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Communication training for healthcare assistants supporting young people with complex communication needs Cheryl Hanson Post-graduate research student Manchester Metropolitan University [email protected] Session objectives • To share what is involved in using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) checklist to carry out a systematic literature review • To share the preliminary findings of this literature review • To share proposed next steps based on the findings Introduction • Existing communication partner training packages • Healthcare assistants • Young people with complex communication needs • Part of a PhD project • Develop a communication training package • Collaboration • Communication partners Rationale • • • • Access to training in education settings Healthcare assistants Continuing Care funded support Lack of access to a standardised approach to training for healthcare assistants is a key issue in the delivery of high quality care • Difficulties evidencing the transfer of skills and knowledge from training accessed to practice Objectives for this research task • • • • • Systematic literature review PRISMA checklist Communication training packages Facilitate change in communication partners Young people with profound and multiple learning disability Inclusion criteria: Population (P) Population 1: • Young people <25yrs with diagnosis of PMLD or PIMD with other diagnoses e.g. ASC, Downs Syndrome, CP Population 2: • Healthcare assistant, support staff, caregiver, residential support staff Inclusion criteria: intervention (I) • Any training programme that aims to change behaviour of communication partner of person with PMLD/PIMD Inclusion criteria: outcome (O) • Change in communication partners' behaviour, interactive style, approach to person with PMLD/PIMD • Change in quality of observations made of person with PMLD/PIMD • Increased use of strategies to support communication • Increased knowledge/understanding of communication Inclusion criteria: outcome (cont.) • Increased levels of attentional response to person with PMLD/PIMD • Increased quality of response to person with PMLD/PIMD • Increase in responsiveness in person with PMLD/PIMD • If outcome is no reported change in behaviour of communication partner with person with PMLD/PIMD Inclusion criteria: type of study • Some element of control e.g. multiple baseline across subjects design, experimental and control group Information sources Academic One File: • Arts, humanities, social sciences, science and technology CINAHL: • Nursing, physical therapy, health education, occupational therapy, and consumer health Web of Knowledge: • Web of Science and Medline Electronic search strategy: population 1 child* OR infant OR adolescent OR student OR (young person) OR (young people) OR (young adult) OR teen* AND (profound and multiple learning disab*) OR (profound and multiple intellectual disab*) OR (profound intellectual and multiple dis*) OR (profound* learning disab*) Electronic search strategy: population 2 AND (health care*) OR healthcare* OR support* OR (residential support*) OR (informal caregiver) OR (paid carer) OR care* OR auxiliary* OR (school nurse assistant) OR (respite support*) OR personal* OR (direct support worker) OR paraprofessional Electronic search strategy: intervention AND (communication partner training) OR (communication skills training) OR (partner assisted communication) OR (facilitated communication) OR (aided communication) OR (communication competenc*) OR (communication skills) OR (communication strategies) OR (alternative and augmentative communication) OR (intensive interaction) OR interaction OR sign* OR Makaton OR (objects of reference) OR (multi-sensory environment*) OR (multimedia profil*) OR (responsiveness) OR (attentional responsiveness) OR (eye gaze) OR (communication passports) Electronic search strategy: outcome AND change OR improv* OR develop* OR (skills transfer*) OR (knowledge transfer*) OR modif* OR adapt* OR facilitat* OR outcome Exclusion criteria: population Population 1: • Adult >25yrs with PMLD/PIMD, any person with a named disability other than PMLD/PIMD e.g. ASC, SLD, MLD, SEBD, ADHD, ADD, CP, Downs Syndrome Population 2: • Healthcare assistant, support staff, caregiver, residential support staff working with noncommunication disabled client group Exclusion criteria • Any training programme that promotes change in individual with PMLD/PIMD e.g. functional communication skills training • If change not reported • No element of experimental control reported Data collection process Database: CINAHL Date data retrieved: 12.09.14 Abstract no. 1 2 3 4 5 6 7 8 9 Population 1: young person 025yrs with PIMD Y y U Y N Y Y Y Y N