Transcript Slide 1

Public involvement in research
Lucy Simons
Public Involvement Advisor
INVOLVE
Promoting public involvement in
NHS, public health and
social care research
www.invo.org.uk
INVOLVE
National advisory group. Funded by
the Department of Health since 1996.
One of the National Institute for
Health Research Programmes
(NIHR).
Promotes active involvement
of the public in NHS, public health
and social care research
www.invo.org.uk
Research carried out ‘with’ or ‘by’ the
public rather than ‘to’, ‘about’ or ‘for’
For example:
• involvement on steering committees
• commenting on design
• as joint collaborators
We use the term ‘public’ to include
patients, service users, carers, and
representatives of people who use
services
www.invo.org.uk
The role of INVOLVE
• Influencing policy and practice
• Increasing awareness and sharing experiences of others
- website (www.invo.org.uk)
- newsletters
- database of research projects
• Giving advice and guidance
- publications
- enquiries
• Improving understanding of extent, nature and effects
of involvement
- invoNET
- Impact study
www.invo.org.uk
Why is public involvement important ?
• people who are affected by
research should have a say in what
and how research is undertaken
• it can improve the quality of the
research
• the National Institute for Health
Research (NIHR) and the
Department of Health support the
importance of public involvement
www.invo.org.uk
How are people getting
involved in research?
www.invo.org.uk
Levels of involvement
Consultation
Collaboration
www.invo.org.uk
Control
IDENTIFYING &
PRIORITISING
TOPICS
COMMISSIONING
AND MANAGING
MONITORING &
EVALUATION
IMPLEMENTATION
research
cycle
DESIGNING
UNDERTAKING
RESEARCH
DISSEMINATION
ANALYSING &
INTERPRETING
INVOLVE
November 2004
Making a difference to research
•
•
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Improving relevance of research
Improving quality of research design,
methods and findings
Supporting the communication
of research information
www.invo.org.uk
Challenges to public involvement
•Tokenism
•Finding people to get involved
•Time commitment and resources
•Ensuring accessibility
•Accessing training, mentoring and
support
•Rewarding and reimbursing
involved people
Group exercises
• Research scenario
• What would be the purpose of involving service
users in this research?
• How would a service user perspective help in
developing this proposal?
•How can service users be involved to achieve
these aims?
•What considerations are there to ensure it is
successful?
www.invo.org.uk
Help and support
INVOLVE
• website (www.invo.org.uk)
• newsletter
• research project database
• publications
• enquiries
• building an evidence / knowledge base
Research Design Services
• public involvement leads
• remit to advise on public involvement
INVOLVE
Website: www.invo.org.uk
Email:
[email protected]
Telephone: 023 8065 1088