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From uneasiness to integration
Raffaele D’Errico AIFA Onlus National President Italian Association of ADHD Families
goals
To give “voice” to ourselves, parents of ADHD children, to tell our experiences in order to help people understand what it really means to live with an ADHD child in the family.
AIFA onlus
who is AIFA?
www.aifa.it/associazione.htm
I
talian Association of
A
DHD Families
Onlus
A no profit Organization that aims only to social solidarity, information and scientific diffusion regarding the field of Attention Deficit and Hyperactivity Disorder, which expresses itself in a project called………...
AIFA onlus
Project “Parents for Parents”
www.aifa.it/storia.htm
AIFA onlus
october 20th 2001…
www.aifa.it/storia.htm
…
"Parents for Parents"
project is introduced to the
Holy Pope
for the first time on October 20th 2001, at Saint Peter Square, Rome and broadcasted by the main Italian TV Channel “RAI 1”.…
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To create a net of parents willing to listen and help those who find themselves in trouble.
To coordinate and encourage contacts between families with the ADHD problem.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To inform and update on latest scientific findings using mainly the informatics means.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To supply knowledge diffusion on scientific matters regarding ADHD and its relative therapies, in order to help capillarity of those resources aimed to achieve a right and fast diagnosis as well as its multimodal treatment.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
T
o create a link among social, scholastic and sanitary structures and their relative operators involved daily with an ADHD child.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To make a map of all Italian Centres and Professionals skilled in diagnosis and multimodal treatment.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To cooperate with local and National Institutions such as: Ministries, Social Services, Health Departments, Hospitals, Universities, Private Institutions, Scientific-Cultural and “No profit” Associations.
AIFA onlus
Project “Parents for Parents”
www.aifa.it/scopi.htm
To defend childrens’ rights and their families’, in order to improve their quality of life and favour the social acceptability of the disorder.
AIFA onlus
ADHD status in Italy
www.aifa.it/storie.htm
THE ADHD IN ITALY … Is ignored and mistrusted Rarely diagnosed and properly treated The right therapies are not well known and often the families are charged for it Adults with ADHD are not treated The Families are often forced to travel all around the Country to obtain the right diagnosis and treatment
AIFA onlus
AIFA complaints….
www.aifa.it/storie.htm
…serious happenings
Penal and civil reports Expulsions from schools, sport and church activities Scholastic outcasting Scholastic failures Separation of parents
AIFA onlus
AIFA complaints….
www.aifa.it/storie.htm
Physical and Psychic mistreatment social isolation of families Psychic disorder reported in brothers and sisters Wrong and useless counselling and therapies, often expensive and long lasting Adopted children with ADHD are often abandoned or sent back to Institutes
AIFA onlus
serious problems during adolescence
Low self-esteem
Depression, anxiety Loneliness and instability in relationships Early and major use of tobacco Early pregnancies
Inattention
Scholastic desertion Poor working profit Frequnt car accidents
Impulsivity/ Hyperactivity
Few friends Law Troubles (rare) Frequent car accidents Early pregnancies Early pregnancies
AIFA onlus
www.aifa.it/storie.htm
…To describe what it means living with an ADHD child is hard to explain: it’s just a relation made of hatred-love, a new kind of feeling, all to be discovered….Only who lives all this can understand it!
AIFA onlus
www.aifa.it/storie.htm
But what do they know how my life is, of the stress of going around all day long following a child who keeps running around all the time, who cannot be brushed passed by another child without smacking or insulting him?
AIFA onlus
www.aifa.it/storie.htm
One of my son’s classroom mates’ mother has told me that me and my husband are not good parents, otherwise it couldn’t be possible that my child keeps disturbing her child all the time……I feel like running away in a desert and scream…..
AIFA onlus
what has AIFA done?
www.aifa.it/tappe.htm
Promoted self-help
To set up a net of reference parents Nationwide
Replying to letters and phone calles
Gathering “true stories”
Promoting groups of self-help among parents
Promoting parent-trainings sessions
Promoting a census of allNational “Centres and Resources”
Promoting National Meetings for reference parents
Promoting a meeting forum (Agorà)
Promoting the ’AIFA-ICG group for international contacts AIFA onlus
what has AIFA done?
www.aifa.it/tappe.htm
Information
Publishing the Internet site
www.aifa.it
Promoting the
NewsletterAifa
Promoting the information newspaper
AIFANews
Publishing articols, books, audio-visual material
Replying to “culturally and scientifically uncorrect” articols
Taking part of TV programs and congresses
Organizing local and National Courses and Conventions AIFA onlus
Diffusion
what has AIFA done?
www.aifa.it/tappe.htm
Contacts with Mass media and Associations
Contacts and cooperation with Health Ministry, National Health Institute, Scientific Societies, and Universities
Contacts with Schools and Ministry of Education
Taking part as member in the International Group of Coordination
Taking part as member in the Family Association Forum
Taking part at the National Consensus
Promoting the diffusion of the Italian Guide Lines (2002)
Promoting the diffusion of the European Council Parliament Recommendation (2002)
Promoting the outset of National Referring Centres (NHI) AIFA onlus
Thanks for this place that you have dedicated to us parents, to make us feel less lonely in our path…….
Thanks for your words of affection and hope that you always manage to find for us……..
Thanks for your strength in fighting for ADHD… Thanks for being there because it reassures us!
Honourable Minister Olimpia Tarzia President of Permanent Observatory of Families Rome 2003
“AIFA is making a very importan job, not only within its
own field, that of supporting the families, but also in that more complex of diffusion of knowledge, being in the meantime the link between School and all the other
Institutions, including families, involved with ADHD”.
Thanks for what you are doing…
their smile tomorrow… … will also depend on you!
Italian Association of ADHD Families