Transcript Stickler Syndrome in Schools by Peggy Green General

Stickler Syndrome in
Schools
by Peggy Green
General Education Teacher
Sacramento City Unified School District
[email protected]
A Little About Ben…
• Shortly after Ben was born, he was diagnosed
with Stickler syndrome.
• He had open heart surgery as an infant and has
had several other complications that set back his
development.
• With the help of many early interventions and
therapies, Ben has made great progress and is a
happy, temper tantrum throwing three
year old!
Today’s Presentation…
• How to advocate for your child with
Stickler syndrome in K-12 school system
• Time for Questions/Comments
• My contact information will also be
provided; the information from this
slideshow is already available on the SIP
website
Special Education Law
and Stickler Syndrome
• The type of
accommodations/services in
school that your child will require,
if any, depends on your child’s
involvement with Stickler
syndrome.
Special Education Law
and Stickler Syndrome
• If your child has been diagnosed with
Stickler syndrome by a health care
professional, he or she is entitled to a Free
and Appropriate Education (FAPE).
• Your child will qualify for services under the
Federal Individuals with Disabilities
Education Act (IDEA) and/or the
Americans with Disabilities Act (ADA).
Special Education Law
and Stickler Syndrome
Because your child has Stickler syndrome,
he or she will most likely benefit from
either:
–a 504 plan (associated with the ADA law)
OR
–an IEP (Individualized Education Plan –
associated with the IDEA law).
What are the Differences
Between IEP’s and 504’s?
• The ADA (504 plan) is a civil rights law, Section 504 of the
Rehabilitation Act of 1973, that ensures students equal
access to education regardless of his or her disability.
• For a student to be eligible for a 504 plan, he/she must
have a physical or mental impairment that substantially
limits one or
more major life activities.
• It must be due to the disability that the student is unable
to gain equal access and benefit from school programs
and services.
What are the Differences
Between IEP’s and 504’s?
• IDEA (IEP plan) governs access to
special education and related services.
• It establishes safeguards for disabled
students under the law.
• IDEA ensures that a child with a disability
is given an IEP that is designed to meet
the child’s individual needs.
What are the Differences
Between IEP’s and 504’s?
The easiest way to understand whether
your child needs an IEP or 504 is to
answer the following:
• Does Stickler syndrome adversely affect
your child’s educational performance?
–If so, your child is eligible for special
education services under IDEA.
What are the differences
between IEP’s and 504’s?
• If Stickler syndrome does not
adversely affect your child’s
educational performance to the extent
that special education services are
needed, then your child will probably
not be eligible for an IEP under IDEA.
• Your child will likely qualify for
protections under a 504 plan.
Continued in Part II