Transcript Awareness Connecting Caring and Community

Awareness:
Connecting Caring and Community
National Alliance for Caregiving
Fifth National Conference for Caregiver Coalitions
April 27, 2011
ASA Aging in America Conference
San Francisco, CA
So what does it mean to be aware?
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Recipient
◦ Is more aware of him/herself and current lived
experience
◦ Knows more about a resource, service,
diagnosis, prognosis
◦ Knows how to find help
◦ Is inspired to act
◦ Connects with others
So what does it mean to be aware?
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Professionals
◦ More knowledge of caregiver stresses and
impact on health and well being
◦ Knows more about resources available to
help caregivers
◦ Inspired to integrate caregiver into care
planning
◦ Seeks to engage caregivers at points of care
transition
So what does it mean to be aware?
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Faith Communities
◦ Need to support caregivers
◦ Aware they may be first to see signs of need
for caregiver support
◦ Ideas for what faith community(ies) could do
◦ Holistic view of the caregiver
So what does it mean to be aware?
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Policy
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Caregiver demographics
Caregiver needs
Policy solutions
Opportunities for partnership
Who else?
Local Government
 Business Community
 Philanthropy
 Generations
 Employers
 Planning Offices
 Hospital and Health Systems
 Others?
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Ways to build awareness
In person
 Events
 Media
 Social media
 Press
 Educational materials
 Research and report dissemination
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What is going on?
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Traditional media
Events- expos, conferences, recognition days
Telephone/Webinar
In person support groups
Websites
Social media
Professional skill enhancement/knowledge
CME
Print – magazines, email, newsletters
Community outreach
Performances
Music
Hawaii Family Caregiver Coalition
Family Caregiver Awareness Day and Resource
Fair
Dear Members and Friends of the Hawaii Family Caregiver Coalition,
On Tuesday, March 29, 2011, the Hawaii Family Caregiver Coalition will host the 2011 Family
Caregiver Awareness Day and Resource Fair at the Hawaii State Capitol.
We are holding this celebration to give legislators, family caregivers, and the public the opportunity to
learn more about the issues involved in caregiving and about the legislative tools, which, if enacted,
would help families meet their responsibilities. The event will provide you with an opportunity to
showcase the services and products that you provide.
Activities for the day will include:
1. Exhibits by organizations involved in aging and caregiver services.
2. Visits to legislators to brief them on aging and caregiving issues.
3. A chance to network with people from like-minded organizations and join the Coalition.
We are also excited to mention that Lanakila's "March for Meals" and an AARP rally will be held at the Capitol
on the same day! There will be lots of energy and activities that promises to make this event fun and
worthwhile!
http://www.kokuamau.org/content/family-caregiver-awareness-day-and-resource-fair
New Mexico
Direct Caregivers Coalition
The New Mexico Direct Caregivers Coalition
was formed to improve the quality of life for
direct caregivers. The Coalition, funded by the
New Mexico Developmental Disabilities
Planning Council (DDPC), carries out its work
to support direct caregivers by:
 Providing a space for family and professional
direct caregivers to share information, and to
support one another professionally;
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http://www.nmdirectcaresupport.org
Capitol Region Caregiver Coalition
(New York)
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Tools for Caregivers Day, April 9, 2011
Call 434-2160 to register TODAY!
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Click HERE for a schedule of our day.
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Click HERE for workshop listing and
list of panelists for our informal Q&A.
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http://www.capitalregioncaregiver.com/
Kinship Care Coalition
The coalition has grown to over forty health and social services
agencies that meet quarterly and discuss issues and problems facing
kinship caregivers. Most recently the coalition changed its name
from GP/GCI to the Kinship Caregiver Coalition. Several provider
agencies felt the former name of the coalition was misleading by
suggesting only grandparents raising grandchildren were provided
services. The coalition remains responsive to all kinship caregivers
and their issues.
 The Ohio Department of Aging was instrumental is supporting this
effort in Ohio, funding the Kinship Navigator Program in
Montgomery County for two years. Ongoing support for the
program is provided through Children Services Board in
Montgomery County and the Center for Healthy Communities.
