Transcript Slide 1

Potential Solutions to Fight Cancer
Breast Cancer Screening
Deirdre O’Connell Vice President EUROPA DONNA - The
European Breast Cancer Coalition
EUROPA DONNA – The European
Breast Cancer Coalition
» Independent non-profit organisation
» 38 member fora throughout Europe
» Works to raise awareness of breast cancer and to
mobilise support of European women in pressing for
improved breast cancer education, appropriate
screening, optimal treatment and care and increased
funding for research
» Represents interests of European women regarding
breast cancer to local and national authorities as well
as to institutions of the European Union
Member Countries
Austria Belgium Bulgaria Croatia Cyprus
Czech Republic Denmark Estonia Finland
France Germany Greece Hungary
Iceland Ireland Israel Italy Latvia Lithuania
Luxembourg Malta Moldova Monaco The
Netherlands Norway Poland Portugal
Romania Russia Serbia and Montenegro
Slovakia Slovenia Spain Sweden
Switzerland Turkey Ukraine United
Kingdom
Our Aim
To Ensure that all European
Women have Access to
Accurate Information and
Quality Screening, Diagnosis
and Treatment
Breast Cancer in Europe
Every 2 minutes a woman in the EU-25 is
diagnosed with Breast Cancer (269,570
new cases per year)
Every 6 minutes a woman in the EU-25
dies from Breast Cancer (87,700 deaths
per year)
Most frequent cause of death for women
between 35 and 55
Towards Achieving Our Aims
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European lobbying
National lobbying
Co-operation with professionals; research
Advocacy training/education
Information/Awareness raising
Conferences
» EBCC
» Pan European
Lobbying - Where and Whom
Europe:
» European Parliament
» European Commission
» MEPs and Commission staff
National:
» Parliaments and other elected bodies
» Media
» Public servants
Lobbying the European Parliament
and Commission
» Reception Strasbourg
2000
» Establishment of EPGBC
2001
» Exhibition Brussels 2002
» Public Hearing 2003
» Breast Cancer
Resolution 2003
» EPGBC Website 2004
» Exhibition Brussels 2005
EUROPA DONNA Ten Goals
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To promote the dissemination and exchange of factual, up-to-date information
on breast cancer throughout Europe
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To promote breast awareness
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To emphasise the need for appropriate screening and early detection
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To campaign for the provision of optimum treatment
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To ensure provision of quality supportive care throughout and after treatment
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To advocate appropriate training for health professionals
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To acknowledge good practice and promote its development
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To demand regular quality assessment of medical equipment
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To ensure that all women understand fully any proposed treatment options,
including entry into clinical trials and their right to a second opinion
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To promote the advancement of breast cancer research
EP Resolution on Breast Cancer
June 2003
» Goal: to ensure that every woman has access
to optimum breast cancer screening and
treatment, no matter where she lives.
» Details targets and quality standards on
everything from mortality rates to how
mammograms are read
» Calls on member states to monitor and report
back by 2006 on their progress, giving
European Commission task of ensuring that
countries do their utmost to comply.
Breast Cancer Resolution 2003
Also calls for
» National screening programmes,
» Funding of research
» National action plans against cancer
» Evidence-based guidelines on breast-cancer
screening, diagnosis, treatment and aftercare
- development and constant updating
» Transparent auditing process
EC Recommendation on
Cancer Screening
» 2003 Adopted by Council of
Ministers
» Recommends that all Member
States implement breast, cervical,
colo-rectal screening.
» Progress report 2006.
European Code Against Cancer
» 2003 European Code Against Cancer.
3rd revised edition.
» Recommends breast, cervical, colo-rectal
screening
» Emphasises need for quality treatment
to support screening
National Population Screening
» Fully implemented national breast screening
programmes in 8 EU countries: Belgium,
Finland, France, Hungary, Luxembourg, the
Netherlands, Sweden and the UK.
» National programmes nearing completion in
Portugal and Spain
» Roll-out phase continues in Cyprus, Germany
and Ireland
» Regional or pilot programmes in Austria,
Denmark and Italy and in some other states.
European Guidelines for Quality Assurance
of Breast Cancer Screening and Diagnosis
» 4th edition 2006
» Programmes must adhere to European
guidelines
» Population based
» Regular audits by external experts
» Can reduce mortality rate by up to 35%
» Requirement for adequate treatment facilities
EPGBC Meeting January 2005
26 January EPGBC/EUROPA
DONNA meeting
» European guidelines for mammography
screening
» Speakers: Dr Lawrence von Karsa (EBCN Coordinator), Susan Knox (ED Executive
Director), Dr Karl Freese (DG SANCO), Karin
Jöns MEP
» Importance of adhering to guidelines stressed
» Access to up-to-date treatment programmes
28 June EPGBC/EUROPA
DONNA meeting
» Peter Ungar DG REGIO – Overview of Structural
Funds
» Possibility of applying SFs to health
» Aim to provide economic and social cohesion
» Connection between promotion of health and
healthy productive workforce
» About one third of EU budget dedicated to cohesion
policy, notably for reducing disparities in
development between regions
28 June EPGBC/EUROPA DONNA
meeting
Cohesion Policy 2007-2013
» Health to be target sector
» Strategic guidelines January 2006
» If adopted preparation of programmes to take place
2006
» Contact regional programme managers
» Lobby MEPs
» Lobby government
» Lobby political parties
Breast Cancer in the EU-25
European Parliament 17-21 October 2005
» Current information on
Breast Cancer in Europe
» Current state of
diagnosis, treatment,
etc. in member
countries
» European Guidelines for
Quality Assurance of
Breast Cancer Screening
and Diagnosis. 4th ed.
ED Advocacy Training
» Advocacy Training
Annual
Update on best practice,
guidelines, new treatments,
epidemiology +
communications training
» Involvement in other
advocacy training
initiatives – for example
» EPF workshops
» ESMO/ECCO Patient
Seminars
Informed Advocates
» Informed advocates command
credibility
» Clarity on objectives of screening
campaign
» Knowledge of European guidelines
» Knowledge of evidence for adherence
to European guidelines
Europa Donna Ireland: example
» National Screening Programme not yet rolled out to
entire country
» Around 55% of BreastCheck’s total target age group
screened
» Take-up rate of 77.1 per cent for 2004. Take-up rate
for second attendance in excess of the target of 70
per cent at 89.8 per cent
» Specialist Breast Units –leaflet, media, lobbying of
politicians and government – now member of
National Quality Assurance Group for Symptomatic
Breast Disease Services
Europa Donna Ireland Screening
Campaign
» Participation in public meetings
with parliamentary deputies, MEPs
» Cooperation with other groups
» Contact with Minister
» Media opportunities - letters to
newspapers, participation in TV
programme, radio interviews, etc.
EUROPA DONNA Strength
European advocacy organisation with
European strategy and goals
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Extensive network of survivors working at
national level through ED fora
Significant impact on European institutions and
national health services
Useful Websites
» EUROPA DONNA www.cancereurope.org/europadonna
» EPGBC
www.epgbc.org Report of EPGBC meetings and
links to relevant documents
» European Code Against Cancer. 3rd edition.
www.cancercode.org/code.htm
» European Mammography Guidelines. 3rd edition
www.euref.org (4th edition due early 2006 and includes
treatment guidelines)
» Draft Cohesion Strategic Guidelines 2007-2013
http://www.europa.eu.int/comm/regional_policy/sources/doco
ffic/2007/osc/index_en.htm