N Y N N N N N N N N Y N N N N N N N N Y N N N N N N N N U N N N Y N N N N U N N N N N N Population 2: HCA Intervention: training Outcome: change in communication partner Type of study: some element of control ACTION ACTION RATIONALE Y = YES: FITS CRITERIA, N = NO:DOES NOT MEET CRITERIA, U = UNSURE: READ PAPER Summary of data collected Academic OneFile 35 hits CINAHL 9 hits Web of Knowledge 74 hits Stage 1 : title and abstract 8 110 articles excluded based on selection criteria Stage 2: full text 4 4 articles excluded based on selection criteria Stage 3: reference +2 2 further articles identified from reference search Studies selected and retrieved: 1 Reference Population 1 Population 2 Intervention Outcome Type of study Damen, Kef, Worm, Janssen & Schuengel 1 participant aged 13yrs of 5 participants in total with PIMD age range 1354yrs (M = 35yrs) from total smaple of 12 1 male 6 female Mean age = 32 Mean no. years working in group home =3 Mean no. working hrs = 14 Contact programme: identify target, interaction analysis, coaching (group session to discuss analysis and four video feedback sessions), evaluation AB-design across subjects with two baseline and three intervention observations General pattern of improved interaction with person with PIMD across support team on average in comparison to baseline Studies selected and retrieved: 2 Reference Population 1 Population 2 Croghan 1 participant Hospice aged 13yrs staff Intervention Outcome How to use the Affective Communicat ion Assessment Type of study Improved Case study understand ing of young person’s communica tion behaviours Studies selected and retrieved: 3 Reference Population 1 Munde, People with Vlaskamp, PIMD Ruijssenaars & Nakken Population 2 Intervention Outcome Direct 10 studies support staff identified as making reference to staff training Type of study Improveme Systematic nts in staff literature interactions review with people with PIMD and thus their alertness Studies selected and yet to be retrieved: 4 Reference Population 1 Population 2 Intervention Outcome Type of study Samuel, Nind & Vollans Four women with profound intellectual disabilities living in supported housing service Staff supporting the women in this service Training re intensive interaction principles Quasiexperimental interrupted time-series multiple baseline design Staff learned to use mirroring and contingent responding with people with PIMD Summary of evidence • Training can have a positive impact on how staff interact with young people with profound and multiple disabilities • Current evidence base is limited • Difficult to comment on quality of data as so limited • Further analysis is needed e.g. exploration of reference lists, Critical Appraisal Skills Programme forms, expand search to other databases Limitations • Potential study bias • Potential publisher bias that may need investigating further • Potential selection bias, particularly as working alone Conclusions • Significantly under researched area so current PhD project continues to be justified particularly in light of recent government reports and policy Conclusions (cont.) • However, wealth of evidence in: - Assessment of interactions between young person with profound and multiple disabilities and the people who support them - Interventions targeting change in the behaviour of young people with profound and multiple disabilities with growth in types of AAC e.g. micro-switching, symbols, VOCAs References • http://prisma-statement.org/statement.htm • Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry (2013) Chaired by Robert Francis QC • The Cavendish Review: An independent review into healthcare assistants and support workers in the NHS and social care settings (2013) Crown copyright References (cont.) • S. Damen, M.J. Janssen, S. Kef, C. Schuengel, and M. Worm (2011) Effects of video-feedback interaction training for professional caregivers of children and adults with visual and intellectual disabilities. Journal of Intellectual Disability Research. 55.(6) p581 . • Croghan, P. (2009) The therapeutic effects of hand massage: using a case study, Peter Croghan shows how learning to give a hand massage can help staff to communicate with patients who cannot speak. Learning Disability Practice. 12.(5) p29 . • Munde , V. S., Vlaskamp, C., Ruijssenaars, A.J.J.M. & Nakken H.(2009) Alertness in individuals with profound intellectual and multiple disabilities: A literature review. Research In Developmental Disabilities Volume: 30 (3) p462-480 • Samuel, J., Nind, M., Volans, A., et al.(2008) An evaluation of Intensive Interaction in community living settings for adults with profound intellectual disabilities. Journal of intellectual disabilities : Journal of Intellectual Disability 12 (2) p111-26