Transcript Slide 1
Introduction • Tourette Scotland is a small voluntary organisation • Mainly user led but professional advisors, and networks • Aims and Objectives- Mainly Training Information and Support Tourette Scotland Tourette Syndrome What is it? Tourette Syndrome • Have both motor (bodily) and vocal tics which have been present for a year or more. • Wax and wane in nature • Onset in childhood but is lifelong condition • Not emotional in origin TS Statistics • 1 in 100 people (Stern 2005) • Widely reported in ethnic groups • Diagnosed more commonly in boys than in girls (1.5-3 times more common) • Significantly under-diagnosed at present Causes of TS • Known to be hereditary/genetic link • PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections • Environmental Factors can exacerbate symptoms What is a Tic? • Motor Tics – Simple Eye blinking Head jerking Sticking tongue out Abdominal tensing Eye rolling Perineal tensing Facial grimacing Stretching any part Shoulder shrugging of the body What is a Tic? Motor Tics – Complex Whole body jerking Skipping Kissing hand/others Banging objects Smelling objects Hopping/Squatting Biting tongue/cheek Flapping hands Licking self/others Hitting self What is a Tic? Vocal Tics – Simple Throat clearing Grunting Animal noises Barking Coughing Spitting Squeaking Hissing Belching Whistling/Humming Other Symptoms of TS • • • • • • Echolalia Palalalia Coprolalia Copropraxia Stuttering Apraxia Associated Disorders • OCD – Obsessive Compulsive Disorder (approx 75%) • ADHD-Attention Deficit Hyperactive Disorder (approx 60%) • SLD – Specific Learning Difficulties Associated Disorders • Developmental Coordination Disorder • Sensory Modulation Difficulties • Autistic Spectrum Disorder Is It TS or Naughtiness? • Neurological condition and part of the individual personality. • Suggestible • Remember the tics are involuntary • Boundaries still need to be set whilst making allowances Controlling of tics • Why some can and some can’t some of the time! • Suppression can lead to outbursts and other problems (Rage Attacks) • If highlight/confront (suggestibility) then can make symptoms worse Lesser Know aspect of TS • • • • • • Polydipsia Trichotillomania Eating difficulties common Anxiety Depression Pain particularly in joints Treatments Available • • • • • Medication (side effects?) Habit Reversal Therapy Alternative Therapies Cognitive Behavioural Treatment Acceptance and understanding Q & A Session • Any Questions? Summary of Discussion