Transcript Slide 1
Scottish Clinical Genetics Forum Aberdeen Data November 2010 Zosia Miedzybrodzka SCOTTISH CLINICAL GENETICS QUALITY MARKERS • Data presented for the six months October 2009 to September 2010. Comparative data for previous year has been provided where available. 1. Access: Routine Referrals Cancer 2010 972 (53%) 2009 940 LD 107 (6%) 70 NM 99 (5%) 110 Cardiac 223 (12%) 174 Other 401 (22%) 410 624 Total 1849 * 1704 1488 2311/million* 2008 864 Waiting times 2008/2009 • Number of referrals not offered an appointment within 12 weeks (84 days) 2008 = 0 2009 =0 2010= 0 DNA and self cancellations • 2010 DNA 13%, CNA 21% • 2009 DNA= 63 (9.3%) CNA=125 (18.5%) Attendees = 476 (70.6%) • 2008 DNA=72 (10.2%) CNA=97 (13.7%) Attendees=529 (75.1%) Urgent referrals? 2. Communication • 2009 Acknowledgement sent within 2wks= 93% (2008 95%) Letters sent to referring clinician within 2wks of consultation= 65% (2008 20%) 2010- No staff to audit this data! Typing pile much smaller. 3. Patient and Carer Experience • Common patient service evaluation tool not yet available to us. • Ashgrove House exit questionnaire with GIA distributed, but not analysed • Evidence of mail shot to referring clinicians This has been done 2009. • Evidence of current availability of genetic testing criteria to patients through a website. 2010 Website up! 4. Integration 4.1 Neuromuscular Genetics Grampian patients lost to follow-up Illness other than DM Moved away Seen at clinic Did not attend Awaiting clinic Did not reply Declined clinic 5. Service delivery • Clinical staff skill mix (WTE per million population of clinical staff by skill) • 2009 • • • • Consultants: 3.5 (4.1 per million) Genetic counsellors: 7.3 (8.6 per million) Other nurses: 1 x band 6, 0.5 x band 2 Admin: secretaries Ab 5.3 +2 Inv 1.0 Clerical 1.5 • • • • 2010 Consultants: 3.0 but Catharine starts 1/12! GCs: 4.9 (1 advertised), 1 x b6, 0.5xb2 Admin: Ab 4.3 (clerical 1.5) + 1.0 Inv Acknowledgements • Heather Edmonstone • Diane Crichton 4.3 Cardiac Genetics • Proportion of referrals managed using agreed care pathways • A multidisciplinary service is provided involving geneticist and other clinicians • Number of genetic tests undertaken for probands. • 2010 2009 genetic tests for probands = 492 (2008 348) • Predictive tests for relatives= 138 (2008 106) • 2010 • 2009 Total = 634 (2008 455)