Transcript Slide 1
Supports and Gaps for Children with Autism Disability Rights Consortium 7-22-09 Ann T. Cutler, MD [email protected] Department of Disability and Human Development College of Applied Health Sciences University of Illinois at Chicago Disclosure Information I have no relevant financial relationships with the manufacturer(s) of any commercial product(s) and/or provider of commercial services discussed in this presentation. I do not intend to discuss commercial products or services and unapproved/investigative uses of a commercial product/device in my presentation Building Capacity Screening Diagnostic Services Treatment Family Support The Combating Autism Act Authorizes approximately $920 million for expanded activities related to autism spectrum disorders over a five-year period (FY2007-FY 2011). Activities covered under the act include screening, surveillance, education, early intervention, prompt referrals for treatment and services, and research. For more information: http://mchb.hrsa.gov/autism/default.htm Combating Autism Act Initiative Programs Leadership Education in Neurodevelopmental & Related Disorders (LEND) Training programs Developmental-Behavioral Pediatrics Training Grants Resource Centers State Demonstration Grants Research Networks and Nodes What is LEND? Leadership Education in Neurodevelopmental Disabilities Overarching Goal: Provide continuing education, consultation and technical assistance geared to the needs of MCH Health professionals, policymakers and families Funded by Maternal and Child Health Bureau (MCH) Based on the Combating Autism Act A national network of LENDs (www.aucd.org) Illinois LEND: A Partnership University of Illinois at Chicago: IDHD Family Clinics and Units UIC Autism Center of Excellence The Autism Program (TAP) of Illinois Children’s Mental Health and Developmental Neuroscience Center University of Chicago: Developmental and Behavioral Pediatrics Rush University: Speech and Hearing Collaboration with community agencies and Illinois Title Five Maternal and Child Health (MCH) Programs LEND Disciplines Child Psychiatry Disability Studies Family Nursing Nutrition Occupational Therapy Pediatrics Physical Therapy Psychology Public Health Social Work Speech and Hearing What’s Happening In Medicine??? American Academy of Pediatrics Policy It is important that pediatricians be able to recognize the signs and symptoms of autism spectrum disorders and have a strategy for assessing them systematically. Pediatricians also must be aware of local resources that can assist in the diagnosis of and the management of ASD. Pediatrics Vol. 120 No. 5 Nov. 2007 Screening and Surveillance Algorithm Language Delay: Absolute indications for immediate evaluation American Academy of Child Neurology 2006 Age 12 months No babbling 16 months No single words 24 months No functional 2-word phrases (not echolalic) Any loss of language or social skills Any age Illinois Chapter of AAP (ICAAP): Enhancing Developmentally Oriented Primary Care EDOPC at a Glance Goals Improve delivery and financing of preventive health and developmental services for children birth to three Build on existing programs to develop a range of strategies for primary care settings EDOPC at a Glance Collaborative project Advocate Health Care Healthy Steps Program Illinois Chapter, American Academy of Pediatrics (ICAAP) Illinois Academy of Family Physicians (IAFP) 2005 through 2010 Multiple funders EDOPC at a Glance: Who Has Been Trained Professionals Trained by EDOPC by Type Residents 192 P hysicans 633 Nurse P ractitio ner, 69 P hysician A ssistants 24 Other P ediatric Care Staff 1955 EDOPC Tools Training Academic detailing in the practice for all staff Peer-to-peer faculty Resource Toolkits Technical Assistance Monthly conference calls Face to face consulting Phone consultation EDOPC Web site ICAAP/TAP Collaboration Primary care physician training on early identification; especially in rural areas Establishing a network of interdisciplinary diagnostic teams Establishing autism medical homes for family partnerships regarding coordination of supports Transition Funding!! Autism Advocacy Initiative A network of IL physicians to represent physicians at the local and state level on issues related to autism The primary mission is to advocate for evidence based treatments To reach out and provide support to adult medical providers Access to Treatment for All Current evidence-based practices for autism: Applied Behavior Analysis (ABA)1, [i], [ii] Discrete Trial Teaching1 Pivotal Response Training1 Learning Experiences: An Alternative Program for Preschoolers and Parents (LEAP)1 Treatments Considered “Promising Practices”: Picture Exchange Communication System (PECS)Incidental TeachingStructured Teaching (TEACHH)Augmentative/Alternative CommunicationAssistive TechnologyJoint Action RoutinesCognitive Behavioral ModificationCognitive Learning Strategies Social StoriesSocial Decision-Making StrategiesSensory Integration [i] Rogers, S. J. & Vismara, L. A. (2008). Journal of Clinical Child & Adolescent Behaviors, 37 (1), 8-38. [ii] New York State Department of Public Health Early Intervention Program (2005). Report of the Recommendations: Autism/Pervasive Developmental Disorders. New York: Department of Public Health.