Transcript Canadian Celiac Association PAB Preparing for the Future
Professional Advisory Board Canadian Celiac Association PAB Activities 2006
Dr. Connie M. Switzer MD, FRCPC, FRCPC Clinical Professor of Medicine University of Alberta, Edmonton, Alberta Chair CCA PAB
Canadian Celiac Association
• Mission Statement The CCA is a national organization dedicated to providing service and support to persons with celiac disease and dermatitis herpetiformis through programs of awareness, advocacy, education and research
Role of PAB
• • • • • • Accountable to CCA through BoD Membership by nomination at the discretion of the BoD on recommendation of PAB Advisory role to BoD and CCA Assist BoD and CCA in mandate of promoting wellness of persons with CD & DH Advocacy role – For pts with CD/DH – For the CCA through variety of contacts
Members of Celiac PAB
Dietitian Members • Shelley Case, BSc, RD • Mavis Molloy, BSc, M. Ad. Ed., RD • Cereal Chemist/Grain Expert • Marion Zarkadas, BSc, MSc Dr. Vern Burrows C.M., PhD, FAIC, PAg
Members of Celiac PAB
• • Physician Members • Dr. D. Butzner • Dr. M. Rashid Dr R. Warren • Dr. Connie M. Switzer (Chair) Advisors: Dr T. Murray, Alexandra Anca BoD Liaison : Jean Eldershaw
PAB – Education & Awareness
• • • • >40 - Educational presentations – Local Events – National Conferences & Symposia – International Conferences – Participation in CAG Consensus on Wait times Media presentations Many peer reviewed publications including CCHS Posters at 12 th International Celiac Symposium
Role of PAB - Research
• • • • • • • Resource experts Advise CCA on current research directions Advise CCA: aspects of Research Awards – Dr. J.A. Campbell Research Award – Young Investigator Award Encourage research initiatives Advise CCA re: options for research funding Publication of Canadian Celiac Health Survey Advise CCA re: innovative approaches to share research information
Canadian Celiac Health Survey
• • • • • • Diseases and Sciences” Health survey questionnaire requested by several international research groups Several abstracts at major meetings Oral presentations at National CAG Consensus on waiting times related to Celiac disease Presentation of CCHS at research days and forums for physicians
On “Pubmed” round the world
“Beautiful paper, long due. I am pretty sure that this contribution will have a terrific impact on celiac disease awareness. Congratulations to you and all the other authors!”
Alessio (Dr Fassano) February 25 th , 2007 e-mail to Shelley Case
Celiac disease: Evaluation of the diagnosis and dietary compliance in Canadian children
Pediatrics
2005 Dec; 116: e754 - e759 Article available to public at pediatrics.aappublications.org
The impact of a gluten-free diet on adults with coeliac disease: results of a national survey
J Hum Nutr Diet
2006 Feb;19:41-49
PAB Projects
• • • • • • • • • Physicians and Patients” Review of “Hidden and Dangerous” pamphlet CCA response to CODEX Draft review of HC position statement on Oats and Celiac Disease help too – www.celiac.ca
Pocket dictionary – 2 nd printing “Ask the Expert” column CCA newsletter Content input “Blood tests for Celiac Disease” CCA Health Professionals Resource Kit
PAB Advisory Role
• • • • • Advise the CCA on “pure & uncontaminated oats” Advise CCA on PAVENA trademark Review/advise the CCA on information projects Create guidelines for Celiac Disease Diagnosis and Treatment for provincial medical associations Review Research grant applications – Young investigator Award – Dr. JA Campbell Award
Celiac Disease Screening Tests: Are They Being Used Appropriately?
Kelly E McGowan*, Rachael W McKenna, Martha E Lyon, J Decker Butzner ASG Sept 2005
PAB Communication
• • • Liaison with BoD/CCA – Kenn Tuckey – Jean Eldershaw – Jim McCarthy Meetings – Regular teleconferences - committee work Annual Meeting – National Conference Toronto 2006 – National Conference Moncton 2007
CCA PAB Summary
• • In the rear view mirror is 2006: – Busy year – Innovative year – Productive year Through the front window is 2007: – Many projects in evolution – Look forward with enthusiasm to new challenges and opportunities
Thought for 2007
• “Together……We’re making a difference • Ensemble…..Nous ferons la différence” •
Delta Beausejour Hotel….May 27 th , 2007