Transcript Slide 1

National Core Indicators
Adult Family Survey Results 2010-2011
Josh Engler, Human Services Research Institute
www.nationalcoreindicators.org
[email protected]
July 13, 2012
What is NCI?
• NCI is a voluntary effort by public
developmental disabilities agencies to
measure and track their own performance.
• Collaboration began in 1997
• Currently 35 states represented plus 23
sub-state entities
• Coordinated by HSRI and NASDDDS
What is an “Indicator”?
• Indicators are standard measures used
across states to assess the outcomes of
services provided to individuals and
families. Indicators address key areas
of concern including employment,
rights, service planning, community
inclusion, choice, and health and
safety.
• Information
& Planning
• Access &
Service
Delivery
• Choice and
Control
• Community
Connections
• Satisfaction
• Outcomes
Health, Welfare, System
• Employment
• Community
Participation
• Choice &
Decision
making
• Relationships
Family Outcomes
Personal Outcomes
NCI Performance Assessment
• Health and
Welfare
• Respect &
Rights
• Medications
• Safety
• Service
Coordination
• Staff
Stability
NCI Participating States 2010-2013
NH
WA
MA
OR
NY
WI
SD
MI
IL
UT
MO
CA
OH
IN
AZ
OK
NM
NC
AR
SC
MS
TX
PA
VA
KY
HI
AL
GA
LA
FL
2010-11
24 States
2011-12
29 States
2012-13
35 States
ME
RI
NJ CT
MD
DC
www.nationalcoreindicators.org
What are the data sources?
• Adult Consumer Survey
• Family Survey
 Adult Family Survey (at home, 18+)
 Family Guardian Survey (out-of-home)
 Children Family Survey (at home, <18)
• System Indicators
Family Survey Design
• Administered by mail
• Includes demographics, six outcome areas
• Combination of 5-point scale and yes/no
response options, open-ended comments
• 79 questions on AFS, 53 on FGS, and 67 on
the CFS – will be shorter in next round!
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Selected Results 2010-2011
Adult Family Survey
Sample and Analysis
• 9 states mailed 13,270 surveys
• States- Florida, Georgia, Louisiana, North
Carolina, New Jersey, New Mexico, Ohio,
Oklahoma, and Pennsylvania
• 3,884 returned; 3,654 valid surveys
• Response rate 29% (valid 28%)
• State averages are statistically tested against
national average
NCI Adult Family Survey Results 2010-2011
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Respondent Demographics
Relationship
Respondent Age
11% 5%
8%
8%
31%
Under 35
Parent
35-54
53%
Sibling
55-74
75+
84%
Other
64% over age 55
NCI Family Survey Results 2010-2011
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Number of Adults Living at Home
5%
15%
29%
One
Two
Three
Four or More
51%
Florida NCI Family Survey Results 2010-2011
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Out-of-Pocket Expenses
3%
19%
26%
Nothing
$1-100
16%
$101-$1,000
$1,001-$10,000
$10,000+
36%
Florida NCI Family Survey Results 2010-2011
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Household Income
12%
Below $15,000
27%
14%
$15,001- $25,000
$25,001- $50,000
$50,001- $75,000
Over $75,000
28%
19%
46% below $25,000
NCI Family Survey Results 2010-2011
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Information and Planning
Florida NCI Family Survey Results 2010-2011
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Information and Planning
Florida NCI Family Survey Results 2010-2011
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Information and Planning
Does your family member’s case manager/service coordinator tell you
about public services that you are eligible for (e.g., food stamps,
Supplemental Security Income [SSI], housing subsidies, etc.)?
State
Always
NCI Average
Usually Sometimes
36%
25%
14%
Range of ‘always’ responses, by state.
NCI Adult Family Survey Results 2010-2011
Seldom
Never
N
10%
16%
3,358
15% - 47%
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Information and Planning
“Our case manager makes sure our family's opinions and decisions
are important and taken into consideration when planning.”
“ (We need) better knowledge of available resources. If you don't know
what to (or how to) ask, you don't find out information.”
NCI Adult Family Survey Results 2010-2011
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Access and Service Delivery
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Access and Service Delivery
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Access and Service Delivery
Do you feel that your family member’s day/employment setting is a healthy
and safe environment?
State
NCI Average
Always
Usually
66%
27%
Sometimes Seldom
Range of ‘always’ responses, by state.
NCI Adult Family Survey Results 2010-2011
5%
1%
Never
N
1%
2,797
53% - 77%
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Access and Service Delivery
“We like our case worker, and all the people where our daughter gets
"vocational training." We are happy with our in-home waiver and our
case worker.”
“Dental - many dentists not equipped/trained to work with special
needs. I am paying out of pocket for quality dental care by a dentist
and X-rays and cleaning 3-4 times a year.”
NCI Adult Family Survey Results 2010-2011
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Choice and Control
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Choice and Control
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Choice and Control
“We do have "freedom of choice" to choose a case management provider,
but do not have control over the hiring. We can express grievances with
provider if necessary.”
“We have the right to accept compatible workers or not to accept
workers that are not compatible.”
“[I am satisfied with] having control over the hiring of support
workers”
“I am always informed about how the money is spent.”
NCI Adult Family Survey Results 2010-2011
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Community Connections
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Community Connections
“Volunteer activities have increased his self-esteem and sense of
belonging in the community.”
“We definitely need more resources for persons who have a more
complex array of disabilities, not only for those whose disabilities
are milder, more interaction with non disabled peers, one on one.”
NCI Adult Family Survey Results 2010-2011
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Satisfaction
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Satisfaction
Overall, are you satisfied with the services and supports your family and
family member currently receive?
State
Always
NCI Average
Usually Sometimes Seldom
40%
43%
12%
Range of ‘always’ responses, by state.
NCI Adult Family Survey Results 2010-2011
2%
Never
N
2%
3,451
22% - 51%
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Outcomes
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Outcomes
Have the services or supports that you or your family member has received
during the past year been either reduced, suspended, or terminated?
State
Yes
No
N
NCI Average
31%
69%
3,156
Range of ‘yes’ responses, by state.
13% - 46%
*Higher score is negative
NCI Adult Family Survey Results 2010-2011
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Outcomes
“I am so grateful for the DD Waiver - it keeps my family member
safe, busy and gives [individual in services] a meaningful life”
“Sometimes the goals are vague and it's hard to tell if they are being met.
I think when you are dealing with our son, the main thing is for him to be
happy and content. This is difficult to put down as a goal.”
NCI Adult Family Survey Results 2010-2011
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For More information
• [email protected]
• www.nationalcoreindicators.org
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