Transcript Pass It On Center for Demonstrations of AT Reuse Grantees

Pass It On Center for
Demonstrations of AT
Reuse Grantees
Data Collection Systems and
Outcomes
May 25, 2007
Carla Walker, OTR/L Program Director
Kerri Morgan, OTR/L Principal Investigator
AT Reutilization Program for
Independent Living
Program Staffing
 Program Director
 Staff Occupational
Therapist
 Distribution Coordinator
 Repair Technician
 Principal
Investigator
 Statistician
 Data Manager
Research
Programs
& Services
Collaborations
 Primary: 4 Regional Independent Living
Centers and 1 International Organization
 Secondary: State Programs, Community
Organizations, Rehabilitation Facilities
AT Reutilization Program for
Independent Living
 Purpose To increase access to assistive
technology devices and services for people
with disabilities in the St. Louis metropolitan
area
Grant Activities
 Collect, sanitize, evaluate, repair, and
distribute reutilized assistive technology,
ensuring proper fit to person
 Devices currently include:
 Mobility devices
 Positioning aids
 Recreational devices
 Exercise equipment
 Daily living aids
Grant Activities
 Address education and outreach needs,
clinical service processes, build a regional
network of community collaborators
 Expand types of Reutilized AT
 Seek Self-Sustainability
Types of Data Collected
 Inventory Data
 devices donated, sanitized, evaluated repaired,
distributed
 Consumer Data
 Demographics
 Clinical Evaluation/Training
 Longitudinal Data (outcomes)
Inventory Data Collected
 Equipment Donations
 Donor demographics (i.e. name,
address, phone number etc.)
 Type of equipment being donated
 Sanitization
 Cleaning Checklist
 Disinfected
 Cover washed
 Axles cleaned
Inventory Data – Equipment
Evaluation
14 Point Check
 Tips/grips
 Rear tires
 Anti-tippers
 Wheel locks
 Push button
 Caster tires
 Bearings
 Front Riggings
 Upholstery
 Axles/Axle Plates
 Positioning devices
 Arm Rests
 Manual Tilt/Recline
 Cushion/Back
Consumer Data Collected
 Demographic information on recipient (i.e.
address, phone number, Medicaid recipient)
 Fit to person/Clinical Evaluation
 What type of mobility device, if any, do they use now?
 What device is the person interested in and what are they
planning to use the device for?
 What is the person’s weight, height and diagnosis?
 Reported seat width and depth/Measurement of seat
width and depth
 How will the device fit into their environment (vehicle,
home, caregiver, and special considerations)
 Payment plan established or donation
Consumer Data Collected
 Training
 How to use the device (i.e. turn on/off,
tilt/recline, move arm/leg rests,
disengage motors, wheel locks,
height/length adjustment etc.)
 How to charge the device
 How to fold or break down the device for
storage or transportation
 How to clean and care for the device
 Safety with the device
Layout
Skills Course
 Includes
 Curb Cuts
 Stairs
 Ramps
 Curbs
 Carpet
 Gravel
Ramp
1:12
Stairs
Ramp
1:20
3” curb
Potholes
Turning Radius
Uses of Skills Course for
Reutilized or New AT
 Evaluation of Skills
 Training of Skills
 Demo equipment (vendor loans or
reutilized)
 Modify/adjust equipment
Ramp With and Without
Training
National Task Force Topics:
Jeremy Buzzell, Office of Special Education
and Rehabilitation Services
Atlanta GA, May 8-9, 2007
 “Appropriate Re-use”: safe for consumers,
results in positive outcomes for consumers,
and is environmental friendly
 “Effective Re-use”: meets needs of
consumers, cost-savings, sustainable, positive
or neutral effect on AT field
 “Benefits of Re-use to Consumers": receipt of
AT, cost savings, and clinical outcomes
Next Steps: Beyond Outputs
to Outcomes
 Expand Clinical Services
 skills training & evaluation for AT-Reutilization
 Implementing outcome measure for
AT-Reutilization
Outcomes
WHAT ARE OUTCOMES? WHY OUTCOMES?
 Measurable
 Abandonment
 Used for Program Evaluation  Safety
and Continued Quality
Assurance/Improvement
 Indicators of whether the
effects of the program are
what was intended
(i.e.. improved community
participation, independent
living)
 Effectiveness
 Appropriateness
 Measure Impact on
QOL/Participation
 Consumer Feedback
Steps in Developing Outcome
Measures of Participation
 Interviews
 Focus Groups
 Pilot Telephone
Interviews
 Mailings
 Internal Consistency &
Test/Retest reliability
Funded through Centers of Disease Control and Prevention and
National Institute on Disability and Rehabilitation Research
Developed by: David B. Gray Ph.D. and Holly Hollingsworth, Ph.D.
Previous Uses of Outcomes
 Personal Assistance Services (NIDRR)
 Evaluation of CDPAS program
 Mobility devices (NIDRR)
 Measurement of participation differences
among individuals using power & manual
wheelchairs
 Fitness & Exercise (MFH)
 Participation and health changes related to
wellness and exercise programs
 Employment (NIDRR)
 Evaluation of individuals with disabilities that are
employed
PARTS
Purpose: Measurement of an individual's participation
in major life activities
Format: Paper and Computer based. Web accessible
20 activities, approximately 20 minutes
Output: Scoring of the PARTS consists of an overall
participation score, a participation score for each of the
six domains and component scores for temporal,
evaluative, health-related limitations and environmental
support domains.
PARTS Participation Domains:
1. Self Care
• Dressing
• Bathing
• Meals
• Bladder Care
• Bowel Care
3. Domestic Life
• Work Inside Home
• Exterior maintenance
5. Major Life Areas
Domain
• Employment
• Volunteering
• Managing Money
2. Mobility
• Moving Inside Home
• Leaving Home
• Taking Vacation
4. Interpersonal Interactions
and Relationships
• Parenting
• Intimacy
6. Community, Social &
Civic Life Domain
• Community Activities
• Religious Activities
• Active Recreation
• Leisure
• Socializing
Participation as Complex Construct
PARTICIPATION
Temporal:
Time Taken
Frequency
Limitations:
Health Related
Evaluative:
Importance
Choice
Satisfaction
Support:
Assistance from
Others
Assistive
Technology
3.00
Discrepancy between Importance and Satisfaction
High
Choice
Satisfaction
Importance
2.50
Moderate
2.00
1.50
Low
1.00
Leaving Your
Residence
Leisure Activities
Active Recreation
Employment
Low
Moderate
High
Personal Assistance and Assistive Technology Used
in Participation: Social Activities
Communications
Socializing
Personal Assistance
Leisure Activities
Religious Activities
Assistive Technology
Next Steps:
Outcome Measure Implementation
 Focus Groups: Recipients of Re-utilized Equipment
evaluate proposed measure domains (self-care,
mobility, domestic life, interpersonal
interactions/relationships, community, social & civic
life, other)
 Program Evaluation/Proposed areas for
improvement
 Determine Longitudinal Design
 Provide Access to Outcome Measure for ATReutilization to other programs
Questions?
Thank-You!
Contact Information
 [email protected]
 [email protected]