Transcript Got Healthcare? Important tools and resources for

Got Healthcare?
Important tools and resources for successful youth
to adult health care and management
Stephanie Hood, B.A. – Transition Coordinator
Meredith Pyle – Title V CSHCN Specialist
Maryland Office for Children with Special Health
Care Needs
Health Care Transition is:
• Health care transition is helping young people with
special health care needs plan their move from the
child-centered health care system to the adultcentered health care system. Some ways that this is
done include:
– Youth’s current doctors and health care providers
discussing the youth’s changing health care needs as they
become an adult and eventually seeing adult providers
– Doctors and other health care providers encourage
youth’s development of self-management skills and
knowledge
– Families, youth, and providers working together on a
written Transition Plan(s)
Some quick facts…
• Many Maryland families report that their
YSHCN do not receive the services they need
to successfully transition to health care, work,
and independence.
– In 2006 only 37.4 %; Maryland ranked 42nd (NS-CSHCN)
YSHCN ages 12-17 whose families report that…
Maryland %
Nation %
doctors and other health care providers have
discussed eventually seeing providers who treat
adults
10.8
11.9
doctors and other health care providers have
discussed youth’s health care needs as he/she
becomes an adult
46.5
46.2
doctors and other health care providers usually or
always encourage development of selfmanagement skills and knowledge
75.4
78.0
Transition Planning
• Developing a transition plan for YSHCN is an
important tool in the process of moving to
adulthood
• Including health care in the transition plan, or
developing a separate health care transition
plan with care providers, is crucial.
• Health care transition planning should be
done by youth, families, and providers.
Transition Planning Resources for
Youth
AGES 12 – 14 “New Responsibilities”
AGES 15 – 17 “Practicing Independence”
AGES 18 & UP “Taking Charge
Transition Planning Resources for
Youth
1.
2.
3.
http://www.gottransition.org/youth-resources
http://healthytransitionsny.org/skills_media/tool_show
http://cshcn.org/planning-record-keeping/teen-carenotebook
Transition Planning Resources for
Parents and Families
1.
2.
3.
http://www.gottransition.org/families-information
http://www.waisman.wisc.edu/wrc/pdf/pubs/TAHC.pdf
http://new.dhh.louisiana.gov/assets/docs/OCDD/publicatio
ns/EmergencyPreparednessTheTakeandGoEmergencyBook.
pdf
Transition Planning Resources for
Providers
1. http://www.communityinclusion.org/pdf/man8.pdf
2. http://web.syntiro.org/hrtw//index.html
3. http://www.gottransition.org/providers-bestpractices
Questions?
For questions or additional information, contact:
Stephanie Hood, Transition Coordinator at
Maryland’s Office for Genetics and Children
with Special Health Care Needs at
[email protected] or 410-767-5298