Transcript Training - University of Alberta

CyberNephrology
2002
A Digital Resource for Kidney
Professionals
Presented at the
Sindh Institute for Urology and Transplantation (SIUT)
Karachi, Pakistan - October 2002
by Judy Tarselli, RN
7/17/2015
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Contents:
A one page introduction to cyberNephrology
A look behind the scenes
cyberNephrology 2002: It’s more than just a website!
CyberNephrology for your colleagues, staff, patients
Related groups and initiatives
Getting Connected, Exploring, Participating
A look at the future
cyberNephrology

A worldwide SOURCE of INFORMATION

A worldwide DISCUSSION

A global COMMUNITY
All available at your fingertips!
“A Digital Resource”
Nephrology is the common thread.
“for Kidney Professionals”
“A Digital Resource for Kidney Professionals”
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cyberNephrology
It’s more than just a website!
“A Digital Resource for Kidney Professionals”
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A look behind the scenes…
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1990’s: It started with three Basic Ingredients:
COMPUTERS
Launched “The Digital Era”
INTERNET
Digital Information Pathway
NEPHROLOGY
Study of the kidney
A complex medical field!
Plus:
An Afffinity for New Technology
Initial project supported by
National Kidney Foundation (NKF)
and
International Society of Nephrology (ISN)
Informatics Commission
COMPUTERS
NEPHROLOGY
(NKF and ISN)
INTERNET
Plus:
Knowledge, Enthusiasm and a Plan!
Organized and Directed by
Kim Solez, MD
Michele Hales
Pathology Dept. - University of Alberta - Edmonton, Alberta Canada
THE PLAN: Simple, but technically challenging!
“Let’s put those pieces together!”
COMPUTERS
NEPHROLOGY
INTERNET
THE GOALS: Far more complex!
1. Establish GLOBAL COMMUNICATIONS
2. Provide EDUCATIONAL RESOURCES
with worldwide access
3. Create a “NEW VISION” in the
Nephrology Community
(NOTE: Five years later, the goals are still the same!)
GLOBAL COMMUNICATIONS
EDUCATIONAL RESOURCES
“NEW VISION”
cyberNephrology “Home Page” - 2002
GOAL #1: COMMUNICATION
“Establish global communication system
for nephrology-based discussions”
Email discussion lists
“1500 Nephrologists from around the world,
available at your fingertips!”
GOAL #2: EDUCATION
“Provide universally-available
educational programs and resources”
Web-Based Atlases
Web-based programs
Pathology images
Online Abstracts
Virtual attendance at meetings
PowerPoint presentations
QuickTime videos
Internet Links
CD-ROM’s
CME’s
GOAL #3: A NEW VISION
(Promote an Active and Caring Nephrology Community to help
those patients and providers with the greatest need!)
•
•
Create an Internet-based Natural Disaster
response program to help organize and
direct worldwide rescue efforts related to
nephrology
Support RenalTech, COMGAN and the other
“CyberNephrology PLUS” partners!
Work on the cyberNephrology project started at
the University of Alberta in Canada
The necessary pieces were
gathered, organized, and assembled…
Servers, clinical nephrology, broadband, renal pathology
images, topics, names, cables, laptops, desktops,
hemodialysis, modem, dieticians, telephones, digital
imaging systems, videorecorder, nurses, peritoneal
dialysis, pre-ESRD, transplant, printers, meetings, meds,
antivirus programs, software, faxes, emails, list
management, CMEs, conferences, travel,
IT specialists,
COMPUTERS
organizers, bone metabolism, funding, labwork,
NEPHROLOGY
committees, updates, printers, etc., etc., etc.!
INTERNET
and finally connected!
COMPUTERS
NEPHROLOGY
INTERNET
www.cybernephrology.org
cyberNephrology
Launched on
the Internet in
1997!
COMPUTERS
NEPHROLOGY
INTERNET
www.cybernephrology.org
cyberNephrology
And growing
ever since!
COMPUTERS
NEPHROLOGY
INTERNET
cyberNephrology 2002
It’s more than just a website!
CyberNephrology 2002
Kim Solez, MD
The Goals
NKF Advisory Board:
Robert Schrier, MD (Chair)
Kim Solez, MD
Steve Fadem, MD
John Daugirdas, MD
Steve Curd
Michele Hales
NKF cyberNephrology
Additional staff
members:
Janice McDonald
Gary Green
University of Alberta
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Plus…
And 18 different
e-mail Discussion Lists!
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And it now has…
Online texts and atlases
Nephrology, Pathology,
Transplant medicine
Clinical Practice Guidelines
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Pathology Slides and Resources
Case Presentations
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Virtual attendance at
Meetings and seminars
Outreach & Support Projects
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Internet Links
to other kidney resources
CD-ROMS
For our low bandwidth
members
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Calendar of Meetings
and Events
Abstracts, files, videos and
photos from past meetings and
events
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Information and
support for staff
and patients
And More!
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The e-mail Discussion Lists
 NEPHROL: The original discussion list!
“Home of the Nephrolers and Nephronauts!”
•
Quickly consult experts around the globe!
•
Letter or Digest forms available
 NEPHROL-Digest: “Digest” form
 NEPHMIN: “Minimal” Stripped-down version of
Nephrol-Digest with all repetition and North American-specific
content removed
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The e-mail Discussion Lists
A Special Feature of NEPHROL!
Transplant-related messages posted on NEPHROL are
shared with CENTERSPAN:
“Your comprehensive source of transplant information”
AST American Society of Transplant Physicians
ASTS American Society of Tx Surgeons
www.centerspan.org
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The e-mail Discussion Lists
NEPHADMIN: Nephrology Administrators
NEPHBSCI: Nephrology Basic Science
NEPHCNPT: Discuss individual clinical
nephrology cases
NEPHDEVEL: Humanitarian Projects and ISN
Sister Centres program
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The e-mail Discussion Lists
NEPHINDIG: Renal disease in indigenous peoples
NEPHJNL: Nephrology/Transplantation Journal Club
NEPHNPPT: Individual renal biopsy cases
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The e-mail Discussion Lists
NEPHRONOL: Spanish-English discussion nephrology subjects
NEPHHIST: History of kidney medicine, ISN Video
Legacy project interview transcripts
IFKF-L: International Federation of Kidney
Foundations
MDDIALYSIS: US dialysis unit diirectors
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The e-mail Discussion Lists
RENALPRO: Nephrology professionals: Nurses,
Technicians, Dieticians, Social Workers,
Administrators, Physicians, Engineers, etc.
RENALRD: Renal dieticians, renal nutrition
KIDNEYDISEASE: Adult patients with kidney
disease. (This group now has 9 physician moderators
and co-moderators answering questions!)
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The e-mail Discussion Lists
NEPHKIDS: Parents of children with kidney
disease, also teen and young adult kidney
patients (Sue Conley MD and Melissa Gregory MD)
ANNET: African Nephronet
ARABNEPHROL: Arab language - started in
2001, spectacular success! (Abdulla Al Khader
MD abd Yousef Boobes MD)
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The e-mail Discussion Lists
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Online texts and atlases
Nephrology, Pathology, Transplant
Examples:
Schrier’s Atlas of Diseases of the Kidney
AJKD: Atlas of Renal Pathology
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Schrier’s Atlas of Diseases of the Kidney
www.kidneyatlas.org
 Volumes: 5

