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Public Health Data Standards: Partner Perspectives National Association of Health Data Organizations Denise Love March 17, 2004 NAHDO’s Standards Perspective • Public health is broader than communicable disease reporting and epidemiology • The source of public health’s data is the private sector • Technological and political barriers require innovative solutions • The Public Health Data Standards Consortium is unique---composed of organizations representing diverse niches of expertise March 17, 2004 NAHDO and Standards • NAHDO is actively engaged in health care data standards activities • State health care data systems are based on UB92 or the UHDDS plus local fields • State health care data needs are evolving: – e.g. nosocomial infections, race/ethnicity – Pharmacy, patient safety, and outpatient data initiatives • Balancing reporting burden with benefits: – Reasonable and appropriate reporting requirements – Industry gets something in return or buys into the “public good” March 17, 2004 UB-92-based Reporting Plus: Fields added by States and Tracked by NAHDO Patient Demographics Patient Status Variables Clinical Variables Linkage Variables Financial Variables Other Variables Race/ Ethnicity Present on Admission Indicator Number of Ecodes Unique Patient ID Payer Field Dates/Time s of admit, discharge, procedures County Code Marital Status Patient Living Arrangement Homeless indicator Education Do Not Resuscitate Patient Functional Status Pharmacy Values Gestational Age/newborn Physician ID MMR on newborn record Total Provider Paid Amount Physician ID for each operating physician Birth weight/ EMS Run Newborn record Number/ record Admitting vitals Occupation Lab Values Data elements in red/bold are sought by National Purchasers for Quality NAHDO’s Standards Activities Support our Base Constituencies • AHRQ/HCUP National Data Standards Project (listserv, technical assistance) • NCHS/CDC Education materials for Health Data Reporting Guide and E-codes • AHRQ and CDC funding for NAHDO’s National Standards Consultant to attend: NUBC, X12N, HL7 • Consulting with Consumer-Purchaser Disclosure Group to expand UB-04 to support quality-based purchasing • National testimony on state positions • Training Workshops: teleconferences and in-person funded by CDC, AHRQ/BRIC, membership funds March 17, 2004 NAHDO’s National Standards Consultant March 17, 2004 How the Consortium Fits with NAHDO’s Standards Initiatives • NAHDO seeks Consortium support for its members’ health care data agenda • NAHDO is a founding member of Public Health Data Standards Consortium • The Consortium has the power: – To address cross-cutting standards issues – To combine voices around critical data needs • Examples: – Unique patient identifier – Independent assessment of the PHIN and NHII March 17, 2004 The Challenge • Identifying the business model and its niche vis a vis other associations • Remaining flexible to rapidly respond to evolving issues • Anticipating the future: proactive vs. reactive March 17, 2004