Transcript Document

Surveillance, Epidemiology, and
End Results (SEER) Program
http://seer.cancer.gov/
Ben Hankey: [email protected]
SEER Program – Geographic Coverage
Current SEER
Expanded SEER*
(*also part of CDC-NPCR)
CDC-NPCR with
embedded SEER Area
CDC-NPCR
Seattle/
Puget Sound
Metropolitan
Detroit
Connecticut
IA
San Francisco/
Oakland
San Jose/
Monterey
UT
CA
Los Angeles
KY
Atlanta
NM
SEER: AZ Am. Ind.
CDC: All of AZ
SEER: AK Native
CDC: All of AK
New Jersey
Hawaii
LA
SEER Program
- Population
Coverage
Population
Coverage
Current SEER and Expanded SEER
(sources: poverty and rural data from 1990 Census; population sizes from 2000 Census)
Current SEER
Expanded SEER
4.0
Below Poverty
8.0
3.7
Rural
9.6
4.1
African American
7.8
7.7
Total Hispanic
Non-Mexican Hispanic
14.3
2.7
Asian
4.7
3.6
5.5
0.2
0.3
0.8
Amer Ind, Esk, Aleut *
1.1
Nat. Hawaiian & Pac. Is.
25.0
White
0.0
40.2
10.0
20.0
30.0
40.0
50.0
Population Size (Millions)
* Includes American Indian, Eskimo, Aleut populations in 11 SEER areas, Alaska, and Arizona. All other population sizes are based on
the 11 SEER areas.
SEER
Program
- Population
Coverage
Special
Population
Coverage (Percents)
Including Expanded SEER
African American
23
Total Hispanic
40
Non-Mexican Hispanic
32
Asian
53
Nat. Hawaiian & Pac. Is.
70
Amer Ind, Esk, Aleut
45
0
20
40
60
Percent
80
100
SEER Program

Including expansion registries, SEER
covers 26% of the total US population
SEER Program – Quality Control

Quantitative measures of data quality,
completeness, and registry performance
 Goals and standards for data quality
SEER Program – Uses of SEER Data

Descriptive Studies
– Reports

WEB access to cancer statistics
– Hypothesis generation

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Trends in rates
High/low rates in pop subgroups
– Race/SES/geography
– Impact of cancer control interventions

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Mammography/PSA
Assessment of efficacy
SEER Program – Uses of SEER Data

Patient survival studies
– Identification of prognostic factors
– Validity of staging systems
– Demographic differences
– Treatment issues
 Clinical trials
SEER Program – Uses of SEER Data

Linkage to other databases
– Vital status
– CMS
– Cohorts
– Risk factors including environmental exposures
 Appropriate time lag
 Assumptions
SEER Program – Uses of SEER Registries

Rapid Response Surveillance Studies
– Patient interviews
– Biological material

Discard Repositories
– Statistical methods
– Surveys
– Linkage with other databases
– Patterns of care

Diffusion of treatments
SEER Program – RRSS 2003

Rapid Response Surveillance Studies to be funded this year
–
Estimating Attributable Risk For Immediately Modifiable Breast Cancer Risk Factors Using Surveillance Data
–
Follow-Up Care Use By Survivors (Focus)

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–
Geographic And Temporal Variation In Prevalence Of Established Breast Cancer Risk Factors, 1988-1999

–
Weight, Physical Activity, Diet & BC Prognosis (HEAL)
–
Does Use Of Alternative Medicine Delay Treatment Of Head And Neck Cancer
–
Impact Of Racial Differences In Health Care Usage, Socioeconomic Status And Co-Morbidity On Prostate Cancer
Progression/Recurrence And Survival
–
Prognostic Value Of Genomic Instability In Colon Cancer
–
Race, Socioeconomic Position, Immigration And Neighborhood Effects On Cancer SEER Cancer Registries
–
Reducing Reporting Delay And Reporting Error In Melanoma Surveillance
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Use Of State Motor Vehicle Records To Evaluate Options For Default Geocoding Of Patient Address At Diagnosis
–
Patterns Of Care Study - Diagnosis Year 2002 - Fiscal Year 2003
–
Prostate Cancer Outcomes Study
–
Assessing the Utility of Medicare Claims to Identify Cancer Recurrence
–
Web-Based Training for Cancer Registration and Surveillance
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SEER Program – Publications

SEER bibliography on WEB
– 4,235 citations
 3,521 in scientific journals
Surveillance Research – Statistical Methods

Cancer Control Practices and their Effect on the Cancer Burden.

Cancer Progress Measures.

Solutions for Quantitative Problems in Cancer Surveillance and Control.

Geographic Information Systems, Spatial Analysis, and Data Visualization.

Program Evaluation, Meta-Analysis and Outcomes Research.

Survey Methodology, Design & Analysis.

Population Risk Assessment Methodology.

General Statistical Methodology
Methods and Software for Populationbased Cancer Statistics
http://srab.cancer.gov/software/
Cancer Control – Development of Tools

PLANET (Plan, Link, Act, Network with
Evidence-based Tools)
– http://cancercontrolplanet.cancer.gov/index.html
– State Cancer Profiles
 http://statecancerprofiles.cancer.gov/
– Collaborative effort with CDC
– Utilization of advances in presentation graphics
and statistical methods
SEER Program – Population Problems

Census Bureau
– Refusal to release population estimates at census
tract level because of confidentiality concerns

Pressure from outside organizations on NCI
to provide cancer statistics on racial groups