120,000 online
“hits” per month!

CDR version is
available for
areas with slow
or difficult internet
access
 Chapters: 66
 Images: 2500
 Color graphics and
PowerPoint files
 Entirely searchable
form!
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Schrier’s Atlas of Diseases of the Kidney
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Schrier’s Atlas of Diseases of the Kidney
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AJKD: Atlas of Renal Pathology
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Clinical Practice Guidelines
NKF-K/DOQI
ISPD
UK-Renal Association
CDC
FDA
and more!
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Clinical Practice Guidelines
NKF-K/DOQI
Kidney Disease Outcomes
Quality Initiative
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Pathology Slides and Resources
Educational Slides on Renal Parenchymal Diseases and
Hypertension
1. Digital Images from
the slide collection of
Helmut Rennke, MD
7/17/2015
2. Transplant
Pathology Internet
Services (TPIS)
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Pathology Slides and Resources
Digital Images from the slide
collection of Helmut Rennke, MD
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Pathology Slides and Resources
Transplant Pathology Internet
Services (TPIS)
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Case Presentations
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Virtual attendance at
Meetings and seminars
Since 1997: Create digital images and web pages
within minutes - “virtual attendance”
Abstracts, Text
PowerPoint presentations
QuickTime videos
Digital images
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Outreach & Support Projects
cyberNephrology + others!
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Internet Links to other resources








Transplant pathology Internet services (TPIS)
Journals
Clinical Practice Guidelines
Case Presentations
Nephrology rounds
New communication technology links
Reports
Standards for nephrology training
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Internet Links to other resources
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CD-ROMS
For low bandwidth members
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Calendar of Meetings and Events
Plus:
Abstracts,
files, videos
and photos
from past
meetings
and events
available
online!
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Information and Support
for Colleagues and Staff










Nephrologists
Pathologists
Nurses
Renal Technicians
Pharmacists
Renal Dieticians
Social Workers
Administrators
Researchers
Students
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Information and Support
for Colleagues and Staff








Discussion Lists
Patient Education Materials
Online CME programs
Projects
Support research
“Virtual” Meetings
NetMeetings
Press releases
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Information and Support
for Patients
Public Education
Patient Support
Patient Services
Patient Discussion Lists
Support for Parents of Children with Kidney Disease
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Related Groups and
Initiatives
“cyberNephrology Plus”







COMGAN
RenalTech
ISN: Video Legacy, Archives, Disaster Response
Banff Allograft Pathology Conference
HDCN
CenterSpan (Amer Soc of Tx Surgeons - ASTS)
Educational Slides on Renal Parenchymal
Diseases and Hypertension
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Related Groups and
Initiatives
COMGAN
Formed as Commisssion of ISN 1995
Chair: John Dirks (U of Toronto)
5 subcommittees





