Transcript Title catalogue Thema

Making dementia a European
priority
Marseille – 17 October 2008
Jean Georges, Executive Director
Overview
• Alzheimer Europe
• Paris Declaration of the political priorities of the
European Alzheimer movement
• Campaign to make dementia a European priority
• Campaign outcomes
• Lessons learned
2
Alzheimer Europe
AE Mission Statement
• Changing perceptions, policy and practice in order to
improve the access by people with dementia and
their carers to treatment options and care services
4
Strategic Objectives
• representing the interests of people with dementia and their
carers,
• involving and supporting national Alzheimer associations,
• improving the information exchange between Alzheimer Europe,
its members and European structures,
• promoting best practice through the development of
comparative surveys,
• developing policy statements and
• developing strategic partnerships
5
Paris Declaration
Paris Declaration
• Adopted by Annual General
Meeting in Paris (May 2006)
• Political priorities in the field
of:
– Public health
– Medical and scientific priorities
– Care and social issues
– Ethical and legal questions
– Alzheimer associations
7
Key challenges
• 6.1 million people with dementia in European Union
• Socio-economic impact of the disease
• Late diagnosis
• Impact on carers
• Lack of services
• Differences across Europe with regard to access to
treatment and services
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Delays in diagnosis
Months between first symptoms and diagnosis
Germany
10
Italy
14
Spain
18
Poland
23
France
24
UK
32
0
5
10
15
20
25
30
35
9
Carer burden
50%
41%
39%
32%
32%
25%
20%
<4 hours/day
23%
4-<10 hours/day
20%
>10 hours/day
10
From problems to solutions
• Dementia as a public health priority
• Increased research funding
• Awareness campaigns
• Dementia in medical training
• Exchange of best practices (care models,
guardianship systems)
• Support to Alzheimer associations
11
AE Campaign
Making dementia a European priority
• Paris Declaration adopted in
2006
• Creation of European
Alzheimer’s Alliance chaired
by Françoise Grossetête
(France) (grown from 30
members to 53)
• Total of 82 MEPs pledged
their support
13
Making dementia a European priority (II)
• Week long exhibition in the
European Parliament (17-21
September 2007)
• Lunch debates in European
Parliament
14
Campaign outcomes
Increased public support
• 72 Members of the European Parliament (all parties
and 20 European countries)
• Written Declaration in the European Parliament
16
National Initiatives
• French Alzheimer’s Plan (€1.6 billion)
• German Research Initiative
• UK Dementia Strategy
17
European initiatives
• French Presidency Conference on Alzheimer’s
disease (30-31 October 2008)
• Council of Ministers decision to improve European
collaboration on dementia research
• European Action Plan on Alzheimer’s disease (???)
18
Lessons learned
• Collaboration with national associations is key
• Development of relationships over time
• Scientific support for statements
• Strategic alliance with other stakeholders
• Transparency on funding
19
For more information
www.alzheimer-europe.org
www.dementia-in-europe.eu
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