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http://www.med.wright.edu/chc/kinship/about.htm
New York City
Family Caregiver Coalition
5TH ANNUAL NYC FAMILY CAREGIVER COALITION
CELEBRATION HONORS THE GERANIUM FARM,
FRIENDS IN DEED AND HEALTHCORPS
NEW YORK, NY (November 11, 2010) — At its fifth
annual Evening of Celebration and Gratitude, hosted by
EmblemHealth, The New York City Family
Caregiver Coalition (NYCFCC) celebrated the theme
of Body-Mind-Spirit and honored three women whose
organizations exemplify NYCFCC’s efforts to support
caregivers: The Geranium Farm, Friends In Deed, and
HealthCorps.
http://www.emblemhealth.com/default.aspx?Page=840
The Alliance was created to conduct research,
do policy analysis, develop national programs,
increase public awareness of family caregiving
issues, work to strengthen state and local
caregiving coalitions, and represent the US
caregiving community internationally.
Recognizing that family caregivers provide
important societal and financial contributions
toward maintaining the well-being of those
they care for, the Alliance's mission is to be
the objective national resource on family
caregiving with the goal of improving the
quality of life for families and care recipients.
United Way of Morris County’s
Caregivers Coalition is hosting a
resource fair to offer information and
resources on caring for loved ones
of all ages dealing with issues of
aging, disability, or mental illness.
The fair will take place from 9:30
a.m. to 2:30 p.m., Saturday, Nov. 6,
at the Ukrainian American Cultural
Center, 60 North Jefferson Road,
Whippany.
Caregiver Health
National Stress Awareness Day - Coping
with CareGiving Stress
 As CareGivers, we may feel that our tasks
are endless and we continually focus on
the needs of those we are caring for
rather than tending to our own
needs. April 16th is National Stress
Awareness Day. In honor of this day,
CAREjourney.com is addressing
CareGiver stress and offering
suggestions. Consider some of the
following ideas to help reduce stress as
you cope with the ongoing demands of
caregiving.
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Disease Specific Awareness
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March 14, 2011 Alzheimer’s Awareness Day is today ... a time
to support caregivers of Georgians living with Alzheimer’s
disease
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AMERICUS — Today, March 15 has been designated by the Georgia
Alzheimer’s Association as “Alzheimer’s Awareness Day” at the
State Capitol. This is an annual event where advocates from across
the state have the opportunity to meet with legislators and other
key government officials at the capitol to educate them on the
important issues of those living with Alzheimer's disease (AD)
and/or a related dementia as well as their families.
WHYY Wider Horizons and the
Caring Community
Media and Community Partnerships
WHYY and Caring Community's efforts to reduce isolation
for caregivers and improve caregiving for individuals with
chronic conditions reflect [WHYY's] new, flexible approach
that takes advantage of on and off-air platforms. Using both
traditional and experimental reporting methods, the
programming reflects the viewing community -- a community
of producers.
-- Excerpted with permission from Vibrations, a biannual newsletter
published by Sound Partners for Community Health.
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For more information, visit www.soundpartners.org.
or http://www.whyy.org/widerhorizons/circleoflove.html
What should we consider?
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Answer the journalist’s questions:
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Who
What
When
Where
Why
What should we consider?
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Spend time defining the message
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Think about best way to convey it
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What else is going on?
What should we consider?
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Is there a collaborative opportunity
before us?
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Are we maximizing use of evolving media?
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Have we looked into generational
differences?
What should we consider?
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Have we recognized cultural or other
types of diversity?
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Did we assess what was done?
What are we doing?
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Awareness Building
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Building with Awareness
Contact Information
Brian M. Duke MHA MBE
Acting Secretary
Commonwealth of Pennsylvania
Department of Aging
555 Walnut Street, 5th Floor
Harrisburg, PA 17101-1919
Telephone: 717-783-1550
Email: [email protected]