Transcript PowerPoint Template (English Version)

New Data Strategy on People with
Disabilities
 A Community Perspective
– Presented by Laurie Beachell
– CCD National Coordinator
– November, 2011
– Note: This presentation uses information made public by HRSDC and
materials from previous consults on data, most notably the work of Cam
Crawford. I co-chair the Technical Advisory Group on Data Collection
along with Christian Dea of HRSDC.
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Purpose of the presentation
 Highlight from community perspective key
issues re: HRDSC new data collection strategy
 Identify community data collection needs
For discussion only
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Context for Change Identified by HRSDC
 HRSDC is modernizing its data portfolio to:
– better reflect current and emerging information needs of
Canadians
– have a more cost-effective, responsive and flexible data collection
strategy
– improve data access and dissemination
 The modernization of HRSDC’s data portfolio provided
an opportunity to
– integrate the monitoring of PWD into the mainstream by collecting
information on PWD alongside the Canadian population
– address limitations of previous data approach in terms of
frequency, flexibility, timeliness and efficiency
 The new data strategy on PWD, endorsed by the
Minister in April 2010, is a Departmental priority
For discussion only
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Key Directions
 Data requirements and needs identified through previous
consultations guided the development of the new data strategy
on PWD
 Move to a new citizen-centered information system that will:
– Provide information more frequently
– Maximize utilization of existing information, specifically
• Statistics Canada surveys including the new National Household Survey
• Program/tax information
– Better integrate different sources of information
• StatCan surveys and program/tax data at national level
• Surveys and program data at provincial and territorial level
• New analytical tools to complement the existing information
– Make the information more easily accessible and user-friendly
 Continue to collect key PWD information
– Type of disability and level of severity
– Barriers/supports
– Key labour market, learning, health and social outcomes
For discussion only
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HRSDC Three Prong Approach
PWD Integrated Information Platform
• New interface to facilitate data access
• Integrated data infrastructure
• New analytical tool to facilitate monitoring and analysis (e.g. micro-simulation, reports, indicators, research)
• New dissemination strategy
Program/Tax Data
Labour Market e.g.
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LM participation
Education
Income
Aids and devices
Barriers & enablers
Health e.g.
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Health Status
Health care
Stress
Aids and devices
Barriers & enablers
For discussion only
Social Aspects, e.g.
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Family
Caregiving
Social support
Aids and devices
Barriers & enablers
Data
Instruments
•Labour Force Survey (working age adults)
• Canadian Community Health Survey (ages 12 +)
•Survey of Labour and Income Dynamics and General
Social Survey (ages 15+)
•National Household Survey (all age groups)
Information
• Consistent information from existing StatCan surveys
on Canadian population, including PWD, at the
national, provincial and territorial levels
• New PWD identification questions measuring type and
severity of disability
Goal
Survey Data
Better use of existing information from program and tax
data on disability program beneficiaries at detailed
geographic level
• Currently exploring Tax data (Disability Tax Credit) and
Canadian Pension Plan Disability (CPPD) data
• Could extend to other programs
• Demographic characteristics
• Type of disability
• Benefits and income
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Mapping Data Needs into the New Data Strategy
New Data Strategy
Data Needs
Survey Data
New
Program Survey on
Canadian
Labour National General
Information & Tax
Labour &
Community
Force Household Social
Income
Health
Platform
Data
Survey Survey Survey
Dynamics
Survey
Dissemination
 More timely and easily accessible data and
information
Accessible
Annual
Annual
2 to 3
years
5 years
2 to 5
years
Annual
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Content
 Type of disability and level of severity
 Financial resources & cost of disability,
income levels and income mobility
 Employment, education training, and
literacy
 Adequate housing, mobility and
transportation
 Health conditions, stress, caregiving &
receiving, medications, social support and
satisfaction with life
 Identification of formal & informal disability
supports, unmet needs and barrier in
domains of daily living
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Scope
 Harmonizing basic questions across
surveys
 Improve coverage (e.g. geography and
population)
Same definition of people with disabilities across
surveys
Detailed
geography
National
Provincial
Detailed
geography
National
Provincial
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Benefits of New Data Strategy Identified by HRSDC
 The new data strategy offers many benefits
– More efficient use of existing resources
– More responsive, flexible and frequent information
– Increased access to data
– Translates data into user-friendly information
– Enables comparisons with the general population
– Consistent with international developments (e.g. USA,
UK, Australia)
For discussion only
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HRSDC Considerations
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HRSDC
Some considerations need to be taken into account in implementation of
the strategy
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Conceptual framework
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Scope
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Target population and sampling
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Provinces and territories, children, young adults and Aboriginals, residents of
institutions
Proxy response
Multiple data sources and variance in disability rates
Content
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Definition of disability
Historical comparability
New questions to develop to meet other data needs: e.g.
