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Contraceptive Sterilization in Low Development Settings: Case study in Uganda Nalwadda Gorrette (RN, BscN, Msc PRH) JHU Forgaty African Bioethics program Email: [email protected] Presented at Faith-Based Organizations as Pioneers and Partners in Health Systems Development, May 31, 2005, Omni Shoreham Hotel, Washington DC JHSPH Background Excessive fertility is a pressing matter of social, public and political concern in low development settings, Uganda in particular Historical role of the faith and values in health care Faith influence medical/fertility outcomes NB Faith is optional- welcome to join or not JHSPH Uganda health indicators Population growth rate: 3.4% Total fertility rate: 7 children per woman IMR: 91/1000 LB Maternal Mortality: Rate 506/100,000 LB Skilled attendance at delivery:38% Population below poverty line:38% CPR: modern 18%; Natural 5% Causes maternal deaths: appalling health status of women, absence of emergency obstetric care in the event of complications of pregnancy, low contraceptiv use UDHS 2000/1 JHSPH Need for contraception Prevention of fertility is so important to: Break patterns excessive and unwanted fertility Address: falling health indicators disturbingly high child and maternal mortality an overall rise of extreme poverty continuing food insecurity growing numbers of people living in slums JHSPH Why Contraceptive sterilization? Permanent/effective without continual expense, effort or motivation 0.4% failure rate compared to natural methods 20% failure rate Window of opportunity JHSPH Case study –part I Mrs. Mukasa a 39 year old, high parity (6 children). She lives in a rural village, no employment, illiterate and malnourished. She did not want to have more children Bad last experience- hemorrhage 6th child Lack of resources to take care of other children She confided in a member of the clergy about possibility of surgical sterilization JHSPH Case study cont’ Clergy member retaliated church position that sterilization act is intrinsically evil and is always a mortal sin. Faith is optional- welcome to join or not Clergy member advised her to use natural methods of contraception and control her sexual appetite Faith and religious values were very important to Mrs. Mukasa JHSPH What do we know? Sterilization remains absolutely forbidden to the doctrine of Mrs. Mukasa’s faith Disagreement about contraceptive approaches but not benefits Religious bioethics is based on faith and in reason mainly on: ethics of human reproduction and end-of-life decisions duty to preserve life and the limits of that duty social justice right to health care JHSPH Issues Choices: woman's ability to make plausible choice Individual need vs. faith community position Faith influence on decision making JHSPH Case study part II Mrs. Mukasa become pregnant again for 7th time She was rushed to government hospital after she developed complications prolonged and difficulty delivery at a TBA. She was delivered by C-section Considering her fertility history, the obstetrician performed surgical sterilization procedure with out consulting her- while on the delivery table JHSPH Ethical Issues Physicians did not acknowledge or respect choice of poor patient and her beliefs Clash between autonomy and beneficence Autonomy – demands that the patient is informed, and free from interference and control by others in order to act intentionally Beneficence – requires physicians to take positive actions for the benefit and in the best interest of patients JHSPH Ethical issues cont’ Paternalism: Obstetrician action showed total lack of regard for the mother's feelings Risk benefit assessment Value to patient Value to individual/family/nation Alternatives JHSPH Justice issues Equitable distribution of burdens and benefits Ethical obligation of obstetrician Social justice Fair equality of opportunities Distributive justice JHSPH Paradox Removing childbearing capability raises moral, ethical, and legal questions Surgical sterilization offers prospects for improved health Reasonable decision on fertility are based on logistics, health outcome, burden & cost Financial and non financial conflict of interest for faithful-individual needs vs. religious/societal Exceptional circumstances: special contraceptive needs for poor- human rights lens JHSPH Opponents claim Self-determination: the dignity of the human person are compatible with faith and health care ethics Physicians practicing evidence based malpractice? Best interest of woman purely speculative Possible social, religious, or marital conflict Risk distortion (patient and provider) Patient and family decide Autonomy, informed consent JHSPH Opponents claim cont’ Individual’s human dignity and right to bodily integrity overrides therapeutic need © 2001 H. Kakande/DISH II Project JHSPH Proponents Decision making: Vulnerable women not completely autonomous Medical utility Choices of woman Paternalism approach is consequential Financial justification vs. ethical justification Medical need: Ineffective natural contraceptionpartner dependent Justice in context of poverty would demand that women access contraception JHSPH Ethical questions Should obstetricians permit women with more than 6 children to undergo consequences of unwanted birth? therapeutic need or necessity How will values change? Decision making process taking into account proven technology and common good Which way do we go? Prophylactics interventions vs. Values How to integrate faith in prudent innovations to address true social, economic, political roots of problems? JHSPH Summary Conflict over medical and religious decisions on contraception issues Need for dialogue Faith mainly address spiritual issues but social, economical and medical issues may override in decision making Couples who tend to have completed their family size, and in many cases already have more children could benefit from contraceptive sterilization JHSPH Our challenge... Integrating the Sacred and the Secular bioethical concepts Harmonization of contraceptive technology, faith and values in a mutually beneficial engagement JHSPH Summary Sterilization is the most efficient birth control available. Window of hope for poor burdened by excessive fertility We can all help JHSPH References Beauchamp T. & Childress J. Principles of Biomedical Ethics. 4th Edition. Oxford University Press. 2001 Lo Bernard. “Chapter 41: Ethical Issues in Obstetrics and Gynecology.” Resolving Ethical Dilemmas – A Guide for Clinicians, 2000, Lippincott Williams & Wilkins. JHSPH