overall to make their own decisions. Capacity thresholds • Capacity depends on a sliding scale threshold that is determined based on the patient’s decision, and the specific risks and benefits of the proposed treatment. ―STEP 1: CASE SPECIFICS A. What is the risk-benefit analysis of the medical care option recommended to the patient? B. What is the patient decision? Consent or Refusal ―STEP 2: THRESHOLD DETERMINATION o Risk benefit analysis, +/- patient consent Capacity thresholds according to patient decision and risk-benefit analysis of care options Capacity ǂ Competency • Competency ―Judgments that are NOT made by physicians but by the courts ―The court’s legal “determination of competency” usually agrees with the physician’s overall “assessment of capacity” ―A legal determination of incapacity is generally limited to specified rights, whereas incompetency is (legally) associated with a loss of legal rights • Both legally and ethically, Western culture favors patient autonomy Competence • Definition: A legal designation that recognizes that persons beyond a certain age generally have the cognitive ability to negotiate certain legal tasks, such as entering into a contract or making a will. • Usually occurs at age 18 J. Blackwood Competence • Prior to the 1990’s a person could be deemed incompetent by virtue of belonging to a particular category ―Elderly ―Mentally ill ―Physical addiction • Court deems a guardian J. Blackwood Informed consent • A process of communication between a patient and clinicians that results in the patient's authorization or agreement to undergo a specific intervention • A capable patient’s legally binding to a medical decision • More than simply getting a patient to sign a written consent form Information discussed during informed consent process • Clinicians should discuss with the patient on: ―The patient's diagnosis, if known ―The nature and purpose of a proposed treatment or procedure ―The risks and benefits of a proposed treatment or procedure and the alternatives (regardless of cost or insurance) ―The risks and benefits of not receiving or undergoing a treatment or procedure • Patient should have an opportunity to ask questions Informed Consent • The process of disclosing relevant medical information is an ethical duty that requires the physician to tailor disclosures to each individual patient • Allows physician to withhold information ―If believe the patient would suffer from direct and immediate harm as a result of the disclosure • The right to make informed decisions does not mean the patient has the right to demand medically unnecessary or inappropriate care Best practice for providing the informed consent • Document the consent process on the medical record to protect yourself in litigation • A comprehensive listing will be difficult for the patient to understand and any omission from the list will likely be presumed undisclosed. • If you are using a form that contains a list, consider, with your attorney, inserting language indicating that the list is not exclusive (such as "included, but not limited to") before the list begins. How to Provide Informed Consent • Allow sufficient time to respond or discuss • Find out the reason for the refusal • Talk with patient alone • Honor the use of family decision, however, keep checking with the patient J. Blackwood Situations where informed consent does not apply • Individuals who make decisions must be legally recognized as adults in the state where treatment is given • In an emergency, if a person is unconscious and in danger of death or other serious outcome if medical care is not given right away • Decision made by the parent, guardian, or an incompetent adult may be challenged by the doctor or facility, and then the court ADVANCED DIRECTIVES, DNR, AND OTHER ETHICAL ISSUES References • Advance Directives and Do Not Resuscitate Orders familydoctor.org/familydoctor/en/healthcaremanagement/end-of-life-issues/advancedirectives-and-do-not-resuscitate-orders.html • End of life issues www.nlm.nih.gov/medlineplus/endoflifeissues .html • What Is Palliative Care? http://www.getpalliativecare.org/whatis/ Learning objectives • Describe different types of documents in the Advanced Directives, including Living Wills, Medical or health care power of attorney (POA), and Do Not Resuscitate (DNR) order. Advanced Directives (AD) • Definition: Documents written in advance of serious illness that state your choices for health care, or name someone to make those choices, if you become unable to make decisions. • The Patient Self-Determination Act of 1990 requires hospitals to inform their patients about advance directives Advanced Directives (AD) include: • Living will ―a legal document specifies the types of medical treatments and life-sustaining measures desired • Medical or health care power of attorney (POA) ―a legal document that designates an individual (health care agent or proxy) to make medical decisions • Do not resuscitate (DNR) order ―a request to not have CPR Living Wills • A written, legal document that describes the types of medical or life-sustaining treatments you would want if you were seriously ill ―e.g. mechanical breathing (respiration and ventilation), tube feeding or resuscitation • In some states, living wills may be called health care declarations or health care directives • A living will does NOT let you select someone to make decisions for you Medical or health care power of attorney (POA) • A legal document that designates an individual, i.e. your health care agent or proxy, to make medical decisions for you in the event that you're unable to do so • It is different from a power of attorney authorizing someone to make financial transactions for you Do not resuscitate (DNR) order • A request to not have cardiopulmonary resuscitation (CPR) if your heart stops or if you stop breathing. • Advance directives do NOT have to include a DNR order, and you don't have to have an advance directive to have a DNR order. • Your doctor can put a DNR order in your medical chart. End of life • From 1994 to 2012, over 126 legislative proposals in 25 states to legalize assisted suicide and euthanasia were defeated • (Non-voluntary) Euthanasia (mercy killing) ―Illegal in all countries • Involuntary euthanasia ―Murders • Assisted Suicide (voluntary euthanasia) ―Legal in Oregon and Washington End of Life: Palliation (palliative care) • Specialized medical care for people with serious illnesses • Provide patients with relief from the symptoms, pain, shortness of breath, fatigue, and stress of a serious illness, regardless of the diagnosis • The goal is to improve quality of life for both the patient and the family • Provided at home or at hospice What are they? When are they appropriate to use? What are the potential risks? RESTRAINTS Medical Restraints • Physical ―Belts, bands ―Vests ―Lapboards, Siderails ―Sheets • Chemical ―Medications • Environmental ―Alarms J. Blackwood Rationale for Using Restraints • Keep pt from pulling medical equipment • Keep pt from moving during procedures • Keep pt from falling – OOB, walking • Keep pt from sliding out of chair J. Blackwood Risks of Restraint Use • Elimination problems • Injury ―Stress: Pulling against restraint ―Constriction: Restraint wraps around pt • Immobility ―Pulmonary, Skin, DVT, Weakness • Depression • Death J. Blackwood Types of Restraints • Wrist/Ankle Strap – Soft or leather • Protective Mitt • Posey Vest • Waist Restraint • Sedatives • Bed or chair alarms J. Blackwood The Law & Restraints: • Need a physician order • New order every 24 hours • Needs to be very specific • Medical need • Patient may refuse • Must offer mobility, bathroom, water every 2 hrs J. Blackwood Other Issues Related to Restraints • Discuss with family • Off while family present (potentially) • May require informed consent of guardian • Never to be used as a form of discipline • Pt must be able to remove at will • Resident may refuse the restraint • No controlled study has indicated restraints reduce falls or fall preventable injuries. J. Blackwood