Transcript Document

Implementing NICE guidance on autism –
developing a local autism team
January 2014
Autism: the management and support of children and young people on the autism
spectrum. NICE clinical guideline 170 (2013)
Autism: recognition, referral, diagnosis and management of adults on the autism
spectrum. NICE clinical guideline 142 (2012)
Autism diagnosis in children and young people: recognition, referral and diagnosis of
children and young people on the autism spectrum. NICE clinical guideline 128 (2011)
Background
• Autism is a lifelong neurodevelopmental condition.
• Autism is thought to occur in at least 1% of children.
• Coordination between health agencies and other key
services such as education, social care and the
voluntary sector is important.
• If NICE guidelines are implemented, people with autism
should enjoy an improved quality of life, increased
personal autonomy and greater inclusion in every aspect
of society.
Implementing NICE guidance
www.nice.org.uk
Session objectives
NICE has developed an implementation pack, which
provides the resources for 3 sessions to progress
development of a local autism team. At the end of these
sessions, participants will have:
• formed an autism strategy group
• mapped out the current autism service locally
• designed an autism service that meets NICE
recommendations
• identified what additional skills and/or resources are
needed to make these changes
• established the foundations for a local autism team
• created an action plan for change.
Implementing NICE guidance
www.nice.org.uk
Role of the strategy group
• Developing clear policy and protocols for the local
autism pathway.
• Ensuring the provision of multi-agency training about all
aspects of the pathway.
• Making sure that the relevant professionals and are
aware of the pathway and how to access services.
• Supporting the integrated delivery of services across all
care settings.
• Supporting the smooth transition to adult services for
young people on the pathway.
• Auditing and reviewing the performance of the pathway.
Implementing NICE guidance
www.nice.org.uk
Session 1: Understanding your local
autism service
• Purpose: The outcome of this session is to ensure that
the strategy group has all the necessary information to
design and develop a local autism team.
• Exercise 1: The purpose of a multi-agency local autism
team (agree a working statement outlining the purpose
and tasks of the multi-agency local autism team).
• Exercise 2: Review and map your current services.
• Exercise 3: Analyse your current service.
Implementing NICE guidance
www.nice.org.uk
Session 2: A vision for change
• Purpose: Members will design and develop a local
autism team that is in line with NICE recommendations
and meets the local needs identified in session 1.
• Exercise 4: What would a good autism team look like in
your area?
• Exercise 5: Getting from where you are to where you
want to be.
Implementing NICE guidance
www.nice.org.uk
Session 3: Creating the team
• Purpose: At the end of this session you should have the
foundations of your local autism team in place and have
an action plan for its development.
• Exercise 6: Working with current staff and resources.
• Exercise 7: An action plan for the team.
• Exercise 8: Monitoring progress.
Implementing NICE guidance
www.nice.org.uk
Local autism teams
An autism team is a multidisciplinary group that has the
skills or access to the skills to:
• carry out a diagnostic assessment
• offer information about appropriate services and
support
• provide or organise interventions and care.
Implementing NICE guidance
www.nice.org.uk
Local autism team – core staff
Children’s services
Paediatrician or
paediatric neurologist
and/or child and
adolescent psychiatrist
Speech and language
therapist
Clinical and/or
educational
psychologist
Occupational therapist
Social worker
Support staff
Adult services
Psychiatrist
Nurse
Occupational therapist
Implementing NICE guidance
Speech and
language therapist
Clinical psychologist
Social worker
Support staff
www.nice.org.uk
Children and young people’s services
Autism teams should have a key role in providing:
• assessment and management of autism
• specialist care and interventions
• access to related services
• support for families
• local protocols
• advice, training and support for staff.
Implementing NICE guidance
www.nice.org.uk
Adult services
Autism teams should have a key role in providing:
• access to appropriate mainstream services
• support for individuals and agencies across the pathway
• access to local diagnostic assessment
• post-diagnostic support
• ongoing support for people with complex needs
• liaison with health and social care staff
• autism training to frontline staff
• help for families and carers.
Implementing NICE guidance
www.nice.org.uk