Africa
Asia
Central and South America
Eastern and Central Europe
Commonwealth of Independent States (former Soviet Union) and Middle
East
Partners
ASN
Asian Pacific Soc of Neph (APSN)
European Renal Assn (ERA)
European Society of Pediatric Nephrologists (ESPN)
Society of Latin American Nephrology andHypertension
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Related Groups and
Initiatives
COMGAN
Purpose: Aid regions of the world where a need for better care is foremost
Most work: Fact-finding missions, site visits, short courses
Moscow June 1997 350 attended
Istanbul 7/97 800
Goal Provide assistance to these areas through







7/17/2015
Fellowship program
President’s CME program
Library enhancement program
Travel grants
Slides on renal parenchymal disease and hypertension
Visiting scholars program
Scholarship training program
59
Related Groups and
Initiatives
Renal-Tech

Established by Zina Munoz, RN

Goal: Provide computer education and linkage to developing
countries

Donate computer hardware and software

Provide computer/internet/CDR based training to renal units in
developing countries

Provide on-site programs during RenalTech visits

Provide same to selected children with renal disease
(US/Canada)

Provide computer tech support to recipients
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Related Groups and
Initiatives
Renal-Tech
Donations and Site Visits made to date:
Nepal 1998, 2002
Nigeria
Cuba 1999
Kosovo 1999 2000 2002
“RenalTech for Kids”
Pediatric patients in US and Canada
Selected by NKF Council of Nephrology Social Workers
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Related Groups and
Initiatives
ISN
•
Video Legacy Project
•
ISN Archives
•
Disaster Response
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History in the making!
Video Legacy Project
ISN Video Legacy project
•
Project by Stewart Cameron, MD and Kim Solez, MD
•
Approximately 45 interviews recorded to date
•
Bibliography and CV added if available
•
1st CDR 1997
•
5000 copies made and distributed in N.America and Europe
•
NKF = sole distributor
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History of Nephrology
ISN Archives
Images from the ISN collection, located in
Amsterdam
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Related Groups and
Initiatives
Banff Allograft Pathology Conference

Organized by Kim Solez MD and Lorraine Racusen MD

Held every 2 years since 1991

Main standard-setting meeting in Transplant pathology

Worldwide attendees

Banff Conferences #1-6 held in Banff, Canada

Seventh Banff Conference to be held in Scotland (2003)

http://cnserver0.nkf.med.ualberta.ca/Banff/2003/
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Related Groups and
Initiatives
Banff Allograft Pathology Conference

Many presentations include full text abstract

Full text search capable

Links to www references and resources

Conference video segments

CD-ROM available with hundreds of full color images
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Related Groups and
Initiatives
HDCN
Hypertension, Dialysis & Clinical Nephrology
•
www.hdcn.com
•
Editor & Director: John Daugirdas, MD
•
3000 paid subscriptions
•
28,000 people subscribe to weekly email update
•
Close cooperative relationship between HDCN and
cyberNephrology
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CyberNephrology for the
Future





Constantly evolving!
CD-ROM educational programs
Education over the internet
Electronic newsletters
Patient Education materials
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CyberNephrology
NEW IN 2001
ARABNEPHROL - Spectacular success story!
KIDNEYDISEASE
Patient discussion group with MD moderators
Similar groups planned in
Spanish (Dr. Jaime Uribarri)
Arabic (Dr. Yousef Boobes and Abdulla Al
Khader)
NEPHINDIG (from SantaFe mtg)
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CyberNephrology
NEW IN 2002
www.cybernephrologie.org
 Links to French language resources
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CyberNephrology for the
Future




Winchester’s Replacement of renal Function by
Dialysis
Ronco and Bellamo’s Intensive Care Nephrology
DeBroe’s Clinical Nephrotoxins
Gokal et al’s Textbook of Peritoneal Dialysis
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CyberNephrology for the Future
Upcoming projects










Pre-ESRD
Haemodialysis
Peritoneal Dialysis
Transplantation
Glomerulonephritis
Kidney Stones
Hypertension
Diabetes
Cystic Kidney Disease
Urological Disorders/Men’s health
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CyberNephrology and You:





Getting connected
Exploring
Joining a list
Participating online
Rules and Netiquette
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CyberNephrology and You:

Getting connected
www.cybernephrology.org
Joining a list - It’s easy and free!
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CyberNephrology and You:

Exploring
OPENING
PAGE
EDUCATION
COMMUNICATION
NEW
VISION
ABOUT
HOME
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CyberNephrology and You:
Participating
Joining a list - It’s easy and free!
Lurking
Prefixes used on Nephrol
 TX special
Rules and Netiquette
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Where to Get More
Information



Hands-On training sessions
Visit www.cybernephrology.com
Contact Kim Solez MD or Michele Hales
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CyberNephrology
2002
A Digital Resource for Kidney
Professionals
It’s more than just a website!
Use it as a resource in your own work!
Refer your colleagues and staff!
Refer your patients!
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