Transcript No Slide Title

Impact – enabling short breaks for disabled children
Short Breaks and Personalisation: Policy and Practice
Thematic Workshop 1
Revised November 2012
Personalisation workshop 1
What we hope to achieve
Participants should:
• Understand the policy context and how we have arrived at the current
position
• Have assessed the readiness of their organisation to take
personalisation forward
• Have an understanding of person centred planning and support planning
• Understand how personalisation can impact on families and local
authorities (Providers are covered in a separate session)
• Have identified next steps in the personalisation process.
Agenda for the morning session
• A quick quiz - definitions and the law
• Some background - the policy context
• The experience of implementing a personalised service
• How prepared is your area for personalisation?
What is personalisation?
• “The process by which state provided services can be adapted to
suit you.
• In social care that means everyone having choice and control over
the shape of their support along with a greater emphasis on
prevention and early intervention”
Department of Health
How did we get here?
• Disabled people’s movement, especially the Independent Living
Movement in the 1980s and 90’s fought for direct payments
• The Woodlands Group (1976)
• Direct payments legislation introduced (The Community Care - Direct
Payments - Act 1996)
• In Control Phase 1 2003-2005, Taking Control and Staying in Control
• Improving Life Chances for Disabled People (2005)
• D of H Adult Individual Budget Pilot Project 2005-2007 – IBSEN report
How did we get here? Part 2
• Putting People First 2007
• Lord Darzi – NHS review – recommended personalised approach in
healthcare 2008
• Personal Health Budget Pilot. Pilot started March 2009
• Children’s IB Pilot 2009-2012
• Special Educational Needs Green Paper 2010
Direct payments
• Introduced by the Carers and Disabled Children’s Act 2000
• The current law concerning direct payments for children can be found in
section 17A Children Act 1989, this clause was inserted by the Health
and Social Care Act 2011
• This legislation gives local authorities the power to offer a direct payment
as long it continues to safeguard and promote the welfare of children.
Budget Holding Lead Professional (BHLP)
• The approach was established following the publication Support for
Parents: The Best Start for Children, which made a commitment to
support the increased personalisation of services through the piloting of
BHLPs
• Based around the Team Around the Child (TAC) model
• It involved the allocation of low level funding to support the development
of a child via: assessment; development of a support plan; costing and
purchasing of services by the BHLP
Personal budgets
Vision for Adult Social Care: Capable Communities and
active citizens 2010
Every adult in receipt of social care funding will have the
opportunity to have a personal budget by 2013.
Putting People First 2007
A personal budget then only referred
to money from local authorities.
Now it can involve more than one
source of money.
What will change?
Information,
advice
and advocacy
for all
Neighbours
Volunteers
Early intervention
Low level services
Self-assessment
Self-directed support
Personal budgets
Personal Health Budgets Pilot Project
The High Quality Care for All: NHS Next Stage
Review
Final Report (2008)
“ Over the next two years, every one of the 15 million people with one or
more long term conditions should be offered a personalised care plan,
developed, agreed and regularly reviewed with a named lead professional
from among the team of staff who help manage their care.”
Start of the personal health budget pilots, as a way of giving patients
greater control over the services they receive and greater choice over the
providers from which they receive services.
White Paper Liberating the NHS 2010
“Continuing and developing the personal health budget pilot
programme, both extending existing sites and encouraging proposals
for additional sites in 2011/12. The learning from the pilot programme
will inform wider rollout in 2012. Personal budgets will allow greater
integration between health and social care at the level of the
individual and give people more choice and control over their care. “
People receiving continuing healthcare support from the NHS will
have the right to ask for a personal health budget, by April 2014
(subject to the evaluation).
Rt Hon Andrew Lansley M.P. Sec of State for Health, Oct 2011
Key Findings from Children’s Individual Budget Pilo
The over-arching conclusion appears to be that while the pilots have
achieved much and demonstrated what can be done (there were many
successes), there is still a need to refine some elements of the delivery
process.
The Main Lessons
• The requirement of dedicated resources
• The willingness of a range of families to engage with IBs
• The challenges of resource allocation
• The importance of support planning
• The challenge of engaging health and education services
• practice is less developed around engaging young people
The Impact on Families
The survey and focus group evidence from parents clearly demonstrates
an increased sense of choice and control after the pilot.
In particular:
• Improved access to social care services
• A shift in the types of services that they use
• Greater satisfaction with the services they received
• That these findings occur independently of increases in a family’s budget
allocation
Children’s individual budget pilots
The IB pilots were awarded an additional
year of funding to explore how education
and health based funding could be
incorporated into an Individual Budget for
families with disabled children during
2011-12.
A cautionary note.....
• It must be remembered participation was optional and so pilots worked
with those that were willing but working with a wider, potentially less
willing group of parents requires further testing.
• The pilot sites all faced difficulties in generating change outside their
own service areas.
• Cross sector working is more likely to be delivered if there is a clear
expectation of what should be offered.
• Resource allocation is likely to remain a prominent issue
SEN Green Paper - Support and aspiration
Furthered its commitment to the personalisation of
services for families with disabled children and
now the draft legislation
• Idea of a single personalised plan from early childhood to old age
• Give parents the option of a personal budget by 2014
• Recruit a set of pathfinders to test the best ways to provide a
personal budget to children with SEN and/or disabilities, linked to the
new plan, building on findings from the current IB pilots and the
Getting a Life programme.
The continuing move to Personalisation in the d
of the provision for children and young people w
• Person centred planning underpins the idea of personalisation and the
education, health and care plan
• The idea of a local offer is so children and families can access a range of
provision in the community (Information and advice, prevention)
• If a child has a education, health and care plan, there is a requirement to
prepare a personal budget if asked to do so by child’s parent or young
person
Recent developmentsissues arising from the draft SEN legislation
• Appears to be a more narrow definition of personal budgets in the draft
legislation –
S26 (2) implies that personal budgets can be made available to secure a
'particular provision’
S26 (3) states that regulations may make provision about the description
of provision to which payments may (and may not) relate.
Some Issues to resolve
• How local authorities will develop a range of provision which families
can buy and what support they will provide to people with personal
budgets.
• How the single plan will look at each stage
• The idea of a single assessment – has it been shelved?
• Whether we can retain the flexibility of personal budgets as they have
developed to date
• Is there still hope for bringing funding streams together?
Agenda for the afternoon session
• 7 Steps of Self Directed Support – Presentation and Group
Discussion Including feedback (10 minutes)
• Resource Allocation System - Presentation
• Principles of Person Centred Planning and support planning
• Group work: Scenarios to consider person centred planning and
processes for making it happen
• Identifying next steps and key actions to take forward