Transcript Iowa Cancer Registry

Or…maybe I should have paid more attention in that stats class!
Kellee Thorburn McCrory, MPH
National Resource Center for
Family Centered Practice
University of Iowa
Brad McDowell, PhD
Holden Comprehensive Cancer Center
University of Iowa
Learning Objectives
Knowledge of common sources for
valid and reliable cancer–related data
Understanding of key statistical
concepts
State Health Registry of Iowa (SHRI)
Iowa Cancer Registry
 Performs cancer surveillance across the entire state of Iowa
 Population-based cancer registry - documents every cancer case in Iowa
 Supported by the NCI since 1973
 Housed at the University of Iowa
 Web address: http://www.public-health.uiowa.edu/shri/ (select Iowa
Cancer Data)
How do they do it? Cancer patient data are collected from hospitals,
pathology laboratories, cancer treatment centers, and Iowa death
certificates.
The State Health Registry (SHRI) also collects data from targeted
physicians that send their pathology specimens to out-of-state laboratories.
Data are collected by 21 field representatives who are responsible for case
finding in their coverage areas
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SEER
Registry
 The SEER Program of the National Cancer Institute works
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to provide information on cancer statistics in an effort to
reduce the burden of cancer among the U.S. population
SEER collects data on cancer cases from various locations
and sources throughout the United States.
Data collection began in 1973 with a limited amount of
registries and continues to expand to include even more
areas and demographics today.
There are currently 17 SEER sites and this represents 28% of
the U.S. population
Web address: http://seer.cancer.gov/
*SEER: Surveillance, Epidemiology, and End Results
The Iowa Health Fact Book
 Just released the 2011 version of the factbook
 Biennial publication produced through a collaborative
effort between The University of Iowa College of Public
Health and the Iowa Department of Public Health.
 Info on each of Iowa’s 99 counties and includes data on:
o disease incidence and mortality,
o health and social behaviors, health resources,
o and environmental factors.
 http://www.public-health.uiowa.edu/factbook/
National Cancer Institute (NCI)
Good for :
 common cancer site information
 all cancer type information
 search for clinical trials
 research and funding opportunities, and;
 research and funding information
 State cancer profiles
(http://statecancerprofiles.cancer.gov/)
 http://www.cancer.gov/
Cancer Control P.L.A.N.E.T.
 The Cancer Control P.L.A.N.E.T. portal provides access to
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Web-based resources that can assist in:
Assessing the cancer and/or risk factor burden within a given
state.
Identifying potential partner organizations that may already
be working with high-risk populations.
Understanding the current research findings and
recommendations.
Accessing and downloading evidence-based programs and
products.
Finding guidelines for planning and evaluation.
 http://cancercontrolplanet.cancer.gov/
Iowa Cancer maps
 You can view rates of incidence, late-stage, and
mortality for:
 breast,
 colorectal,
 lung and prostate cancers.
 Some of these maps are also available for cervical and
Non-Hodgkin's Lymphoma cancers
 Data is from 2000-2005; there are currently new maps in
production for colorectal cancer.
 http://www.uiowa.edu/iowacancermaps
American Cancer Society (ACS)
 Access to local resources
 Wide variety of resources and data about cancer
 Easy to use
 Facts and Figures Publication
 http://www.cancer.org
Interpreting Cancer Data
Making Comparisons
Statistical Significance
p < .05
Relative Rate Ratios
Data Suppression
Other sites you might find
useful
These sites aggregate data from other sites or
sources
CDC National Comprehensive Cancer
Control Program
Comprehensive cancer control (CCC) is a process through
Which communities and partner organizations pool resources
to reduce the burden of cancer. These combined efforts help
to:
 Reduce cancer risk.
 Find cancers earlier.
 Improve treatments.
 Increase the number of people who survive cancer.
 Good for toolkits; finding out what other states are doing
around cancer control
 http://www.cdc.gov/cancer/ncccp/
Iowa Cancer Consortium
 Your one-stop site for everything Iowa!
 Access to free cancer educational materials
 Interactive “resources by county” map
 Up-to-date information about the Iowa Cancer
Consortium and its activities.
 http://www.canceriowa.org/