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Public Health Nutrition and Chronic Kidney Disease ASTPHND 2011 Salt Lake City Andrew S. Narva, MD U.S. Department of Health and Human Services National Institute of Health Public Health Nutrition and CKD Public health burden of chronic kidney disease Barriers to improving outcomes in CKD Patient and provider education is a component of systems change Diet education materials for people with CKD and their providers Age-adjusted* prevalence of diagnosed diabetes, by race or ethnicity, United States, 1997−2008 10 Percent 8 6 4 Blacks Mex/Amer 2 0 *Based Whites on the 2000 US standard population Source: NHIS and National Diabetes Surveillance System www.cdc.gov/diabetes/statistics Puerto Ricans Cubans Diabetes is Driving the Increase in ESRD Incident ESRD patients; rates adjusted for age, gender, & race. USRDS ADR, 2008 Health Disparities in Kidney Disease Rate per million population Af Am N Am Hispanic Asian Non-Hispanic White Incident ESRD patients; rates adjusted for age & gender. USRDS ADR, 2007 National Kidney Foundation (NKF) Definition of CKD Kidney Function. Glomerular filtration rate (GFR) <60 mL/min/ 1.73 m2 for 3 months with or without kidney damage OR Kidney damage for 3 months, with or without decreased GFR, manifested by either − Pathologic abnormalities; or − Markers of kidney damage, i.e., proteinuria (National Kidney Foundation. Am J Kidney Dis. 2002;39(suppl 1):S1-S266) Diabetes (DM) and Hypertension (HTN) Often Coexist in CKD Distribution of CKD, HTN, & diabetic patients in Medicare population, 2004. USRDS ADR, 2006 Even Early Referral Is Too Late to Intervene GFR (mL/min/1.732) 100 No Treatment Current Treatment Early Treatment 10 Kidney Failure 0 4 7 Time (years) 9 11 Challenges to Improving CKD Care CKD remains under diagnosed Implementation of recommended care is poor Many clinicians feel inadequately educated – Uncertain about how to interpret diagnostic tests – Unclear about clinical recommendations – Low confidence in their ability to successfully manage CKD – Indications for, and process of, referral poorly defined HP2010: Increase the proportion of treated chronic kidney failure patients who have received counseling on nutrition, treatment choices, and cardiovascular care 12 months before the start of renal replacement therapy. Goal = 45% Percent of incident ESRD patients (2006) USRDS 2008 ADR Lack of Appropriate Care/Late Referral More rapid progression Worse health status at time of initiation Higher mortality after starting RRT Decreased access to transplant Defining optimal care is not the primary barrier to improved outcomes. Delivering appropriate care to those who need it is the problem we must overcome. The National Kidney Disease Education Program NKDEP aims to reduce the morbidity and mortality caused by kidney disease and its complications by: Improving early detection of CKD Facilitating identification of patients at greatest risk for progression to kidney failure Promoting evidence-based interventions to slow progression of kidney disease Supporting the coordination of Federal responses to CKD What Can Primary Care Providers Do? Recognize and test at-risk patients: monitor eGFR and UACR Screen for anemia (Hgb), malnutrition (albumin), metabolic bone disease (Ca, Phos., PTH) Treat cardiovascular risk, especially with smokers and hypercholesterolemia Refer to dietitian for nutritional guidance Educate patients about CKD and treatment Brochures for At-Risk Audiences Quick Reference on UACR and GFR GFR Urine Albumin Tear Pad GFR Pad – Provider reference (back) CKD Brochure New Materials CKD Brochure New Materials CKD Brochure New Materials CKD Brochure New Materials CKD Brochure New Materials CKD Brochure CKD Brochure Dietitian Outreach Goal: Transfer specialty knowledge from CKD diet expert RDs to general practice dietitians An NKDEP initiative since May 2007 – Several rounds of research with dietitians – Comprehensive materials and outreach strategies – Key partner: American Dietetic Association Two key elements – Nutrition materials – Certificate Program in CKD Nutrition Management New Suite of Nutrition Materials Helps RDs effectively provide medical nutrition therapy (MNT) to CKD patients not on dialysis Role of MNT in CKD management – Can help slow progression, treat complications – RDs can deliver in primary care setting NKDEP materials fill unmet needs – Concise content and “clean” design – Free, downloadable, reproducible – Patient materials: 7th grade reading level or lower