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Cause and duration of disability
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Aids and devices
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Barriers and enablers
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Other emerging needs
Dissemination
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Documentation
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Coverage varies across programs, use of multiple data sources
Privacy and access to data and information
For discussion only
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Core HRSDC Disability Requirements
 Core HRSDC data needs fall under three main categories:
– Legislative requirements: e.g. Employment Equity Act, Canada Pension Plan
Act, Canada Disability Savings Act
– Regulatory, policy and program reporting and directions: e.g. Canada
Pension Plan-Disability Program, Labor Market Agreements for People with
Disabilities, Opportunities Fund for Persons with Disabilities, Canada Student
Loans, Canada Disability Savings Program, etc.
– International obligations & commitments: e.g. Human rights treaty reporting
such as the United Nations Convention on the Rights of Persons with
Disabilities, Organization for Economic Co-operation and Development
studies
 To meet its core disability data needs, HRSDC requires:
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Time-series comparability
Comparability with information about the non-disabled population
Information about Canadians of all ages, including children
Information about type and severity of disability
Information for all provinces/territories
For discussion only
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Community Perspective on Key Issues
Program Data operate from different disability definitions.
Definitions of disability within program areas are more about eligibility
than the defining of disability
New data will not be comparable to PALS
Sample size will likely be too small to give reliable provincial data.
Integrated models may create new information but depth of survey
limited because survey question time is limited.
Issues of use of proxies versus interviewing persons with disabilities.
Access to information may be improved and information may be more
useable by community.
Data Groups not adequately represented- children, aboriginal people,
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Community Data Needs/Priorities
 Basic profile
 Employment
 Income
 Disability Supports
 Citizenship and social inclusion
For discussion only
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Basic Profile
 How many Canadians have disabilities, what
kinds ?
 Prevalence and kind by province and territory
 Severity
 Age, gender, visible minority, Aboriginal person,
immigrant status, family living arrangements
 Trajectory of disability
 Others affected by disability
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Employment
 How well are pwd’s integrated into paid labour
force?
– Labour forces status,
– Frequency and duration of employment
– Distribution of occupations and industries
– Profile of people with stable attachment to
employment
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Employment continued
 Barriers to employment
 Training, kind, results, barriers to
 Supports needed and supports provided
 % self employed
 Extent of voluntary work
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Income
 What is the situation of people with disabilities?
– Level of income, by income source and overall
– Income adequacy –LICO
– Extent of reliance on charities-food banks, etc.
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Disability Supports
 What disability supports do people need and what
are they getting?
– Pattern of utilizations
– Providers, family, agency, gov’t.
– Gap between need and what is received
– Reasons why people don’t receive
– Most difficult to access supports.
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Citizenship and Inclusion
 Health
 Housing
 Personal safety
 Liberty and self-determination
 Freedom of movement
 Equal recognition and treatment under the law
 Property ownership
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Ongoing Considerations
 Sample Size sufficient for breakdowns by
province and territory.
 Data on Aboriginal Peoples
 Comparability of data
 Timely and accessible
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