Published May 2010 Diet Report Card New Suite of Nutrition Materials All providers can use to explain basic CKD diet changes using a stepped approach http://nkdep.nih.gov/resources/nkdep-factsheet-overallpatient-508.pdf Factsheet on reading the food label New Suite of Nutrition Materials Certificate Program in CKD Nutrition Management A comprehensive Certificate Training Program for RDs who want to improve their expertise in CKD – CKD novices as well as those looking to “brush up” NKDEP developing content on key topics – – – – – – Burden of disease Identifying and monitoring CKD Slowing progression – albuminuria, CVD, diabetes Complications, including mineral bone disorders Key nutrients Renal replacement therapy ADA will transform into an online training program – An official ADA Certificate Training Program; members will earn certificate and CE credits for completing – Scheduled for Sept 2011 release – ADA will promote to all members Kidney Disease Education Kit Prompted by MIPPA KDE benefit A new six-lesson kit for patient educators – Jointly conceived by NKDEP and IHS – Everything to develop and deliver tailored lessons; for professionals educating low-literacy patients – Features materials from NKDEP, NIDDK, NIH, CMS Lessons reflect key (and CMS-specified) content – Kidney disease basics – Managing your kidney disease – What happens when kidney disease gets worse? – Choices for treating kidney failure – Getting ready for treatment – Living with kidney failure Kidney Disease Education Kit Each lesson includes – Learning objectives – Suggested lesson outline – Supplemental “take away” resources for patients – Additional background/clinical info for educators – Sample outcome assessment questions (in compliance with the new MIPPA benefit) Helping Pharmacists Educate People with CKD A new brochure to caution people with CKD about medicines – Some medicines may be harmful – Some doses will need to change – Talk with your pharmacist Developed in conjunction with Pharmacy Working Group Encouraging Urinalysis for Children At Risk Various diseases and conditions put children at risk for CKD Routine urinalysis is no longer recommended by AAP Educational materials for pediatric offices that encourage urine testing for at-risk children Developing Q&A fact sheet for providers Nephrology Referral Form Created interactive form in response to requests – Facilitates transfer of information about patients – Allows for more informed and immediate evaluation by nephrologists – Based on IHS form Form includes various fields – Comorbidities – Lab results – Family history Supporting information explains why items are important for evaluation Nephrology Referral Regardless of when you refer, consider: • Obtaining preliminary evaluation (e.g. ultrasound, screening serologies) • Providing consultant with patient history including serial measures of renal function Like all successful relationships, this requires work and good communication. Be explicit about what you want out of this relationship. Help your referring nephrologist be the consultant you need him/her to be Lessons Learned CKD is part of primary care Changing patterns of care requires changing “the system” (CCM) Improvement in care results from changes implemented by physicians and non-physician health professionals Implemented through diabetes care delivery system; not specialty clinic based Surveillance and prevention are part of multisystem chronic disease control Emphasis on ensuring that patient received care from competent and interested individual, not referral Incident Rates of ESRD due to Diabetes 1980-2008 per million population, by age, gender, race, & ethnicity 600.0 500.0 400.0 White DM 300.0 African American DM Native American DM Asian DM 200.0 100.0 2008 2007 2006 2005 2004 2003 2002 2001 2000 1999 1998 1997 1996 1995 1994 1993 1992 1991 1990 1989 1988 1987 1986 1985 1984 1983 1982 1981 1980 0.0 Improving CKD Care Improving the care of people with CKD requires changing clinical practice in settings where high risk populations are served Providers change their practice based on scientific evidence and the expectations of their patients Improving care of patients prior to referral to subspecialty care is necessary to provide better longterm outcomes and to promote selfmanagement Nutrition professionals are key to improving care for people with diabetes and kidney disease NKDEP will collaborate closely with dietitians to develop effective models for CKD intervention Questions & Comments: [email protected] nkdep.nih.gov